Could you cure your Fibromyalgia?

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by Vinkel, Sep 26, 2013.

  1. jumpshot

    jumpshot Member

    hi mike, that is some claim. Have you cure people that are chronically fatigued or have been diagnosed by a specialist in the field of chronic fatigue immune dysfunction syndrome (CFIDS). This is more than theory according to my specialist, and M.D. who is not strictly allopathic by any means. Research shows the HPA axis is impaired by most likely and intial viral onset. How do your adjustments heal the HPA axis. To my knowledge about the only way to heal that is put a person in medically induced coma, for a few weeks. Obviously this would not be allowed by ins. nor would any doctor do it. Just my thoughts after battling CFIDS for l5 yrs.
  2. Vinkel

    Vinkel Member

    Hi Jumpshot, I'm also a new member, seeking help on this great forum. I am sure one of the members with more experience can start a new thread about "sonridgehealthcenter" you mentioned in your post:)
    jumpshot likes this.
  3. howess

    howess Member


    coma? wow
  4. jaminhealth

    jaminhealth Well-Known Member

    coma? what?!!!

    I believe the hypothalamus was involved when the FM stuff hit me in
    1999.....no coma for this gal. I keep threatening to get some SP hyothalamus
    supp again, and maybe I need to do that. I took it a couple times some years
    back but not for a long time now.
  5. jumpshot

    jumpshot Member

    wait now, it was dr. paul cheney that mentioned that to me many yrs. ago, it didn't mean it was feasible in this day and time, what his point was is that the deep , deep rest would help heal the HPA of course they are obviously no studies to substantiate this as it's not feasible or practical.
  6. jumpshot

    jumpshot Member

    did the SP hypa. help??
  7. jaminhealth

    jaminhealth Well-Known Member

    You know I don't remember if the Standard Process Hypothalamus helped, but I really believe the hypothalmus was involved in the fight/flight/fright reaction I went thru....body was just plain FROZEN with these four F's...
  8. neoplus1

    neoplus1 Member

    Vinkel, The first thing to do would be to look where the evidence points first before "experimenting." There are medications that can be effective in reducing the symptoms of fibromyalgia as well as some life style practices as well.

    First, focus on getting your nutrition from a good whole foods diet, not pills.

    Second, look at what medications you've tried that don't work and see what other medications are still available.
    Sometimes NSAIDs combined with medications like Pregabalin can improve pain reduction. Or perhaps an antidepressant with an anticonvulsant will work, but you'll need to discuss those things with your doctor.

    There is also good evidence for the use of Mindfulness based practices for pain, particularly Mindful meditation.

    Certain types of exercises such as gentle yoga and Tai Chi have also been shown to improve symptoms. Gentle exercise + mindfulness practice + good diet + medications could be very effective in controlling your symptoms. Good sleep habits are also important obviously and I would recommend maybe having a sleep study.

    Don't avoid medications because someone says "They only treat symptoms" and to take this herb or that herb because it will "treat the underlying cause" because the underlying cause is not known so they are full of it. Chances are anything you try will only treat symptoms but that's okay as long as your functional, feeling good, and living your life.

    Also, if someone says medications are bad because they lead to other symptoms and side effects, just look on this forum and see the endless posts of people reacting horribly to supplements and herbs. At least with medications there is data on these side effects and what to do about it.

    By the way, I am not saying not to take supplements or anything, I'm just saying be sensible and start where there is the most evidence first.

    My two cents.

    -Steve

    PS: Get your Vitamin D level checked to make sure it is not low.
  9. Vinkel

    Vinkel Member

    Hi Steve

    Thank you very much for your post. I am so much pain that I cannot respond to your post; will respond as soon as I feel better.
  10. jumpshot

    jumpshot Member

    once U learn to quit beating yourself up for taking the right meds. (ones that help) you will feel more at ease emotionally, i'm on quit a few meds. for CFIDS, FM and chronic back pain from car wreck, steve gave U very good advice, jumpshot klonopin, Neurontin are 2 widely used for CFIDS, many people w/ FM are undiagnosed for CFIDS.
  11. jumpshot

    jumpshot Member

    When dr. cheney dx me in l198, he said he didn't treat FM ,cause one can have FM and not CFIDS, but U can have both which I do. I believe from what I've read on this forum, many FM sufferers may have CFIDS also, because of the profound fatigue they suffer. Also, in CFIDS U have pain magnification, cause the Hypathlmus is impaired and it is likened to a thermostat on a wall said Cheney, for yrs. before I got on higher doses of Neur. I could barely take a shower cause I couldn't get the water just right, noises, everything is magnified.
  12. jumpshot

    jumpshot Member

    my current doc in INDY. gives me a 400,000IU d-3 shot and it helps the fire ants and sandpaper dry sensation I've had in mouth throat and bronchials (started w/ 5 months of dry dry dry coughing non stop) that got better and went into this sensatioin, he gives it w/ lcc testosterone (which is low in my case ) it helps energy for a wk. and helps the fireants/dry/sensation for about 2 days, then it comes back full force, Neurontin keeps me from going insane from this non classic type pain.
  13. Vinkel

    Vinkel Member

    Hi Steve

    Thank you for your wonderful advice, especially the following:

    "There is also good evidence for the use of Mindfulness based practices for pain, particularly Mindful meditation.

    Certain types of exercises such as gentle yoga and Tai Chi have also been shown to improve symptoms. Gentle exercise + mindfulness practice + good diet + medications could be very effective in controlling your symptoms. Good sleep habits are also important obviously and I would recommend maybe having a sleep study.

    Chances are anything you try will only treat symptoms but that's okay as long as your functional, feeling good, and living your life."

    I really appreciate you help:)
  14. veras

    veras Member


    I'll have to add neurontin in my regimen