Constant Abdominal Pain with Vaginal Pain

Discussion in 'Fibromyalgia Main Forum' started by lovstoshine, Aug 25, 2005.

  1. lovstoshine

    lovstoshine New Member

    I know this is sort of off subject but I fear it will be blamed on Fibro or IBS. I have never stayed in pain in my abdoman for 18 days.

    I went to the ER on a Sat. morning the first week into this as I had decided it might be appendix as the pain is on my right lower side but it tested ak as well as most everything else. The only thing they showed was High White Blood Count and High Platelets.

    The CT Scan showed left hepatic cyst normal appendix and ovarian cyst on right ovary.

    Of course Dr. said he could give me something for pain but with all the pain meds I take he didn't see how I could need anymore!! I passed on the meds ( probably would have been something way less than what I take anyway)

    Needless to say he said to see Gyno which I did Tuesday - first I could get in. They did a vaginal ultrasound and said no cyst on ovary and the hepatic cyst means nothing. Said if I am still in Pain come back in Thursday and we will set up Laparoscopy for Friday. Oh meant to mention along with the abdominal pain I am having spasms and pain in my vagina. Had Hysterectomy a couple of years ago. After the vaginal Ultrasound I had bleeding from vagina.

    I go in Thursday she decides I need to have my bowels checked first as Tuesday seemed more female but now not so much. Vaginal Pain that day was not as bad and no more blood, so go to Gastro Dr. that day and he schedules a colonoscopy. Findings are scar tissue wrapped around intestine and sort of twisting it. I actually woke up when he was going through that area as he was having to put gas in to make the intestine bigger to get the scope through. That was so painful!!!!

    Next test was yesterday drink Barium and they will x-ray small intestines, checking for Chrohn's and well just anything that might show up. Called yesterday and Dr. had already left but Nurse said best she could tell they found nothing.

    Meant to mention when I left the test yesterday vaginal pain started up again - pain in stomach never leaves. And both are here upon waking up at 4 am - I have been sleeping on and off since. But to keep this pain to a minimum I have to lay down any walking or standing for 5 min. or longer and I cannot take it.

    I normally have regular to diarhea in bowels but with pain medication I take a stool softner every night so I have a fairly regular bowel movement each day.

    I used to just be diarhea with occasional constipation. Oh and I have no itching or discharge from the vagina and I have had no fever or vomitng since this started. Just Pain.

    I have no idea where to go from here??? Gyno did mention adhesions and of course that is what is on my large intestine which I have an appt. with a surgeon Monday.

    Just wondered if anyone has experienced this or no any one who has. I just want this to stop the Fibro etc... are bad enough but this is killing me.

    Thanks to anyone who can help,
  2. tandy

    tandy New Member

    I can't answer this best right now.
    But I'm going thru very much what you are right now too.
    I don't have any answers yet,..... I'm heading out the door right now for a abdominal ultrasound.(pelvic to)
    I have no fever,nothing abnormal,except pain! and lots of it! Its the first thing I'm aware of each day that I wake up is stomach pain.
    Mine is literally all over my tummy~ Seems to be from my ribcage on down to my groin.
    Both sides, although my left is a lil worse at times.
    Sometimes when I'm lying down flat on my back,.. I can acually feel (with my hands) gas,or painful lumps moving thru my tummy~ They'll be there one minute and then gone.
    I do have IBS but I'm not sure if all this is IBS?
    Its been horrible! Its been going on for awhile.
    Like 4 months off and on.
    I'll try to post back after my appointment.
    I hafta leave right now as its a 40 minute drive.
    I have Endo too. so maybe its adhesions or???cysts?
  3. tandy

    tandy New Member

    They did find some cysts on my ovary.
    One decent sized one. supposedly/looks fluid filled.
    But even the tech doing the exam/sono said this would'nt account for all my pain.
    So,...I don't know??
    I follow up with the doc. in 2 weeks.
    Run arounds/and tests!!
    I feel like a darn guinie pig!! and I know thats not spelled right but ya know what?? I don't even care. its petty stuff. (compared to what i have goin on)
    I'll post as soon as I know anything.
    as for you,.... I sure will be praying that your pain is eased.
  4. zoemurr

    zoemurr New Member

    I have awful pain about where my appendix is, and have for years. It started very suddenly, and I went to the ER. I had CAT scan, colonoscopy, and ultrasounds and they found nothing. (I think maybe some cysts here too..) Anyway, someone finally pushed around in that area and said, "that's a muscle." For me it's a horrible trigger point. I am going to a chiro now who is hoping that it will get better with some adjustments. Taking a lot of magnesium is the only thing that calmed it some. I don't know if this is the same thing you have, but it sounds similar. HTH
  5. FM58

    FM58 New Member

    I have had major pelvic & vaginal pain for over 2 years now. It started with a very bad bladder/kidney infection - the pain from that did not go away so I ended up in the hospital for one week. I had every test under the sun - X-ray's, CT scans, MRI's, ultrasounds. My gyno is the one that hospitalized me. I also ended up having a upped endoscopy, colonoscopy, laparoscopy to lyse adhesions.

    My gyn referred me to a pain management doc. He tried several different procedures to block the pain - ended up mostly using meds. In May, I tried a Spinal Cord Stimulator procedure - unfortunetly it did not work :(
    I am seeing another pain management specialist who has more experience with this procedure at a large teaching hospital in a metropolitan city next week - hopefully this doc will be able to help me.

    I am also seeing a woman's specialist Physical Therapist, sho is helping with the pain.

    As for cysts, I do have several cysts in both my kidneys & one in my liver. I have had numerous ovarian cysts that have worked themselves out (painfully!). I have IBS & Interstitial Cystitis, so the IC is partially contributing to my pelvic pain.

    You said gyno mentioned adhesions - so why is he/she sending you to surgeon? Usually a gyno does surgery - laparoscopy to lyse adhesions. Often that will help the pain. When I had this 5 years ago, the lap worked. This time it only minimally reduced my pain - then within a month my pain levels had returned to what they were before.

    I truly understnd your frustration with going through so many tests and not having an answer to your pain. However, stick with it- have your docs persue the testing further. If the pain continues and there is no reason found- ask your PCP for a referral to a pain management specialist - perhaps a PM doc will be able to help you at least alleviate your discomfort.

    Best of luck - keep us posted & let us know what happens Jeanie!

  6. FM58

    FM58 New Member


    Forgot to add - for the vaginal pain - I saw a pelvic pain specialist - he gave me a prescription for a Lidocaine gel to be inserted vaginally every evening. I've been using it for about 6 weeks & my vaginal pain has decreased.

  7. tandy

    tandy New Member

    Just checking againwith you~
    Yes,..I think our pain sounds alike.
    Does yours go into your back at all??
    Mine does but not all the time,...
    I think when its at its worse.
    But the stomach is in constant knots.
    (or feels like it)

    hrs after having that ultrasound that turned into having a transvaginal one done to,...
    I'm really sore,and having some odd rectal pain?
    (sorry if my boldness bothers) but I need to explain.??
    My butt hurts to sit.

    and yes,...I have always gotten those occasional sharp vaginal pains. I get them in my butt too.
    Not often but when they do they scare the crap out of ya~

    does your whole belly hurt? or just near your appendix?
    My one sorest spot IS the appendix area but on the left.
    Its kinda become both sides now tho.
    It started on the left but its now all over my tummy.
    Take care for now~
    I'll check in tomorrow
    Sleep well~
  8. LittleBluestem

    LittleBluestem New Member

    A myofascial therapist might be able to help. Some highly trained therapists are certified for 'internal work'. This would probably be along with, not instead or what your other health care workers are doing.
  9. Musica

    Musica New Member

    I'm sorry you are in so much pain. With that much pain, that long, in that area, please don't assume it is Fibro. I'm glad you have gotten quick evaluations. The only time I had that much pain in the general appendix area, it was a piece of my fibroid that was being starved and dying off, but the pain wouldn't be going on that long. The point is, it could be so many things, don't let the docs say it is "just" the Fibro without doing as much as they need to, to rule out other conditions.

    This must be very scary. I'm glad you posted about it. Please keep us updated! Can you do anything to help the pain, such as something that will relax the abdominal muscles?
  10. Mikie

    Mikie Moderator

    I am so very sorry for all you are going through. I pray that they find out what is causing this pain. Something is causing the high white blood count and they need to find it. Best of luck.

    Love, Mikie
  11. hagardreams

    hagardreams New Member

    This sounds so much like my pain before my hysterectomy last November. I had a cyst on my ovary. After the surgery it got quite a bit better. Now I still have abdominal pain, and the EMR doctor told me it was IBS. This pain was almost unbareable. I ended up in the EMR last week because of that pain. The cyst itself will cause more pain than most doctors will ever admit. I think they think that if they tell us its not that bad, or what we have wont cause that much pain then we will believe it and go on. I know better. Anyone of us who has had a complete hysterectomy knows how much better you feel afterwards. We still have to deal with the IBS, but those cysts can be unbareable. Hang in there and dont quit taking your pain meds. for any reason.
  12. juststevie

    juststevie New Member

    Do not know if this is same / like but for several months on & off, I had severe pain on left side under rib cage. I could pinpoint it. Anywhere on my upper or lower abdomen was painful to the touch. I too had every test plus Dr said there is nothing actually there (organ wise). This is when I found I had diverticulosis but not diverticulitis. That specialist was all "if you have any pain at all CALL ME anytime, anywhere” blah, blah, blah. Of course, I did have more tests found nothing he sent me to a surgeon. He was going to do exploratory surgery. I had a hysterectomy due to endometriosis years back. I drew the line on this fishing exposition. The pain subsided then went away. It had done that on several other occasions. This time has not been back for a while. The moral: Every time I have some major pain or problem and they run tests they usually do find something but they always say this should not be the cause of this much pain. I am starting to believe that is not true. It seems every little thing people with fibromyalgia have is intensified way beyond the norm. I think our pain receptors go wild and little things become huge. It would not be so bad because most problems pass except something else comes along. Knowing that I have fibromyalgia I am going to try to have the attitude “this too shall pass” Probably not much help but remember “stress” makes everything worsen for us.
    [This Message was Edited on 08/28/2005]
  13. lovstoshine

    lovstoshine New Member

    It is Sunday Noon and my pain is even worse - the pain is even hurting into the rectum and well up around the top of my butt???

    I know that makes no sense but this is what is happening, I just had to try to have a bm and well I am still getting the barium out but it was just a small one but oh the pain it was awful - making me cry out in pain.

    I am going to keep myself as sedated as I can today - I have phenagren (spelling??) I used it yesterday as I vomited yesterday - first time for that.

    But between the phenagren,Klonopin and xanaflex and of course my pain med's I hope to keep myself out of it today as the pain is too bad today.

    You can be sure we are going to find out what this is I have had IBS for years since 1988 as far as official diagnosis. This is not IBS, I am sure the IBS is not helping nor the fibro as I agree it helps us to feel more pain

    But I have hardness on my vaginal cuff on the right side and I know that should just be soft - I noticed that a couple of days ago and since then the pain and stabbing pain from in there will not stop.

    I know I won't stay as out of it as I want to as I have not been able to so far this pain wakes me up even with the med's but the surgeon appt. is tomorrow so please continue to pray for me that they figure this out.

    I have no desire for surgery but at this point I don't care just stop the pain!!

    I am so thankful to have you guys and wish I could really say in words how much you mean to me but I think that is impossible

    Hugs to all,
  14. backporchrags

    backporchrags New Member

    It can be so difficult for women to tell the difference between abdominal muscle pain, intestinal pain and ovarion pain. All of the systems are sort of layed on top of each other.
    Intestinal pain can be so severe. When I have GI problems the pain is so bad I see white. I would beg for the relative normality of FMS pain as opposed to the searing pain in the intestines.
    Don't give up in your search for an answer. Don't let the doctors lump your symptoms in with FMS pain. There is so much that can go wrong after a hystorectomy. Fibroids, hormonal inbalances etc.
    I am so sorry you are in such pain. I hope the answer will come soon.
  15. lease79

    lease79 New Member

    I have constant hot gnawing pain in my lower right abdominal area :( I've had scans & bloods & everything is normal, but the pain is still there & is at the moment driving me NUTS :(
    It extends right down my leg into my knee, my butt. Everything really hurts :(


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