Did a sleep study help you?

Discussion in 'Fibromyalgia Main Forum' started by intrigue, Sep 26, 2005.

  1. intrigue

    intrigue New Member

    I've been reading this board for a little while now, but this is my first post.

    Like many of you, I am trying to figure out a plan of attack for the whole FMS ordeal. I've been dealing for 2 years now, and I haven't found a lot of help doctors in my area.

    The last Rheumy I saw is convinced fatigue symptoms are caused by a lack of stage 4 sleep. (you can find more info about stage 4 sleep on other posts to this board) He, of course, wants to treat with a sleep medication. I'm trying to figure out if a sleep study would be valuable.

    My question is for those of you who HAVE had a sleep study done, and subsequently were treated with medicaions or therapy or whatever based on the results of the study.

    - In your opinion, was the information useful?
    - Did it result in a treatment that has actually helped you?

    Thanks for your input!
  2. CAAnnieB

    CAAnnieB New Member

    In answer to your questions:

    YES! and YES!

    See my post:

    CPAP treatment for Sleep Apnea has been a MIRACLE !!!

    I would encourage you to go for a sleep study. My CPAP treatment has changed my life for the better...MAJORLY!

    Good luck!

    Annie B.
  3. abbylee

    abbylee New Member

    I had a sleep study in Nov., 2003, and was diagnosed with alpha intrusion. I was given Xyrem, and have much less pain, more mobility, and unless a hurricane is in our area, no flares!!

    Below is some information about sleep stages:

    Research has identified five distinct stages of sleep. During the course of an eight hour sleep period, a person should cycle through the various sleep stages every 90 minutes or so.

    Stage 1 sleep is a transition period between wakefulness and sleep. Sometimes you may have a sudden dream onset. You may still be connected to the awakened world and could easily be aroused into wakefulness.

    From Stage 1, you will descend into Stage 2 where your breathing and heart rate will begin to slow down. During the continuous sleep cycles throughout the night, you should spend almost half your sleep time in Stage 2.

    Next comes Stage 3 and 4, which are somewhat similar. This is sometimes referred to as Delta Sleep because of the slow delta brain waves which have been recorded during this sleep stage.

    Delta sleep is a regenerative period where your body heals and repairs itself. Sometimes during illness, your body may fall immediately into Delta sleep because infection fighting antibodies are produced in greater numbers in this sleep stage.

    The first episode of Stage 3 and 4 sleep lasts from 45-90 minutes. Progressive episodes of Delta Sleep have shorter and shorter time periods as the night goes on. After several complete sleep cycles earlier in the night, your body does not re-enter stages 3 and 4 any longer, but enters the 5th Stage also called REM (rapid eye movement)

    Stage 5 is also called REM or "rapid eye movement". It is during REM periods that we dream. Your body creates chemicals that make you temporarily paralyzed. Your mind is extremely active, and your eyes are moving as if you were awake.

    In REM, your heart and breathing rate increases and becomes irregular. Your eyes move from side to side.

    As the end of your sleep period approaches, your body temperature begins to rise. Your breathing and heart rate normalizes. You may awake suddenly, perhaps remembering a dream, as you have just ended a REM period.

    In alpha intrusion, daytime brain waves (alpha waves) interfer with Stage 4 (deep restorative) sleep.


    abbylee
  4. deliarose

    deliarose New Member

    and I only got something like 3 and a bit hours sleep, becuase the sensors they stuck on my head kept falling off and the nurse kept coming in to reattach them.

    Even so, when a really experienced doc finally saw the results of the study, he immediately diagnosed a major sleep problem.

    He said the results showed alpha intrusion and immediately upped my sleep meds. I improved almost immediately.

    One thing: you might want to get the study pre-approved by yr insurance company. I think my study cost $1,700 plus...

    Cheers
    Delia

  5. LittleBluestem

    LittleBluestem New Member

    My most recent sleep study was five years ago. It was disappointing. The first was an absolute fiasco. The technician sat just through an open doorway at the foot of the cot on which I was supposed to be sleeping. She had a radio playing country/western music, which I detest. When I asked her to turn it off, she said she wouldn’t because she needed it to keep her awake! Well then how did she expect me to sleep. The second had a much better set up, but had problems with the staff. I can only hope sleep labs have improved in the meantime.

    I know that my first sleep doctor was s pulmonary specialist. I suspect the other was as well. Almost all of the communications that I received from that lab concerned sleep apnea and CPAP machines. Apparently the only sleep disorder they were interested in diagnosing was sleep apnea. I was fairly sure when I went in that I did not have sleep apnea and when that proved to be the case, the sleep specialist just brushed me off.

    If you want a thorough study of your sleep patterns, you should probably get a neurologist as a sleep doctor. Ask to have a look at the sleep lab set-up to see that it is reasonably conducive to sleep.
  6. Dara

    Dara New Member

    He found that I had very little REM sleep, but no sleep apnea.

    His findings were that I was most likely a night owl, which is not an uncommon thing. I've been a nightowl all my life, even as a child.

    What he suggested to my PCP was to prescribe Ambien, 5mg every other night. He said I could go one night without much sleep.

    Since I was working at the time, I wasn't too keen on that idea. But, the ambien does work. Now that I'm not working I hardly ever take it.

    Truthfully, I like staying up late and I'm much more alert and have more energy.

    I never sleep for more that an hour or hour and a half at a time. But, if I do take an ambien and sleep for three or four hours then I'm so sore from laying in one position that I can hardly get up and out of bed.

    So, I'll just remain a nightowl and make appointments for early afternoons.

    Dara
  7. JLH

    JLH New Member

    My sleep study showed that I had obstructive sleep apnea which was causing me to go into congestive heart failure!

    I now sleep with a CPAP machine with oxygen piped into it.

    One of the best things that I ever did!!

    I also take Zanaflex, a muscle relaxer, for my fibro to help me sleep with less pain.

    Janet
  8. tngirl

    tngirl New Member

    Yes, I had a sleep study and was diagnosed with sleep apnea, and use a CPAP machine every night.

    The room I had the sleep study in was like a hotel room with a very comfortable matress, very quiet. There was a TV I could turn on if I wanted to. They had heavy drapes so no light from outside came in.

    My sleep study was about three years ago, I haven't had one recently. That was also before I had fibromyalgia.

    I did get where I wasnt' able to go to sleep or stay asleep. I kept waking up. Now I take Lunesta.
  9. abbylee

    abbylee New Member

    You can call 1-800-823-8893 and ask for the name of a sleep doctor in your area of the country who prescribes Xyrem, if that's what you need.

    If your studies aren't too old, I suspect these doctors will review them and work with you accordingly.

    abbylee