Could i have Fibro or CFS?

Discussion in 'Fibromyalgia Main Forum' started by KJDB, Jan 11, 2012.

  1. KJDB

    KJDB New Member

    I am a 26 year old female from Australia who would like some advice, all my life i have suffered from joint and muscle pain in my legs, as a child i have seen many doctors, physios and naturapaths who had told me that it was just growing pains. when i was 18 i contracted glandula fever also known as Mono, this no longer shows up as active on my blood tests although i dont feel i have ever recovered from it. Now that i am older i have almost constant pain in my back neck and shoulders, i get headaches alot and i have symptoms of irratable bowel syndrome not to mention i am always tired and lethargic which is not relieved by rest or sleep (what i would do to wake up feeling refreshed). My main issue is that i want to find a doctor that understands this condition so that i can be tested for it instead of constantly seeing doctor after doctor who just tell me i have depression and try to push anti-depressants on me. I am sick and tired of everyone thinking i am a lazy hypercondriac and that there is nothing wrong with me as my blood test and xrays have all come back clear. I did once have a doctor tell my that cfs was a possability but he never went onto actually diagnose me with it (this is how i first found out it existed). I do believe i may have this condition but i dont want to say i have without being diagnosed by a doctor. Any advice or support would be great as i want to know if i should continue seeking this diagnosis and how i should go about doing so.
  2. Mikie

    Mikie Moderator

    That you've been so sick. Most of us have had a very difficult time getting a diagnosis. FMS is a bit easier because of the necessity of having the tender points in all four quarters of one's body in specific areas. FMS and CFIDS/ME have a number of symptoms in common and many of us have both, along with digestion issues. Diagnosing CFIDS/ME is usually a diagnosis of elimination of other conditions which may cause similar symptoms. Most of us have "normal" lab tests unless we have an auto-immune illness and, even then, our tests may not indicate anything. It may take years before we are diagnosed. The benefit of these tests is that we can eliminate other serious conditions.

    Having a doc, or docs, who specialize in our illnesses makes all the difference. Also, it helps to do our own research so we can particpate with our docs in our own healing. If you post with your location in the title and ask for a good doc, perhaps one of our members will have a recommendation for you. The Co-Cure website has a list of good docs too.

    Finally, welcome to our board. This website has an amazing Library where you can find a lot of the information you need. There is also a Store with products just for us. You can send for a catalog and sign up for the e-newsletter for the latest articles on research and other issues deaing with what ails us.

    Best of luck to you.

    Love, Mikie
    [This Message was Edited on 01/12/2012]
  3. KJDB

    KJDB New Member

    thankyou for your reply it is very much appreciated. I have just seen a new doctor today and i am starting the elimination process again with more blood tests. i really do hope i can find a doc who specialises in these conditions as when i mentioned cfs and fm to the doc today he just went on about depression ignoring my suggestion as they all seem to do. ( they dont like it here in australia when you try and do their job for them) i have even been told off by a doctor for trying to tell him how to do his job and he will tell me whats wrong with me so i am a little hesitant now to even suggest it to other doctors. Im trying not to get frustrated with this process but i just want to feel a little better so i can enjoy my new 4 month old baby son and my 3 yr old son.
  4. Nanie46

    Nanie46 Moderator


    I'm sorry that you have suffered for so long. It's a common story.

    It is likely that finding the root cause of your symptoms would be helpful for treatment.

    Many of us here have found out that we have chronic tick-borne infections such as borreliosis (Lyme disease), bartonella, babesia, etc.

    Testing in the past has been inaccurate and cannot be relied upon.

    There is a new test in the US:

    Please read this info...make sure you read the 5th paragraph down in the next link that starts with "Anyone with chronic illness and....."

    Also read this...has great info and symptom list...

    and this:
  5. Picklington

    Picklington New Member

    Hello and welcome. Your description sounds very similar to the usual FM/CFS story, especially CFS. Sorry to hear that you are suffering, but I'm very glad that you've found this board and know that you are not alone.

    You mentioned that you would like to wake up feeling refreshed - tell me about it!! Some people who suffer from CFS/fibromyalgia do benefit from low-dose anti-depressants taken at night just before sleep - not because of the anti-depressant effect, but because the boost of serotonin gives you a deeper quality of sleep. I was reluctant at first in case I started having mood swings, but that hasn't happened and I find it immensely helpful.

    I find these 2 videos useful to show people who don't really understand what's wrong with me. It may also help you to see that you're not alone.
  6. GeminiMoon

    GeminiMoon Member

    After 20 years of going thru many doctors telling me it was all in my head, I finally went to a good Immunologist who knew quite a bit about CFS and I was diagnosed with it as well as HSV2. The 2 viruses aggravate each other.
    And yes, it all started with a debilitating case of mono.
    To make a long story short, I started having worsening pain and tender points after a long period of extreme stress. I went back for more bloodwork where autoimmune and inflamation disorders showed up. My doctor informed me that it was Fibro, in addition to my other viruses. I was not surprised.
    My advice is to find an Immunologist that meets your needs and keep going until you find one. My doc gave me an antiviral that I take as soon as I feel one of my viruses activate, usually after a period of stress. I also take homeopathic remedies to help with the symptoms.

    I hope this helps!
  7. kellygirl

    kellygirl Member

    I started out in the 80's being diagnosed with mono, the viral onset of it progressed, I had the symptoms of Fibromyalgia and all that comes with it.

    It has been a journey. My sisters, 3 of them, have been diagnosed with Fibromyalgia over the years.

    Some professionals believe they are one and the same disorder and others believe the symptoms overlap.

    My doctor says I fit into his three categories: viral, genetic and trauma. I had a whiplash injury that precipitated the mono.