Dental Problems...Gum Disease....Can anyone help

Discussion in 'Fibromyalgia Main Forum' started by futurehope, Mar 28, 2006.

  1. futurehope

    futurehope New Member

    Hi everyone,

    I have a very unusual question here.

    I will make this short and not go into much detail.

    History of high WBCs dropping when an antibiotics.

    PET Scan revealed several active (infected/inflammed) lymph nodes (Infection and inflammation all around my mouth).

    Preassumed cause per PET Scan was dental problems, gum disease.

    Oncologist told me to go to the Dentist. I did.

    The dentist could not find anything wrong. My teeth or gums are no sore, my teeth do not bleed when I brush. I have no bone deterioration per the dentist.

    The ONE problem that the dental hygentist noticed about my teeth was when she stuck the probe in my mouth. I guess something that measures depth from gum tissue pulling away from teeth. On the inside of my mouth, it was noticed that I have 5's in most places.

    I do not think that the problem with my infection/inflammation in my lymph nodes has to do with dental problems.

    If there are any dental/medical people out there, this condition was also found in my bone marrow biopsy, but I think it might have been reactive.

    Thank you very much for your time,
    I have nowhere else to turn,
    Not even my doctors,
    Brenda
  2. deb06

    deb06 New Member

    Hi there. I was a dental assistant for 16 yrs. Anyway, it is impossible for anyone here to say all that might be going on with your lymph nodes etc.

    What I do know is that if you have pockets of 5mm or more around most of your teeth is that you do have periodontal disease. Periodontal disease can cause infections, tooth loss, and lots of other problems. I don't understand why your dentist would say you don't have any bone loss when that is what would cause 5mm pocketing.

    When you loose bone support and your gum is pulled away creating a "pocket", it is impossible for you to properly clean out bacteria, plaque, calculus from under the gum yourself. When this stuff sits under there and isn't removed, this in turn causes the infection, gingivitis (bleedy gums) plaque turns into hardened calculus that causes the gums and bone to further pull away because it is being irritated. It is a cycle that only a properly trained hygienist in rootplaning (or cleaning that deeply below the gumline) can treat.

    5mm pockets can be treated and turned around. Your dentist should be recommending this and refer you to a periodontal office if his hygienists aren't trained to do this. They were in my general practice office- but most aren't. Most are referred out to a specialist.

    After all the debris is cleaned out- the gums can reattach. There is other periodontal treatment done by a periodontist that can replace the bone loss.

    I would definetly look into the proper treatment for this. If your dentist does not want to look into this further, get a second opinion. If you have not had a full mouth set of xrays done recently, you should do so. These xrays can be sent to any other office of referral.

    I don't know if this is causing all your problems, but this is something tangible to tackle.

    Hope this helps you!! Luv, Deb
  3. futurehope

    futurehope New Member

    Hi Deb,

    First of all, I want to thank you for responding to my questions!!! I am so glad that you found my post. I am so in need of someone who might know something about this condition.

    So I am guessing that you have never seen anyone in your practice that has swollen lymph nodes or infected lymph nodes with gum/periodontal disease. This worries me so much because mine are infected and per PET SCAN it says it has something to do with my dental condition.

    My teeth all look healthy, no pain, no bleeding, nothing. Only thing was the probe inserted in back teeth showed 5 mm in alot of places.

    I did not know this was periodontal disease. My teeth are not rotted and there is no bone loss under the gums. They took some special kind of x-ray to look at the bone. So they say there is NO bone loss.

    I cannot see the pockets, it is only noticed with that probe. My gums were the pockets were noted a 5 mm (when I look at them) I do not see any gaps or pulling away.

    I will call my dentist and ask him about 5 mm pockets and have him recommend me to a peridontal office.

    I do know that other things can cause the nodes to do this, like Epstein Barr Virus, Bacterical Infections (which I have had plenty of) since last October with the high WBCs.

    So, my condition must be pretty rare, that scares me even more.

    Again, thank you very much for your response, I appreciate someone with your expertise helping!!

    If you can help further with this reply, I would really appreciate it.

    Love and prayers,
    Brenda

    THANK YOU, THANK YOU, THANK YOU!!!!
  4. deb06

    deb06 New Member

    Well, I appreciate you thanking me. Many times it seems noone even looks at my responses and if they do don't respond or thank.

    I'm sure we have seem people with the two conditions, but I just don't recall any correlation. But then again, I am not a dentist or a doctor. But getting a periodontal opinion is a good step to figuring things out.

    Is there anything that we get easy to figure out!?!!! Nothing is easy is it??!!

    It is very possible you don't have periodontal disease or bone loss. But it will be good to know for sure I think.

    Good luck and please keep me posted. YOu have me very curious!!

    Luv, Deb
  5. futurehope

    futurehope New Member

    Bump for Deb06 if she is out there please!!
  6. futurehope

    futurehope New Member

    I ALWAYS try to thank people!!!

    I am fairly new here, so I answer posts as much as a I can when I can help. I think it is equally as important to try to help people if you can.

    I will be sure to post and let you know how things are going when I find out.

    Thanks again,
    Love and prayers,
    Brenda
  7. 69mach1

    69mach1 New Member

    i have worked for both a g.p. and an oral surgeon...

    did you get a full mouth xray done recently? 5mmm pockets are not good..you teeth do no bleed it is the gums that do...

    but i really do not particulary care for you dentist's aloof actions...maybe he/she has done more than i believe...

    you could always go to a dental school as well for treatment...

    you need to floss daily, a sonic care toothbrush...minimum 2x a day...then they may need to do other things more involved..i am not going to say anymore until you get in w/a dentist...deb has said enough already as to the periodontal disease....

    something isn't right...you need a specailist....

    jodie
  8. rosemarie

    rosemarie Member

    Just as the others have said you sound like you have periodantal disease { forgive spelling having bad day } . When the your hygentist told you that she found pockets that were 5 mm deep. That is a bad sign. Most people when they have a probe done during a general cleaning , the probe will only go 1-2 mm down the side of the tooth. That is normal. But having pockets of 5 mm's scare me.

    I think and remember this is just my thoughts not professional, is that you need to have a deep root planing done, this will remove all the claculas that has built up there and since this is deep you may need some anesthia with it. Just some lidocaine to ease the insstruments go below your gum line , the instruments will be touching the sensitive part of your roots and can be painful but you sound like you need this done. My other thought is that you need to see a periodontist, this is a dentist who specialty is the health of your gum tissue.

    These dentists are highly trained and I too would have the one you think you want to see checked out, find out where he / she was trained, what school, how they relate to people. All these are important to you so that you will feel that you are getting the BEST card possiable and getting some one who will tell you what is going on and a person who has a great bedside manner, careing and gental with you.

    I would have this checked out ASAP as this could lead to other problems for your health.

    Rosemarie
  9. futurehope

    futurehope New Member

    For replying to me.

    You all have helped me a great deal!!!!

    This Friday, I am going to my regular Dentist again. He is also an orthadontist (sp) and my daughter gets her braces adjusted every month.

    I plan on discussing this issue with him, and giving him a copy of my Pet Scan Report and DEMANDING that he send me to a Peridontist.

    I will repost at a later date about what I find out and let everyone know.

    Thanks again!!!!

    Love and prayers,
    Brenda

  10. 69mach1

    69mach1 New Member

    i want to save you some money here.......

    you want to talk to your daughter's orthodontist? have you seen him personally yourself for work on your teeth?

    if you have then maybe he will feel comfortable talking to you..but his speicality is movement of teeth to align the teeth...not gums....

    plus they will not have the meds you may need....

    you said you already saw a dentist that day about the 5 mm pockets...just call his office and tell him you want to refferal to a periodonist about your pockets...that's if you feel comfortable...i don't know if you are planning on going to them ever again or not...

    but i just wanted to save some money for you...

    let us know what is going on..

    jodie
  11. butterfly8

    butterfly8 New Member



    I had really bad periodontal disease twenty odd years ago and had to have lots of work done on my gums and areas of infection cut off, stitches, etc. (This links up with your report that the gum tissue is pulling away from the teeth and other replies have dealt with this.) My surgery was very umpleasant and expensive. About 3 years ago, my dentist told me that I was starting to develop a small pocket of it again.

    I have been able to keep it under control, and even reduce it by using the SMALLEST trace of a drop of tea tree oil on my dental floss once every couple of days. Tastes foul but it has worked for me.

    Perhaps you could try this?