Colonoscopy/Endoscopy this week - TERRIFIED

Discussion in 'Fibromyalgia Main Forum' started by foxglove9922, Aug 13, 2005.

  1. foxglove9922

    foxglove9922 New Member

    I had a colonoscopy done over 20 years ago and it was horrific. They gave me something in the IV for pain and to sedate me but instead I was wide awake and felt the entire thing.

    I'm now suffering with CFS and have an endoscopy/colonoscopy scheduled for Thursday because I'm anemic and my stool sample showed dryed blood and fresh blood, so I'm bleeding somewhere. Also, the endoscopy is for undigested food found in my stool as well as a great deal of fat that the doctor thought could be due to many things including wheat intolerance. Has anyone ever heard that before?

    What's making the matters worse for me is I'm moving 9 days after the procedure and I'm worried about how far back the procedure will set me due to my CFS.

    Has anyone here experienced this procedure who also has CFS? and how did you make out?

    Thanks a bunch,,,,,I could use some encouragement right now. I have so many things going wrong in my life personally as well, so the stress is obviously creating a setback in itself.

    Many thanks for any responses. Debi
  2. Krista47

    Krista47 New Member

    I had the endoscopy/colonoscopy done about 5 months ago. They put me to sleep so I didn't feel a thing. It was called "twilight" because you aren't put completely under but just enough to go to sleep and not remember a thing.

    Check with your doctor and make sure you get this, and that they understand your anxiety so that you can have a Valium before the procedure, if needed. And let them know that you may need more of the anesthesia, because it didn't work the last time.

    Once you let go of the fear, things will go much smoother. The doctor should reassure you so that you have nothing to worry about.

    My experience was that I laid on the table, went to sleep, woke up, went home, and went to sleep again. Felt just fine afterwards. I didn't feel or remember a thing.

    I hope this helps, and I hope you'll talk to your doctor and get the reassurance you need so that you have no fears.

    Take care,
    Kris
  3. icare

    icare New Member

    I had both done a couple years ago.I was awake when they did it.The Endoscopy was not a big deal.The freeze your throat so you dont choke and down goes the camera.
    AS you know the Colonscopy was much harder.

    Rick
  4. TXFMmom

    TXFMmom New Member

    I have had several colonoscopies since colon cancer runs in the family, and I don't think they are much of a big deal, other than staying up for hours on the commode.

    I have had tow endoscopies, one was nothing, the last one wasn't so hot. They gave me Demerol, the stupidest drug to ever give for such a thing, and a little versed, and didn't numb my throat well enough and then he let the resident do the thing. I listened to the whole thing, so I knew.

    Just tell them to make sure they spray your throat well and it will be a piece of cake.
  5. tansy

    tansy New Member

    of gluten intolerance or celiac disease is fatty stools, another is anaemia. Undigested food in the stool can also be down to gluten intolerance, but may not be the only cause. If it is gluten intolerance causing this then a gluten free diet will make a real difference.

    After going gluten free for years I tried it again, big mistake, but at least I learned how many global symptoms were caused or made worse through eating gluten; it even affected my mood. I had both iron and folic acid deficiency anaemias as well as all the classic sings of celiac sprue. Back in the 80s the GE specialist I saw told my GP it was an eating disorder; I had ended up looking like someone who was starving yet I was eating enough to be overweight and was even eating during the night.

    Good luck on Thursday. I can understand why you feel terrified, in similar circumstances I would be too. My thoughts are with you.

    love, Tansy

    [This Message was Edited on 08/13/2005]
  6. Mikie

    Mikie Moderator

    Be sure to tell the anesthetist what happened last time.

    We just discussed colonoscopies and you can do a search and bring up our comments. Unfortunately, a number of our members had experiences similar to your last one.

    Again, best of luck to you with the procedures and your move. Let us know how you are doing.

    Love, Mikie
  7. lightkeeperkathy

    lightkeeperkathy New Member

    My Mother had colon cancer five years ago and I should of had a colonoscopy then but I was so scared I waited until last month to have it done. The reason I went in was because I felt like I had something stuck in my throat all the time. The doctor did a colonoscopy and endoscopy and let me tell you I'am the biggest baby and it was a piece of cake. I felt nothing at all. I remember them putting in the IV and then telling me sweet dreams and the next thing I knew I was going and getting dressed to leave. I felt no pain and the best part is my tests were normal. My mother told me to just put one foot in front of the other and get it done. I did it and was worried all those years for nothing. I'am sure you will be fine. I will be thinking of you on thursday. Let me know how it was and good luck.
    [This Message was Edited on 08/13/2005]
  8. Mikie

    Mikie Moderator

    For some of us it has been nothing and we were put out completely and for others, it was very painful. A lot depends on the anesthetist and that is why I suggested explaining your bad experience with him or her. I'm not trying to scare you but you need to be proactive to ensure this experience is a good one.

    I've had two colonoscopies and both times, I had horrible nausea. Other than that, the first one was a piece of cake. I told the anesthetist about it and he added an antinausea to my cocktail. When I woke, I could not expel the gas and I was in agony and then I was nauseated. The had to add more antinausea med to my IV before I could go home. It took more than an hour in horrible pain before I could expel the gas. The doc said one in every 1,000 has this happen.

    Again, good luck to you. Let us know how it goes.

    Love, Mikie
  9. foxglove9922

    foxglove9922 New Member

    Hi Everyone,

    Many, many thanks to all that responded. I did just read the responses on another post for the colonoscopy and have talked over my previous experience with my surgeon and feel pretty confident that they will have me adequately sedated this time. The anesthesiologist is suppose to call me this week and go over things with me so hopefully I can well under before the procedure starts.

    Krista, I find your post very encouraging as I was worried about getting back on my feet with a move scheduled just 9 days later. I know from other posts we've shared that our CFS is quite similiar in nature.

    Tansy, I was hoping you'd pop in on my post as I'm aware that you are unable to tolerate gluten and wasn't aware that fat in the stool was a sign of it....just sounded funny to me. So much of what you said sounds like me, I was a rather slim 125 pounds a few months ago but just recently lost another 10 pounds for no reason,,,,I'm starting to look too skinny. Stress may be a factor in this as well as I've had more than my fair share of it lately. Thank you so much for the information. One more question if you don't mind, is wheat and gluten the same thing?

    Mikie, again a big thank you for the encouraging words. I'm terribly bothered by the fact that I have to give up iron for a week before the procedure. I'm already starting to droop but at least I can continue the B12 shots up until the day of the procedure.

    Best wishes to all and thanks to everybody who has responded. You really are great bunch of people and I appreciate all the kind words and information.....foxglove
    [This Message was Edited on 08/14/2005]
  10. cherylsue

    cherylsue Member

    I just popped on board and am sorry to hear of your situation. Hopefully, you will get to the "bottom" of this and treat everything that needs to be treated including gluten intolerance.

    Be sure you are sedated for the colonoscopy. My husband wasn't sedated enough and he felt the whole thing. You received good advice above - talk to your anesthetist.

    I just had a wisdom tooth removed, and I was very nervous about it and how it would affect my CFS. You know, it went fine. The doctor put me on ABX after surgery and actually the ABX made me feel better with the CFS!

    I'm sorry you are having a stressful time right now. However, you have come so far, and you will go further towards recovery. Don't give up hope!

    Hugs,
    CherylSue
  11. lilbird

    lilbird New Member

    I had both procidures done in March and the Endoscopy done in again in April, they found allot of inflamation the first time as well as the second time.

    The prep was a pain. The procidure's were a peice of cake for me. I was a little tired the following day. But that was it. I was compleatly out when they did the colonoscopy. And in a twilight zone when they did the endoscopy alone.

    Most people I hear from have not had any problems with there CFS following. I am sure it will go ok. don't worry.

    Cathy
  12. PVLady

    PVLady New Member

    I had a colonoscopy and endoscopy a few months ago.. my doctor puts you to sleep for the entire procedures. One minute you are in the bed, the next you are waking up - it is all over.

    Why don't you ask your doctor to sedate you for the procedures.
  13. foxglove9922

    foxglove9922 New Member

    Oh, my I'm so happy to hear from everybody and many thanks for all the encouragement.

    I'm not leaving Syracuse, just moving to a cheaper place. My lease just went up and so did the rent,,,ouch,,,and our medical bills are forcing me to find something cheaper. I'm fairly happy with the townhouse I found just worried about the stairs if my hips get acting up this winter.

    CherlySue, so nice to hear from you. Good to hear all is going well with you. I also haven't been on the board as much lately because I've been so busy with my new found freedom as my CFS symptoms has lessened. I'm about 70% of what I used to be so I'm crossing my fingers and toes that this procedure may reveal something that could be holding me back. Just wish I didn't have a move to contend with as well. The day after the endo/colonoscopy, I have to have a procedure done in the OB/GYN office due to an abnormal pap. Should be a piece of cake after what I have to go through on Thursday.

    The colonoscopy stories seemed to be so varied. Some have suffered horribly while others don't remember a thing. I'm going to make sure the anesthiologist understands my fear and problems from before so that I can either be put under or adequately sedated.

    Best wishes to all............foxglove