cognitive problems and speach problems

Discussion in 'Fibromyalgia Main Forum' started by bobbycat, Dec 3, 2010.

  1. bobbycat

    bobbycat New Member

    Do any of you that have cognitive problems also have trouble with speaking such as trying to pronouce a word and you will start and the first two letters may come out but you can not get the remainder of the word to come out and you keep trying to force it. Sometimes I will keep trying and I can eventually get it out. I will try to give an example: Woooooooorrrrrry I will check back for response as I have been very fatigued lately if no one post soon but I hope someone post
  2. quanked

    quanked Member

    I have similar problems. It can be very frustrating and actually often causes me to not want to talk in some situations.

    I can try a number of times to get words out and sometimes I just give up.

    I have lots of problems with word finding some days.

    I am having a run of fairly bad days myself. I am not sure why I am sitting here with the computer and not laying down. I think I will lay down.
  3. Jayna

    Jayna New Member

    Your body has a shortage of available energy. It reserves the most energy to keep your heart and lungs and brain and kidneys and liver running, because without those you die. Being able to talk isn't usually necessary to stay alive, so it loses when energy is low.

    Your body is trying to preserve energy for fighting some other problem, maybe a less noticeable one like a hidden infection or simply being over-tired from doing too much. Listen to it, be nice to it, and let it get on with its job.
  4. quanked

    quanked Member

    Makes perfect sense--now I just need to remember to just stop and rest when when my speech and thinking fail me.
  5. sascha

    sascha Member

    have had for years. it has gotten worse. years ago i was diagnosed with spasmodic dysphonia, a form of dystonia. then my condition morphed into essential tremor. i have trouble producing speech and pronouncing words. very frustrating, but i've had to learn to live with it. and yes, it's way too much effort to try to talk a lot of the time.

    one thing that might be a comfort for you is to get a diagnosis from a speech specialist. that helped me when i found out my condition has a name, and for a time i went to a support group for it.

    if i can scare up the money, i want to have session with expert in Alexander Technique--there ARE breathing and relaxation and correct muscle use corrections that can ease our struggle to speak, and make us more comfortable.

    good luck- you are not alone! best, sascha
  6. bobbycat

    bobbycat New Member

    Thanks everyone it is scaring me. This use to never happen to me it seemed to start with my cognitive problems.
  7. bobbycat

    bobbycat New Member

    It does seem to happen more when I am very tired thanks for bringing that to my attention
  8. Katherine50

    Katherine50 New Member

    I have aphasia very bad. I can relate, I feel like I sound like I have Alzheimer's . . . and maybe I do. We have to face facts that this disease can morph into other forms.

    It's as if the pain is interfering with the dendritic connections all throughout the body and brain; short-circuiting everywhere.

  9. IanH

    IanH Active Member

    In our family we all have speech problems. Four of us have ME/CFS. I was diagnosed FMS, My wife diagnosed CFS, Our daughter diagnosed MCS and our grandson is under investigation. These different diagnoses came about because we each saw different specialists. We all have similar symptoms just differing in degree.
    I can say for sure we all have ME/CFS. My daughter, who was diagnosed MCS is part of a University research program and they have verified ME/CFS immunologically.

    My wife's speech problems are the worst. When stressed or exposed to paint, some perfumes, detergents or insecticide her speech deteriorates until she spits out gibberish. This can last for many minutes. Usually her speech is like you describe, she utters the first part of the word and the rest of it is blocked.

    I have always believed that ME/CFS is caused by a dysfunctional immunological suppression system. I.E. when a immunological reaction/activation occurs (such as by a bacterium or virus) it persists longer than is normal and sometimes will not terminate at all, leaving the person constantly immunologically alerted (so to speak). Recently a number of studies have shown that the CD8 molecule on T-cells, Natural killer cells and Dendritic cells is responsible for the immunological suppression/termination. (In simple terms, once the invader is dealt with or under control the immune reaction has to be switched off). It has been suspected for a while by AIDS researchers that the CD8 molecule is dysfunctional in ME/CFS. (The CD4 molecule is disabled in AIDS) I believe it is either blocked/inhibited or it is not properly synthesised by its gene. Now we see that the spanish researchers are about to confirm some kind of association between CD8 function and ME/CFS.

    In the case of MCS the same problem exists and people's exposure to certain immuno-reactive chemicals or foods will similarly cause an immune reaction. This happens all the time in everyone, its just that most people don't even notice it. (The immune system is very busy every minute of the day dealing with all the crap we expose ourselves to).

    Some of our immunological reactions affect the nervous system - and fast too. We have noticed this in my wife's case. In about 30 seconds to one minute after exposure her speech is affected. The broncii are lined with lymphatic bodies which are there to detect toxins in the air - hence the reaction can be quick. (Once people who complained of these reactions were sent to a Psychiatrist, perhaps some still are).

    I raise all of this because chemical exposure can be one "cause" of this speech deficit as well as other neurological anomalies.

    Ian Hodgson PhD[This Message was Edited on 12/09/2010]
    [This Message was Edited on 12/09/2010]