Court Date tomorrow

Discussion in 'Fibromyalgia Main Forum' started by justmestephd, Feb 9, 2009.

  1. justmestephd

    justmestephd New Member

    Hi all

    I have my SSDI hearing tomorrow and I was hoping someone could give me some words of wisdom. I am in a major flare right now so I guess that's a good thing but I am a wreck. It is at 2:30 in the afternoon so I have all morning to stress about it

  2. justjanelle

    justjanelle New Member

    as I haven't gone through the process, but wishing you success!

  3. hopabout

    hopabout New Member

    Well, it went like this: 13 doctors and specialist for every part of my whole body that would not function correctly. A wheel chair, braces on ankles, wrists and neck and a huge tie up one to support my back. Lost home, marriage and career not necessairly in that order.

    And, the good old SS said we are not sure you are sick. That was years ago... now I think its a lot better because the CDC has made it a reality and not some whining women.... however, you can't take any chances. Ask around... you may be healed but its not real likely.

    So, with all those credentials I did the paperwork for 3 years for SSD and finally was sent to THEIR docs who said, there is no way you can work, and that is what they had planned to put on papers. I think perhaps they realized that I prefered my $32,000 a year job in 1989 to the $490 I was going to get monthly !

    But, they did not listen again.... I had to get an attorney and pay the hard earned money to him, and go to court. I had Mayo Clinic docs, their own docs I did not know and they would not understand. So...

    major flair is good..... being a wreck is good. being stressed out is good..... now, what is the one thing that you MUST have in order to survive your day..... SLEEP

    Don't go to bed !!!!!!!!!!! Play cards, watch movies in a chair, whatever it takes.Stay up all night and feel and look so horrible you can't speak. Its horrible we have to play games with these blind folks but you deserve better!

    Show them how you really feel.. most of the time. Ask for repeats on the questions.... don't answer them completely, loose your train of thought.... now is this something you will have to work at....??? not me ! Most days you can't do anything..... don't offer what happens on good days... they get less and less frequent.

    oh, and I can't do rain.... it was pouring when I went in ! Thank you God.

    Good luck !

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