I know a lot of us are women, but I also wonder from the men...is there a common thread of the year we were diagnosed? I'm 31 now, and it just keeps getting more severe. I notice people talking about how they were really active and considered very healthy--me too. People look at photos of me at age 25 and can't believe the difference between healthy vs. sick for 5 years. What age were you, and what year was it? And you know, my heart goes out to all of you with children to raise--I suppose they are a great source of hope at times, but I cannot imagine the stress it takes on your mind and body. Why is this happening to us when we're so young?!