Diagnosing

Discussion in 'Fibromyalgia Main Forum' started by srmac, Jan 4, 2006.

  1. srmac

    srmac New Member

    I am sure this question has been asked a million times here...I am new to the board. I have been in chronic pain for over two years. I have had Irritable Bowel Syndrome for over 7 years, it progressively worsens each year. I have had fatigue, sleeplessness, flu-like aches/pains, headaches, chronic sinus infections, and general malaise for over two years. I have been to numerous doctors who just say it's in my head or prescribe antibiotics for infections. I truly believe I am a candidate for CFS or Fibromyalgia.

    I am tired of complaining and feeling bad, but I don't know where to start. Do I call a doctor and say "I think I have this disease, can you help?" Seems like every doctor I go to thinks it's crazy and that they are not a disease.

    I had one doc run blood tests several years ago and my Epstein-Barr panel was raised. Still, he just suggested it was nothing.

    I have done tons of research and it all leads me back to the same place - fibromyalgia or CFS.

    I live in Houston and would be grateful for any place to start. Should I call a helpline and get a referral? I have insurance and need to find a place that accepts my insurance.

    Thanks for any insight. I just want an answer once and for all and to stop feeling like it's hopeless. I know my family thinks I am a complainer, but I truly feel awful most of the time.

    SRM
    [This Message was Edited on 01/04/2006]
  2. CanBrit

    CanBrit Member

    I know how frustrating all of this can be. I had IBS since my early 20's and in my early 40's started getting sinus infections that wouldn't heal, neck and back problems, poor sleep, etc.

    I had an explanation for everything. Bowel problems run in my family as well as insomnia. I was perimenopausal which I chalked up to a lot.

    Four years ago, I just knew something wasn't right. My lipid levels were through the roof, I couldn't lose weight, I was tired all the time. I'm afraid for me it wasn't until I contracted a stomach virus in 2004 that everything went truly crazy.

    It started in my hip and now migrates throughout my body. My Dr thinks that the virus kicked of an autoimmune response which attacked my thyroid so I have to take pills for that. He's not a strong believer in FM but he did refer me to a rheumatologist who diagnosed me in December 2004.

    Ask your Dr for a referral to see a specialist. Keep at him, because I did with mine.

    All the best,

    Eileen