Concerned re: tolerance w/ pain meds

Discussion in 'Fibromyalgia Main Forum' started by Flaxen, Jun 8, 2006.

  1. Flaxen

    Flaxen New Member

    My Dr. started me on 5 mg. oxycodone 2x day 2 weeks ago.Doesn't always work...did at first. I tried to taper down cause I was concerned about tolerance and taking 800 motrin in between(useless) went down to 1 pill a day and I am miserable. Please guys any thoughts on pain control. I tried cymbalta with this and could not tolerate it. Anyone take SAm-E? Thank you...god bless....Sharonn
  2. Flaxen

    Flaxen New Member

    By lowering the pain that good or bad?hate to be dense...but I don't understand...once you take them you have less ability to fight pain naturally? What else can you do? I don't take them unless it's real bad.2 a day is not working. I do have some spinal stenosis and a fusion...periphal neuropathy in feet, fibro, cfs, and some bulging neck disks. I just want a quality of life. The elavil helped me but the side effects(cardio) were not good. Thank you so much. I am desperate. Flaxen
  3. Jeanne-in-Canada

    Jeanne-in-Canada New Member

    I build up tolerance really quick, less than a week. Simple solution though, I alternate between 2 narcotics and take some of the lowest painkiller doses on the board.

    I've seen many polls where people tell what doses they take, and you are taking a very low amount too. 5 mg oxy's are the weakest dose you can get, many are taking 20 mgs 3x/day, with other narcs for breakthrough pain on top of it. You only take your's twice daily, inadequate if your pain is all day. The darn things barely last 4 hours.

    Until you get your pain meds sorted out w/ your doc, you can get yourself some arnica gel, or Traumeel cream. They aren't narcotics, but are good for instant pain relief that is short acting. Can feel like a lifesaver when you are biting bullets waiting for the meds to kick in, and can even stave off taking the narcs sometimes too.

  4. butterfly8

    butterfly8 New Member

    I take SAMe 400 mgs to help with depression. I cannot say that it has helped my pain levels. It does really help me with depression and the miseries - in my opinion. I now am not taking any other anti-depressants and feel more 'natural' in myself.

    With regard to pain, could I suggest that you get your vit D3 levels checked? I know this is a controversial area. However, I had my D3 levels checked, and they were very low. I had a course of D3 tablets - not expensive - and now my D3 levels are in high normal range. I found that my pain levels fell off considerably. The doc. said that the D3 would help reduce my pain, and it did. I also use magnesium tablets and rub in magnesium cream. This is a slow fix, but over time this has also helped me a lot.

  5. Marta608

    Marta608 Member

    Please see my recent post about New Doc's PA and vitamin D. I think this could be helpful to many of us!

    She told me yesterday that if I wanted pain meds she'd refer me to a pain specialist but that I need to think about it. Once you start down that road, she said, it's hard to come back and the more you take, the more you need to control pain.

    I am NOT advocating no pain meds if that's what your doctor and you decide is right for you. But for those who may not be on pain meds may want to consider vitamin D first if you're shown to be deficient.
  6. dragon06

    dragon06 New Member

    about taking your pain meds. My mother has had FMS for 23 years now and always takes her pain meds. If you need them, take them.

    Of course it is possible to build up some tolerances but that can be avoided by switiching between a couple of different will have to discuss this with your doctor.

    I have been dx with this for 2.5 years but have had it as long as I can remember. If I need my pain meds I take my pain meds cause I have learned that if you don't treat the pain then the pain just gets worse.

    Will you have to change your dosage of meds from time to time? Probably. You are on a very low dose now and that is probably why you are not getting adequate relief. But I definitly agree that not treating the pain makes it a lot worse!!!

    The best thing to do is find a doctor who is more worried about your pain than whether or not you will build a tolerance to one specific drug.

    I have not tried Cymbalta myself but I have recently start Lyrica with a lot of success. I am not saying it will work for you but it might. It's something to look into.

    It took awhile to find a med regiment that worked or helped my pain at all so you need someone who is willing to work with you and try things out.

    To give you an idea my current meds are:

    Lyrica - 75mg x3/day (nerve pain and more)
    Naproxen - 500mg x2/day (analgesic/anti-inflammatory)
    Prozac - 40mg x1/day (anti-depressant/seratonin increase)
    Protonix - 40mg x1/day (GERD Treatment)
    Metoclopramide - 10mg as needed up to x3/day (for digestive)
    Lisinopril - 10mg x1/day (High Blood Pressure)
    Dimenhydrinate - as needed (anti-nauseant)
    Vicodin - 5mg/500mg as needed up to 4 a day (narcotic)

    It took me about 2.5 years to get this regiment down and start feeling some relief. It by no means cured me but it has made most days much more manageable than before and made my quality of life better.

    I used to try and put off taking the narcotic and waited until the pain was too much to bear before taking it but then I learned that if I treat the pain when it's a 5 instead of a 9 then it rarely gets to 9 and the meds is effective a lot faster.

    The longer you wait to treat pain the harder it is to treat. So take what you have been prescribed and talk to your doctor about trying to find a treatment regiment that will work for you...or find a new doctor...

    Sorry to be blunt...but after 31 years of watching or living with this dd I tend to just blurt things out.
  7. CanBrit

    CanBrit Member

    Hi Sharon

    I have a prescription for 10 mg morphone up to 3 times per day. As a rule I usually only take 1 at night with my sleeping pill and about half the time, a second one during the day.

    I think it is important to get the right medication to fit the symptoms. In the last few months, I've had increasing nerve pain in my legs and feet. It can be extremely uncomfortable.

    I spoke to my rheumatologist and he prescribes Lyrica for it. He said nerve pain like this is quite common with FM.
    I haven't started it yet but morphine doesn't touch this pain so I think that will be the next step.

  8. Flaxen

    Flaxen New Member

    From my own experience I have to agree that if you let the pain is harder to trat and you need more meds in the long run. The nights are worst for me..I peak at 8...last night the pain was so bad...I finally took 2 oxy's at once and got refief. It's hard when no one else gets it. The pain in this weather(raining for a wekk in ny) is unbearable. Thank you again for all your replies. Love, Flaxen
  9. ckball

    ckball New Member

    I have been taking oxycodone %mg for 4 years. I am prescribed 4 a day, I take 3-6 depending on my ativitey. The help me so much.

    The thing with pain meds, especially with Fibro and I have RA in hips, knees, hands, spinal stenosis, just to mention a few, is if you wait until it hurts then it doesn't work as well. I have tried it both ways. I take at least 3 a day, even if it is a good day, 6 if a bad day, (2 at a time or one then and hour or two later another one.

    I also take ultram, usually more in the evening, oxycodone gives me energy so I don't sleep well if I take it after 7 or so.

    I will take the ultram with a oxycodone if I plan on vacuming, shoping,etc.

    Don't beat yourself up over this, if you need it - take it. We already feel bad enough with hurting ourselves more.
    Hang in there and good luck, Carla

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