Could Chronic Lyme Dis. Cause Blood Clots?

Discussion in 'Lyme Disease Archives' started by Kimba4318, May 31, 2006.

  1. Kimba4318

    Kimba4318 New Member

    Does anyone know if Chronic Lyme could cause blood clots? I had them in my lungs.... never had an answer for why it happened. Here I am playing my own doctor again... maybe this will all come together - since the doctors seemed to have given up on why it happened.
  2. sk8ter

    sk8ter New Member

    With all of these nanobacterias they cause our blood to thicken. They actually live in the fibrin and make it thick. They use the blood to hide. You should have Hemex Lab panel done this will tell you what is going on. If they have put you on a blood thinner then you need to be on a antibiotic because the critters will be releaded is your system and they need to be destroyed at that time.
    God Bless
  3. victoria

    victoria New Member

    I asked my son's LLMD about testing/treating for possible hypercoagulation:

    his opinion is that it will take care of its self if the infection(s) are taken care of...

    just a FYI.

    all the best,

  4. Kimba4318

    Kimba4318 New Member

    very, very interesting. It seems that once I started the Coumadin (blood thinners) that my "condition seemed to go down hill. I have not been the same since.

    I was sent to a Hematologist that was supposed to answer all of our questions - I waited a month - and was so anxious to hear what she thought and what tests she would run. She looked at me and said "Some people just get clots.... don't get pregnant, I will see you in 5 months, If you have any problems, let me know."

    I was blown away and have never had any answers on why this happened. I have only been on antibiotics for Lyme (at the most) a week and a half. From what I am reading, it could be very possible for that to have been dormant in my system for a while and done this damage.

    Thank you all so much for the wealth of information! My doctor ran a Western Blot test... will that show enough of what I need about the Lyme do you think? Or is that too general of a test for someone that has possibly had it for 8 years? Thank you again - Big Hugs! Kim
  5. jarjar

    jarjar New Member

    The Hemex test is the first test my lyme doc wants taken as it helps the antibiotics work better. At least 90% of Dr. C's patients have hypercoagulation.

    Some docs go by test of fibrin levels and sed rates.

    But yes I would have this taken care of. I know people that use to be bedridden that have taken Heparin, which is used for hypercoaguation, and that got them out of the bed and up and about.

  6. Kimba4318

    Kimba4318 New Member

    Thanks Jay - WOW - this is really all coming together. Are you saying that you Lyme doc typically sees "thick blood" with Lymes Disease? I know the longest I have ever been on Antibiotics for this was 2 weeks.... UNBELIEVABLE... It has probably gotten beyone control.

    I am on Coumadin (blood thinner), but maybe the heparin would work differently. I am angry that I have lived this long with it and it is now in all of my joints. I just pray with the right treatment I may somehow get better. They are telling me to see an Infectious Disease Doc... are they the ones that are good with LD, in your opinion?

    Thank you so much for the info and response. So greatly appreciated!!
  7. jarjar

    jarjar New Member

    There are some infectious disease docs that treat lyme but you need to find someone who studies lyme seriously. Many work with nothing but lyme patients so all there time and energy is spent keeping up with cutting edge lyme treatments.

    I have no idea what state you live in but in your other thread from the other day, Victoria and I pointed out sites to seek a Lyme Doc. Check that out again.


  8. Kimba4318

    Kimba4318 New Member

    I am going down hill fast, thought that was not possible.... I live in Maryland - I was referred off of that site to 2 different lyme docs and they did not want to treat "Chronic" lyme, only new Lyme. Want me to go to University of Maryland to see a specialist there... they acted as if they were specialist over there for this. Cannot get an appointment for 2 weeks.

    Left a mess. for my primary care to see when I might get the new LYME (western blot) test back that I had doen yesterday morning and ask for more pain meds. I am taking Oxycontin and it is not touching the pain.

    I am concerned about a crushing pain in my left arm above my elbo, up to my shoulders... a little scared it is something with my heart too :-(