day after day after day, this flare won't let up

Discussion in 'Fibromyalgia Main Forum' started by fibolady, Aug 29, 2002.

  1. fibolady

    fibolady New Member

    seems my flares just get worse and longer, and i am always trying to do the "right" things to avoid them, ugh. i've been over to the depression board this time. is this just flare/situational depression.

    i tried the zma but am sorry to report it didn't help, i've stopped for now because with this flare this month i have had headaches everyday and a few migraines. my sleep is disturbed and then sleeping late, 10 or 11. no energy, few days i couldn't even eat anything, hurt all over, typical flare. haven't been anywhere since last week, the days are just melting together.

    i just can't pinpoint anything i did to bring this on. i was doing so well with exercising, walking, eating well, and keeping a good pace. does anyone else have this problem, flares just pop up.

    just needen to vent, warm regards, fibolady

  2. fibolady

    fibolady New Member

    seems my flares just get worse and longer, and i am always trying to do the "right" things to avoid them, ugh. i've been over to the depression board this time. is this just flare/situational depression.

    i tried the zma but am sorry to report it didn't help, i've stopped for now because with this flare this month i have had headaches everyday and a few migraines. my sleep is disturbed and then sleeping late, 10 or 11. no energy, few days i couldn't even eat anything, hurt all over, typical flare. haven't been anywhere since last week, the days are just melting together.

    i just can't pinpoint anything i did to bring this on. i was doing so well with exercising, walking, eating well, and keeping a good pace. does anyone else have this problem, flares just pop up.

    just needen to vent, warm regards, fibolady

  3. LouiseO

    LouiseO New Member

    I hope and pray you feel better really soon. I'm so sorry you are feeling bad. I hate when these flares hang on for so long. I hope you have a nice day.

    Louise xoxox
  4. ladyscarlett

    ladyscarlett New Member

    Morning hon, yes I must be in the middle of a flare up too
    I really hurt for the past few days
    and I just posted something that happened to me last night that really scared me so I am taking it easy
    I did drive my son to work but really felt out of it
    have to drive my husband to airport tonight and it really scares me
    I still try to be normal whatever that is but I see changes all the time in me disolving my normal life style

    Much love to you LadyScarlett
  5. nje

    nje New Member

    I CAN`T REALLY HELP YOU MUCH WITH YOUR QUESTION,BUT I NEED TO KNOW THESE THINGS,WHAT ARE FLARES,HOW LONG DO THEY LAST,AND WHAT CAUSES THEM TO OCCUR,IS IT LIKE WHEN I`M FEELING EXTRA LOUSY AND HURTING,NOT GETTING OUT OF BED.IS THAT WHAT THET ARE?I HOPE YOU GET YOUR ANSWERS FROM SOMEONE ELSE AND THEN MAYBE YOU CAN ANSWER ME? HOPE YOU FEEL BETTER SOON, NJE
  6. BlueMoon

    BlueMoon New Member

    ". my sleep is disturbed and then sleeping late, 10 or 11. no energy, few days i couldn't even eat anything, hurt all over, typical flare. haven't been anywhere since last week, the days are just melting together. "

    I have been like this for months! No end in sight.

    Robin
  7. herblady

    herblady New Member

    see if your dr. will refer you to a pain specialist. maybe you can get something decent for the pain. that's what i'm going to do, i'm sick of this damn pain. cindi
  8. tired42long

    tired42long New Member

    hi fibrolady, I have learned so much from all of you. Early in the summer I was feeling the best I have for way over a year. I had a bit more energy and head was clearing. Pain was constant but not excrutiating. Then on July 8th,,,I know exactly the time and place...I crashed. I was outside in 90plus weather and humidity was stifling. Pushed too hard to help one of kids at water park (the first time I was able to go for a mini vacation of relaxation with my family for way over a year). I got instantly sick, heart palps, dizzy , so WEAK, and vomiting...probably dehydrated etc. That was beginning of this almost 2 month solid HE#*. I know how you feel. I have'nt hardly even been able to go to a store, the library, or even go outside to walk accross our tiny yard, let alone go for a real walk.Even my flowers are miserable! My husband has missed out on a fishing partner and summer outings.I missed my nephew's wedding and recept. 2 weeks ago..was in bed with my friend---the heating pad.I am already missing my kids school stuff, as they started a week ago. Sports are starting and I can't even go to watch my daughter cheer (she worked so hard to make the squad) I am so ticked my summer is gone...the kids have missed out...and I feel SO sick and weak. Pain is too much to handle. BUT...because of all this I turned to this site for support and it has made me more confident and pushing for better care at the clinic. I am trying to talk more about this with family now that I am getting some solid information and support from the REAL experts....all of you!!You have helped me so much with postings and optomism and even just to feel bad together sometimes. It kinda just gives me a lump in the throat (no, not the thyroid this time Ha ha!) Please have a good day and know you are helping me and others. Smiles from Wisconsin. Eileen
    [This Message was Edited on 08/30/2002]
  9. fibolady

    fibolady New Member

    nje, welcome as i haven't posted with you yet. i am sorry you have this dd too. it is not an easy road but this board helps a lot! your question on what exactly is a flare. everyone has a different tolerance level for pain, some deal with pain better than others. my husband says i am a whimp, but, i always felt the worse whenever i had anything, sinus headaches, flu etc.

    everyday with fms (i have not been diagnosed with cfs but feel i also suffer from this) we have tiredness, achey feelings, maybe swollen tender spots, you can go on.... but we are able to at least get a few things done. for me this might be make one apptment, or go to one store, that is on top of the normal activities everyone else takes for granted. like getting dressed, hair done, making up bed, even eating.

    now when i am in a flare..... my pain meds don't help with the increased pain, i am so fatiqued that i can not leave the house (just a walk to my mailbox is a monumental task) my joints (ankles) hurt continusouly making it hard to walk, my sleep patterns go beserk, ususally i have to double my sleep aid and add a muscle relaxor on top of that. i have to make myself eat. and of course, i get really down in the dumps. major tightness all over even with a lot of stretching. headaches........

    some flares last for a week (thank goodness my longest one has been 7 days, but this one will break that old record) but many people on the board have flares that lasts months. my only problem with these short weekly flares is i ususally don't have but one to three days max of just normal fms feelings then usually back in flare.

    hope this is some help, forgot to mention also when in a flare we have lots of problems with cognitive stuff and spelling so hence the rambling and probably bad grammer!

  10. fibolady

    fibolady New Member

    gosh, i hope your hip pain goes away before 9/11. you must be strong to endure such a long flare, do you not get depressed. i get depressed after 3 days, i am a whimp. i have tried to make good of a bad situation but this dd, it is so hard.

    just like "tired4tolong" it is so heartbreaking to miss out on all the "good" things. i too have had to miss out on so much of my daughter's growing up. i used to participate in a lot of things, not anymore. thank goodness no one here would say, just go do it it will make you feel better!!!!!!!!!!!!!!!! don't get me wrong, on a normal fms day i do strive to do that little extra thing, but usually my 2 schedules don't want to coincide. there is always so much stuff to catch up on when you are feeling better too.

    herblady, i think you are right, it's about time i get some "big guns" i am TIRED of hurtin all the time! i am on tramadol now, and it just takes the edge off on good days. in a flare, even if i up my dose it doesn't help only makes me mean or should i say meaner! wouldn't you know it is a holiday weekend and i will have to wait until next week to call the dr. - h - t !! what i would give for a demerol shot now.

    louiseo and ladyscarlett thanks for checking in too!

    still rambling because i have been in the house so long..... fibolady
    [This Message was Edited on 08/30/2002]
    [This Message was Edited on 08/30/2002]
  11. MicheleF

    MicheleF New Member

    So sorry you're having such pain. Also to all those who posted who are also suffering. I was in the middle of getting results from latest tests last year for my endometriosis. On a Sunday morning, I called the ob/gyn & spoke to their on-call person b/c I couldn't take the pain anymore. I was scheduled for my first Lupron shot that Tues. but had been given no pain meds. (Wish I knew then what I know now!!)

    So even though I was being "treated", I went to the ER on on-call phys. advice. They gave me a shot of Demerol & an anti-spasmotic & a prescription for 4-5 pain pills to get me thru till I saw my dr.

    This is a long weekend. You may want to go to your ER. Best wishes and let us know how you make out.

    And, btw, no I don't think you're a wimp!!! FMS makes all pain different. Take care, Michele
  12. BlueMoon

    BlueMoon New Member

    Done That!
    My Rumy sent me to a pain specialist. He was not much help. he had nothing new to offer me. I am already on oxycontin. The Doc yesterday my orthopod, gave me a Lidocane patch. It seems to help some, I did sleep last night, first time in a few days/nights.


    Robin
  13. herblady

    herblady New Member

    i wish i had some oxycontin or something for this pain. even a lortab would help. i'll just have to see what the dr. says. cindi
  14. BlueMoon

    BlueMoon New Member

    I just asked my hubby if I am depressed & he said, "Not to bad" I do blurt out once in a while that I have had enough. But all & all I try to hold it together to keep the family going. I do get sad that I am missing so much in my life, But I am also happy that My house is the teen hang out house & I get lots of love from all my girl's friends.


    Trying to keep my spirits up!

    Robin