Considering donating a kidney for my dad. What do you guys think?

Discussion in 'Fibromyalgia Main Forum' started by kriket, Mar 19, 2007.

  1. kriket

    kriket New Member



    My dad has chronic kidney failure in both kidneys, but has yet had to go on dialysis. His kidneys function at about 15%. If in the future things worsen, he will need a kidney transplant and I am thinking serioulsy about donating one of my kidneys to him. It's kind of scary with this dd, but I am willing to do whatever I can to keep my dad around as long as I can. What do you guys think?


    Kriket
  2. AllWXRider

    AllWXRider New Member

    With Epstein-Barr virus, I can't even donate blood!

    Do some research for your dad on Systemic Enzymes. Dr. William Wong N.D. has done some pioneering research on systemic enzymes for eating up scar tissue, dissolving fibrin blockages, dissolving isoprin bonds that viruses use to attach to your DNA. I remember that Dr. Wong did have an article on treating kidney disease and found Vitalzym (a systemic enzyme formula) to very effective.

    Viruses seem to be showing up in all kinds of conditions. My daughter (studying dietetics) told me that a macular degeneration "eye" disease was found to be a virus and a new anti-viral is now developed called "Macgen"(sp?) that cures it.

    If everything else is OK, donating a kidney is a very noble thing to do...but an ounce of prevention...
  3. jaltair

    jaltair New Member

    You are 29 - that is young. You didn't mention if you had siblings who were in good health. It may be that a sibling in better health would be a better choice. I would suggest that you make a pro and con list and really think before doing or saying anything to family.

    Your Dad will go on a list and there will be a donor other than family that will be the donor if you or a sibling don't become donors. I have a friend whose brother received a kidney from someone who had passed away. Her brother is doing well. He will always need to take medications to prevent rejection, but other than that and becoming ill more easily, he's doing ok with the donor kidney.
  4. kriket

    kriket New Member



    I don't have any viruses that I know of. I would have to go through a number of tests and pass them to know for sure if I can donate. If I am a match, I am seriously considering it. My dad and I are very very close and we have already discussed this possibility. I have one brother, but I just don't think he would do it(hate to say)
    I know there is a lot to think about.


    Kriket
  5. JLH

    JLH New Member

    Oh, Kriket, I WOULD DO IT IN A HEARTBEAT IF I COULD!!

    My father died in 2001 from end stage renal failure. He had been on kidney dialysis for 18 months.

    No one in our family could donate a kidney for him, because they would not do a kidney transplant on him because he was over 70. I don't know if that was a state law or what.

    His diabetes is what destroyed both of his kidneys, but had he had one healthy kidney, hard telling how much longer he could have lived.

    You should be so thankful that your father is NOT on dialysis yet. My father suffered 18 months of pure h*** while on dialysis. He went from one crisis to another. He was hospitalized at least every other week. It was sheer torture for him.

    My father was such a good man and a great father, that I would have not hesitated one bit to donate on of my kidneys to him. So what if the surgery put me in pain for a few weeks? To keep my father from going through what he suffered when on dialysis, you bet I would do it.

    However, this is just MY personal thoughts on what I would do. You have to decide what is best for YOU and your family. Only you can make this decision.

    For example, is your father's health in fairly good condition, except for the kidney problems? Does his surgeon feel he could survive the surgery? Does the surgeon think a transplan would prolong his life for how many number of years? Do you have major health problems--aside from the fibro--major health problems being like diabetes, your heart, etc.

    If your father's kidneys are functioning at only 15%, then you need to make up your mind SOON, because he doesn't have time to waste--he needs to take some action soon! I hope your father is being seen by a Nephrologist (a highly trained kidney specialist) rather than a regular Urologist! If not, he needs to get in to see a Nephrologist ASAP!!!!!

    My thoughts are with you and your family,
    Love,
    Janet
  6. kriket

    kriket New Member



    Thank you guys for your input.

    jlh- Yes, my dad does see a kidney specialists, whatever you call them. It's hard for me to remember. It's not really a question would I do it, cause I would. I just hope that we match up.



    Kriket
  7. Mar19

    Mar19 New Member

    If it were me? If the doc's would accept me with all the DDs I have, absolutely YES! My dad is no longer with us, but thinking back on his last days, let me tell you ~ there is nothing I would not have considered to keep him around for a bit longer.

    Check into it. Ask your doc. Ask his docs. Go thru all the testing to see if you're compatible... I think the fact that you're asking means you're serious about it. If any of the docs or the tests rule you out, at least you know you tried and you can rest easy knowing you tried. You're doc may tell you that you can't, who knows.

    A friend of mine donated a kidney to her dh ~ they happened to be a perfect match (in more ways than one).

    (((((((Kriket)))))) this hug's for you! God bless!

    Love and blessings
    mar
  8. kjfms

    kjfms Member

    I think it is wonderful that you are going to do this and you are a fantastic daughter. Your father already knows this :)

    Bless you,

    Karen :)
  9. pam_d

    pam_d New Member

    I'm envious!!! If I relapse, I'll need a bone marrow transplant next, and my only sister isn't a match (and children, parents, etc. wouldn't match closely enough in the bone marrow world). So if you are a match, that would be so great!!

    Seriously, I know there are those here who advise caution with FM/CFS in donating blood OR organs...I DO understand why, believe me I do...

    However, I do think keeping an open mind and listening to what the doctors advise is not only a good idea, but could be vital to someone living or dying.

    If I don't get bone marrow if and when I need it (and I have a very high chance of relapsing with this disease), I'll die. Period.

    If a matching donor is found, I'll have a chance to live a little longer. And I will be forever---gratefully---indebted to someone who chose to keep a total stranger alive. And I guarantee I won't qualify it with, but what if they had FM/CFS? I will be grateful for any extra months or years I may get...plus I will know that organ transplantation isn't done carelessly, with a ten-question survey or something. It is a very complicated, lengthy process of screening.

    You have an opportunity to not only KNOW the person you're donating the kidney to, but already have a tight bond with him. I say, do all you can to get yourself screened, and see if you'd be a close enough match for him!!

    What a gift you have the opportunity to give, and even more special because it is your dad.

    Best of luck to both of you, and whether the donor ends up being you or someone else, I will pray for him to stay in good enough health until a donor is found.

    (((Hugs)))
    Pam



  10. kriket

    kriket New Member



    Thank you guys for all the supportive and positive feedback. Don't know what I'd do without you guys to talk to.


    Kriket
  11. kimymae

    kimymae New Member

    Kriket, I am a living kidney donor. Before my sister went on dyalisis I had the long list of tests & bloodwork done & I was a match. I donated the kidney to her in 1995, she lived 7 more years, only to pass away from liver cancer. If I had to do it again, I would go through the whole process for anyone in my family. I will tell you one thing, it is harder on the donor than the person getting the kidney. Bless you heart for thinking of doing this for your father. I sure hope you are a match. You can live a healthy life with only one kidney, even as young as you are. I hope everything turns out for your 2. God Bless.


    Darlene
  12. Slayadragon

    Slayadragon New Member

    I wonder what the stress from the operation would do to your own health.

    My experience is that any kind of injury (even a sprained ankle) heals tremendously slowly and depletes the small amount of energy that I have for a very long time.

    I'm not sure how other people with CFS respond to surgeries though. Maybe my own response to one wouldn't be as catastrophic as I tend to think.

    I've never seen this queestion addressed on the board or elsewhere. It would be interesting to find out.

    Best, Lisa
  13. kriket

    kriket New Member



    Darlene- Thanks for responding and sharing your story,quite touching. You gave your sister some life, and I know for that she was so greatful and you were also. Was it hard for you to get over the surgery?

    I have read where they do bloodless surgeries now. They carterize the arteries and vessels now instead of cutting them.

    Lisa- I wonder also what the surgery might do to my health. I've had breast reduction surgery, but I'm not sure how a kidney donation surgery would relate. I probably will never know till I do it. I cannot think of myself, if I am a match. Without a question, I would do it. Has anyone else here ever donated with fibro? If so, please share.

    Kriket
  14. kimymae

    kimymae New Member

    The surgery for me was quite painfull, but the pain medicine helped greatly. I have an incision from the front to the back of me, they might do it different now, I do not know. I could lay down in my bed at night but could not get out of the bed by myself, so my husband got me a hospital bed, & then I was fine. I could get up and down by myself. It took me about 6 weeks before I was feeling myself again. But then all people heal differently, some sooner some longer. I have no problems at all now, I have my kidney function checked yearly just to be safe as I am 55 yrs. old now.
  15. Poppy2

    Poppy2 New Member

    I'm sorry to say this to you, but having surgery can make your'e fibro much worse. I know because this is what happened to me. I went from having manageable symptoms, to being in a severe state, that I can't shake and it really sucks. You have to think of this , because you have to live with this desease, and it just gets a lot worse. thanks poppy
  16. Toga

    Toga Member

    I have a friend my age, almost 62, who is recovering from donating a kidney to a friend. She doesn't have FM but I would do it if I could, like her.

    I would definitely do it for a family member or friend. If you are told by docs that it would be fine, how could you not?

    Good luck
    Toga
  17. kriket

    kriket New Member

    Thanks for your response. Yes, the fibro. is a thought, but I believe if I lost my dad my fibro. would be much worse if I lost my dad. Guess I am trying to think of others. It's selfish for me to think of not doing it because I may hurt worse, I may very well hurt worse, but at least I would have my dad. I would hurt worse in a second even if it meant keeping my dad around. Kidney failure is much worse than fibro.(in my opinion)


    Kriket
  18. kriket

    kriket New Member



    Thanks for the support and for your responses.


    Kriket