curious about fibromyalgia

Discussion in 'General Health & Wellness' started by cassyjoye, Feb 14, 2012.

  1. cassyjoye

    cassyjoye New Member

    I have been told by a couple people I know that have FM that my symptoms sound similar, my mom is one of the people that has it and I'm pretty sure its genetic? Anyway every once and a while my whole body mostly in the upper arms and upper legs have felt like they are bruised and even the softest touch feels like hitting a big purple bruise that is mysteriously not there. I have alot of trouble falling and staying asleep, or i try and sleep my day away to catch up, or because I dont feel well enough to get out of bed. I get chronic headaches and neck pain and suffer with depression anxiety and an atrial fibbrilation of the heart. Does this sound like fm?
  2. cassyjoye

    cassyjoye New Member

    i also have pain in my breasts and chest and feel tense and uncomfortable/irritated in my own skin, the irritation is worse at times and pain is only every so often with the bruising feeling, though pain in my head and neck is constant as well as my sleeping issues are constant
  3. Nanie46

    Nanie46 Moderator

    Hi!

    I'm sorry that you are feeling so bad.

    I can tell you from my own experience that your symptoms sound like you may have several tick-borne infections.

    These infections can also be passed from Mother to fetus, so it is possible to have them from birth.

    It is also possible, just because family members often live in the same geographic area, that you both have been exposed to ticks in the outdoors, through pets, etc.

    It is very common for people with symptoms like yours to be labeled with FM, CFS, and a variety of other diagnosis that address each symptom.

    However...those diagnoses usually do not address the ROOT CAUSE of the symptoms....it only gives it a name and the patient feels satisfied that the Dr has given them an answer.

    In order to get better, you really need to find the root cause of your symptoms.

    Many people on the CFS/FM board here, later found out that they have tick-borne infections such as Borrelia burgdorferi (Lyme disease), Bartonella, Babesia, Ehrlichia, Mycoplasma and others.

    Ticks are a cesspool of disease and 99% of Dr's do not understand how to recognize, diagnose or treat them. That leaves thousands and thousands of people undiagnosed or improperly treated.

    It is very important to note that Lyme tests such as the ELISA and western blot are very unreliable. Many people with Lyme disease have only negative results.

    There is a new test that is a culture test that is reliable. Here is the link to the article about it.

    The lab's website is at the bottom of the article:


    http://www.prohealth.com/library/showArticle.cfm?libid=16517&site=articles


    I found a Lyme Literate MD through Lymenet.org's "Seeking a Doctor" board and I am getting better. I was diagnosed with FM for 21 years before finding out I really have Lyme and Bartonella...and the FM was a symptom of it...along with the insomnia, neck pain, soreness, headaches, fatigue, etc.

    These infections also frequently cause psychiatric symptoms and heart problems.



    I am going to give you some info to read.

    Please look carefully at the symptom list and info in the first link:


    http://www.lymepa.org/Basics2007v1.2Rev.pdf



    Great info from the association that Lyme literate Doctors belong to:


    http://www.ilads.org/lyme_disease/about_lyme.html



    The following link is the "Bible" of Lyme disease treatment written by a Lyme literate MD. It contains a comprehensive symptom list on pages 9-11, and great info about symptoms of coinfections like Bartonella, Babesia, etc on pages 22-27:


    http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf


    There is a Lyme board here if you want to post there about anything, or read some info.

    Let me know if I can help you with more info.

    Good luck, I hope you get some real answers and get better.


  4. misskoji

    misskoji Member

    Our Health board is not as active as our CFS/ME/FMS board. You will likely have better luck posting your question there. Our members are very knowledgeable and helpful.

    You can navigate between boards by clicking the drop down menu on the upper left hand side. Here is a direct link to the CFS board:

    http://www.prohealth.com/me-cfs/blog/boardhome.cfm


    Best of luck in health and healing,
    misskoji