Could you cure your Fibromyalgia?

Discussion in 'Fibromyalgia Main Forum' started by Vinkel, Sep 26, 2013.

  1. Vinkel

    Vinkel Member

    I was healthy and fit until I had food poisoning in January 2010. I was very sick, bedridden for five days and became totally dehydrated.
    Just as I thought, I was getting better, my whole body became painful and I was very tired. I could hardly walk, lift my arms and do daily chores. My doctor put me on anti-inflammatories, but the pain continued.
    My doctor referred me to a rheumatologist who tested the tender points on my body and sent me for blood tests. He prescribed stronger anti-inflammatories, pain medication and a very high dose of vitamin D.
    I visited a chiropractor and the treatments helped a bit.
    The anti-inflammatories and painkillers have caused me have terrible stomach pain. I am now using medication to protect my stomach lining.
    The tension and pain in the muscles of my neck, shoulders and especially my back, continues 24/7. I feel tired all the time.
    Could you cure your Fibromyalgia?
    I will appreciate any help to relieve the pain and help me discontinue the medications (with its side effects).

    Thank you :)
  2. mbofov

    mbofov Active Member

    Vinkel - I don't have FM (I do have CFS). But I have read that magnesium and malic acid, or magnesium malate (which is a combination of the two), has helped many people who have FM with pain and energy.

    It'd be an easy place to start. Also, you might re-title your post to something like, need help with pain and energy. Asking if people can cure FM is a pretty tall order and many may not look at your post because of that. But if you change your title to something more manageable, you may get more replies.

    Also you can do a search at the top of the page to see what has helped others.

    Best wishes,

    Mary
  3. Vinkel

    Vinkel Member

    Thank you Mary for your valuable advice. As a new member it will really help me a lot.:)
  4. IanH

    IanH Active Member

    Hi Vinkel,
    If you have fibromyalgia you should get off the anti-inflammatories as soon as possible. They do not work for FM and are damaging in the long run. You now have stomach irritation and I assume you are also now taking Omeprazole (a PPI or proton pump inhibitor). As earlier stated magnesium is helpful for FM and very important if you a going to continue taking the PPI.

    This is what we use generically, with individual variations to suit:

    magnesium (citrate, glycinate or threonate, sometimes magnesium malate, however some people do find it less effective) 200mg twice daily. Permanently.
    vitamin D3 (not D2) 5000IU daily (If you get little sun then this is continuously and permanently)
    EPA/DHA in the ratio of 3:1 to 5:1 (EPA is more anti-inflammatory than DHA, which is still important. Failing this, an omega-3-pufa containing purified EPA and DHA.
    Vitamin B12 1000mcg (1mg) as sublingual lozenge, daily (also very important if you are taking a PPI and you are over age 50)
    zinc chelate or other giving 25mg zinc daily
    vitamin K (use the form which has a mix of K2 and K1, not k1 by itself)

    If you can, also add the following:
    vitamin B6 20mg daily, vitamin B1 50 mg daily,(or a multiB)
    potassium citrate (or other form), 100mg to 300mg daily (This is because you are taking in a lot of magnesium. (If you can tolerate the potassium because people with ME and FM often have interstitial cystitis and find that extra potassium irritates the bladder.
    vitamin A 10,000IU twice weekly.

    It does sound like a lot but they all work together.

    You doctor has already put you on vitamin D but you didn't state the dose. I assume when you said "high" you meant 50,000IU weekly which s/he would drop when your vitamin D blood levels get over 50ng/ml.
  5. Vinkel

    Vinkel Member

    Hi IanH

    Thank you, I appreciate all the advice you have given me. I will investigate which, and the dose of supplements mentioned by you, I am already using. I will then determine what I can add.

    "I assume you are also now taking Omeprazole" (a PPI or proton pump inhibitor). Yes I am taking Omeprazole.

    Thank again:)
  6. adamfr

    adamfr Member

    I agree get off the antiflammatories
  7. mbofov

    mbofov Active Member

    Re potassium - I found that potassium citrate did irritate my bladder, and led directly to a couple of UTI's. However, I tolerate potassium gluconate just fine. It works just as well, and without any bad side effects.

    Mary
  8. IanH

    IanH Active Member

    Lets have some clarity here. When I said get off the anti-inflammatories I was referring to the pharmacological, strong tissue targeting anti-inflammatory drugs, NSAIDS and Steroids. It would be very rare that Cox-2 inhibitors like viox or celebrex be prescribed for Fm anyway.

    The "nutritional" or herbal anti-inflammatories are a different matter altogether. For example EPA (eicosapentanoic acid) is an anti-inflammatory omega-3 oil but its action is quite different to ibuprophen or naproxen. Vitamin D3 is anti-inflammatory but, like EPA is immune modulatory, meaning it reduces pro-inflammatory cytokines but it wont reduce osteoarthritic inflammation directly. Ibuprophen would bring down local inflammation within days but vitamin D3 will not do that at all. Nor will white willow bark, anatabloc or zyflamend.

    OA and RA are not FM. If you have both then you are treating two conditions.

    FM does influence pain in OA because the immune system is overly involved in the pathology, so by taking immuno-modulatory nutrients like vitamin D3 or EPA or DHA you would be sort of asking your immune system to be kind to your OA.
  9. Vinkel

    Vinkel Member

    Hi Jamin

    My rheumatologist told me that it is difficult to give an exact diagnosis of my disease, but the diagnosis indicates Fibromyalgia, although I also have symptoms of Ankylosing Spondylitis. Both are part of the Arthritis family.
  10. Vinkel

    Vinkel Member

    Thank you for sharing your information Ian, it is much appreciated.
  11. Medellin123

    Medellin123 Member

  12. Medellin123

    Medellin123 Member

    Chronic Fatigue always involves structural issues. Usually, the Occipital bone is out and is pinching the Vagas nerve. It is also possible that the person has a hiatal hernia that is also pinching the Vagas nerve. When these are fixed and the nutritional needs are met, the problem is almost always solved. These both can be remedied naturally in two days if you know what to do and what to take. Treating the symptoms only complicates the problems by creating more symptoms, and a never ending cycle. I have cured both CFS and Fibromyalgia many times in my 34 years of practicing alternative health consulting. I would love to be able to relieve the suffering of more people, but most forums do not allow you to give contact information, so I am stymied. Perhaps if you ask for my contact information, I might be allowed to give it. Someone has to respond to common sense eventually. God Bless! Mike
  13. IanH

    IanH Active Member

    Wow Mike. This is one helluva claim. I understand you are a clinician. Well Steve, if you are going to make such claims you MUST provide the proper evidence for this. I work in a Medical Clinic specializing in chronic illness and I see no evidence for your claim.
  14. Vinkel

    Vinkel Member

    Hi Jumpshot, I'm also a new member, seeking help on this great forum. I am sure one of the members with more experience can start a new thread about "sonridgehealthcenter" you mentioned in your post:)
    jumpshot likes this.
  15. howess

    howess Member


    coma? wow
  16. neoplus1

    neoplus1 Member

    Vinkel, The first thing to do would be to look where the evidence points first before "experimenting." There are medications that can be effective in reducing the symptoms of fibromyalgia as well as some life style practices as well.

    First, focus on getting your nutrition from a good whole foods diet, not pills.

    Second, look at what medications you've tried that don't work and see what other medications are still available.
    Sometimes NSAIDs combined with medications like Pregabalin can improve pain reduction. Or perhaps an antidepressant with an anticonvulsant will work, but you'll need to discuss those things with your doctor.

    There is also good evidence for the use of Mindfulness based practices for pain, particularly Mindful meditation.

    Certain types of exercises such as gentle yoga and Tai Chi have also been shown to improve symptoms. Gentle exercise + mindfulness practice + good diet + medications could be very effective in controlling your symptoms. Good sleep habits are also important obviously and I would recommend maybe having a sleep study.

    Don't avoid medications because someone says "They only treat symptoms" and to take this herb or that herb because it will "treat the underlying cause" because the underlying cause is not known so they are full of it. Chances are anything you try will only treat symptoms but that's okay as long as your functional, feeling good, and living your life.

    Also, if someone says medications are bad because they lead to other symptoms and side effects, just look on this forum and see the endless posts of people reacting horribly to supplements and herbs. At least with medications there is data on these side effects and what to do about it.

    By the way, I am not saying not to take supplements or anything, I'm just saying be sensible and start where there is the most evidence first.

    My two cents.

    -Steve

    PS: Get your Vitamin D level checked to make sure it is not low.
  17. Vinkel

    Vinkel Member

    Hi Steve

    Thank you very much for your post. I am so much pain that I cannot respond to your post; will respond as soon as I feel better.
  18. Vinkel

    Vinkel Member

    Hi Steve

    Thank you for your wonderful advice, especially the following:

    "There is also good evidence for the use of Mindfulness based practices for pain, particularly Mindful meditation.

    Certain types of exercises such as gentle yoga and Tai Chi have also been shown to improve symptoms. Gentle exercise + mindfulness practice + good diet + medications could be very effective in controlling your symptoms. Good sleep habits are also important obviously and I would recommend maybe having a sleep study.

    Chances are anything you try will only treat symptoms but that's okay as long as your functional, feeling good, and living your life."

    I really appreciate you help:)
  19. veras

    veras Member


    I'll have to add neurontin in my regimen