DD- the gift that keeps on giving

Discussion in 'Fibromyalgia Main Forum' started by Cin, Dec 27, 2002.

  1. Cin

    Cin New Member

    Hi everyone,
    Hope everyone is enjoying their holidays as much as possible.
    I'm posting this today because I have a wonderful and exciting group of new symptoms. I was dxed in 1994 and last night was only the second time that this has ever happened to me. All of a sudden (and for no apparent reason) I started shaking uncontrollably, my heart was hammering, I was short of breath, and I couldn't focus a single thought (much worse than normal brain fog). I wasn't particularly worried about anything specific (other than the norm), but I was wondering if this is what a typical anxiety attack is like.
    I absolutely appreciate any info or advice you can give me.
    Thank you,
  2. klutzo

    klutzo New Member

    You might want to look up previous posts on this by going to the top of the page where it says "search previous posts" and typing in panic or anxiety. We talk about this a lot and about using various drugs and breathing exercises to control it.
    Also, panic attacks are more common in those of us who also have Mitral Valve Prolapse (MVP) and if you have not yet had an echocardiogram done to check for this, please do, as there are important reasons to know if you have this, that have nothing to do with FMS. You can find previous posts on that subject also.
    Are you originally from York, PA by any chance? A long time ago I had a good buddy from there who went by the nickname of "Cin".
    Welcome to the Board. I know you'll find lots of help and support here.
  3. Cin

    Cin New Member

    Thank you for the info. I will definitely look into the MVP.
    As far as geography goes, you got the PA part right, but I'm from Philadelphia, which is close enough I guess.
    Thanks again,
  4. Cindi

    Cindi New Member

    I don't really have a concrete answer for you. I have had some of the symptoms you've described, and I do have GAD (Generalized Anxiety Disorder), and Mitral Valve Prolapse. You said that you were shaking uncontrollably, and had intense brain fog. Were you totally aware of what was going on?? How long did this last?

    By the way, I'm another "Cindi", also called "Cin" by many. I'm originally from Phila., and now live in the suburbs of Philly!! Nice to meet you :)

    Take care,
  5. LisaMay

    LisaMay New Member

    It sure does sound like it! I have similar episodes on a regular basis. They don't know why and won't call it anything else except "anxiety" or panic attacks. I had two just today, and that's a good day for me.

    You should pass it by your doc just to be on the safe side and see what they say.

    I hope they go away! Lisa
  6. Cin

    Cin New Member

    Hi Cindi,
    Cool that we both spell our names the same way and live in the same area. It's nice to meet you as well.
    As far as this episode, it lasted almost 2 hours, and I was aware of what was going on, but if I tried to think about any subject in particular, it became like misty and then disappeared altogether. I know that sounds crazy, but I really don't know any other way to explain it.
    Like I said, I have only had one similar episode and that one was not as severe nor as long lasting.
    As long as I've had this thing, I thought I knew all it had to offer, but I guess no one understands it completely.
    Thanks for your help,
  7. Cin

    Cin New Member

    I definitely will talk to my doctor about it next week. And thanks for the reply,
  8. JaciBart

    JaciBart Member

    I chalk it up to adrenaline, I have to put in my ear plugs a lot at home, I have an 8 yo boy who shares every single thought and detail and it really gets to be too much for me, and in any public place he wants everything he sees, I do mean everything, waaaaaaaaaaaaay extreme compared to other kids, today I had to bring him home & go back out to finish my errands, he starts in & it just does not end and once that happens to me with the adrenaline going I suffer all day. My new high blood pressure meds do help some and neurontin does too I think but it is hard, I have to focus on breathing deeply as when we are in a panic state we tend to breath shallow and that makes it worse.

  9. Cindi

    Cindi New Member

    The reason I asked if you were aware, is that my son has had seizures for 14 1/2 years. Seizures come in ALL shapes and sizes. A generalized seizure could cause uncontrollable shaking, but you wouldn't be aware. When a person has a partial seizure, they ARE aware, but wouldn't have uncontrollable shaking with it.

    I would definately follow up with your doctor regarding this! BTW, what part of Philly are you from? I still have family throughout the area.

    Also...keep us posted on how things are going :)

  10. Cindi

    Cindi New Member

    I'm having a real "fibro-fog" day!! I meant to ask you if you've had any success with doctors in the Phila. area?? I'm happy with my PCP, but am searching for a new Rheumy and/or pain specialist. Thanks!!

  11. Cin

    Cin New Member

    Everytime I address something to you, it feels like I'm writing to myself...LOL. I'm from NE philly, actually Mayfair. And I only have a PCP. I don't have a Rheumy or a pain specialist.
    I have to say that I am very glad I posted here, you have all been so nice. It's also wonderful to be able to talk to people who know exactly what you're going through.
    Hugs back,
    P.S. Don't worry about the Fibro-fog days, we all have them.