Did anyone with Fibro and CFS have trouble getting pregnant?

Discussion in 'Fibromyalgia Main Forum' started by Jo29, Jul 13, 2006.

  1. Jo29

    Jo29 New Member

    If so... what did you do to help the situation?

    I am asking for my daughter. She has both and she seems to be having trouble getting pregnant. Personally I don't think she has given it enough time.

    Just in case though, if anyone can help her let us know.

    I did not have FM/CFS at the time I got pregnant so I got pregnant right away.

    She has talked to her doctor, but not seriously enough. She just wanted me to ask you guys. Thanks.

    Jodi

  2. Michelle_NZ

    Michelle_NZ New Member

    Hi Jo

    I myself have not had any children while being ill with CFS/FM.. but there are many on this board who have. I've also read in various literature that it should not affect fertility. Try doing a search for previous posts using the words "pregnancy" or "pregnant".

    How long has seh been trying to get pregnant?

    Take care
    Michelle
  3. TheOtherGracie

    TheOtherGracie New Member

    Jo,

    I have had Fibromyalgia my whole life, and suffered from all the classic symptoms and all the other problems that go along with it, until I was 50 and I got the proper diagnosis, which did NOT come from a doctor! Upon a single dose of the medicine, my fibro pain left and has not returned. This genetic disease is though to be much more widespread that thought, and INFERTILITY is a symptom. I have never had a live birth and my father (an M.D.) thought he was sterile.

    I suggest you study about Familial Mediterreanean Fever. You can have very few of the symptoms and still have it. I had no idea that my defective gene came from 7 generations back on one side. It is one of the genetic diseases of Melungeons, a fact I came across in my genealogy searches. We think we know what we are made of...but often do not. Once considered a "Jewish" disease, this is popping up in many other nationalities, Spanish, Italian, Melungeon, Portugese, Irish, Scottish to name a few.

    About 80 of the defective genes have been identified, but there are many more mutations. A genetic test cannot determine this disease, in fact no test can determine the disease. The only way to tell if you have it is to start on the drug (colchicine-pronounced coal-cha-seen) therapy of a protein from the Crocus flower which contains the protein that people with FMF do not produce. My fibro pain left in 6 hours. I know of another that said she felt it work within 2. Most doctors do not know about this disease and is normally treated by rheumatologists. I live remotely and was lucky to have someone prescribe it for me after taking the time to study the disease as I was determined not to take a "No, I am sorry I can't give you that." Being hard headed paid off for me in this instance. Educate yourself, then find a good doc!

    P.S. gone untreated FMF can cause damage to the thyroid and can even be fatal.


    [This Message was Edited on 07/13/2006]
    [This Message was Edited on 07/13/2006]
  4. Jo29

    Jo29 New Member

    Michelle she and her husband have been trying now for about 6 months. She is concerned because I didn't have any trouble and her sister didn't either.

    AngelaG, she does have hypothyroidism. She has been treated for it for about 2 years now. Her blood test results bounce around and she has to have her meds changed a lot.

    I also have hypothyroidism and my tests and meds are pretty staionary.

    Theothergracie, this kind of leads right into what you are talking about. I am definitely going to study up on FMF. It sounds like it could be a possibility. Thanks so much for this info.

    donnaeil, I think you are right about the fertile part. I don't know if I had CFS and FM when I had my children, but I absolutely had no problems getting pregnant either time.

    I think this is what makes my daughter think there is something wrong with her.

    hangingin, her husband's "little guys" have been tested and they are doing great!! ahum She has always worried that she will not be able to get pregnant and I personally think that is part of her problem.

    I know a lot of people once they decide to adopt, they get pregnant. The worry and stress is gone. I am so happy for you and your husband that you were able to adopt. That is great for you. I hope they don't have to adopt, but I know they would if they can't have any of their own.

    Thanks again to all of you. I will pass this info on to her.

    Hugs,

    Jodi



  5. lease79

    lease79 New Member

    Chronic FMS & CFS here, at 26 I can barely drive my car around the town, can't lift things, & burn out in 5 seconds flat.
    I do NOT have infertility. 4 children, pregnant first time everytime.
    Like someone else said, it doesn't seem to be a symptom of CFS/FMS. That said, something like 1 in 3 couples will have trouble conceiving, so it is likely that many people with cfs/fms will have trouble trying to have a baby.
  6. Cakedec

    Cakedec New Member

    I had my first two children alright, but then had several miscarriages trying to get my 3rd. Finally had to have hormonal support to carry her. I think these diseases mess up our hormones. The daughter I had from that pregnancy has messed up hormones, also. She has low thyroid, cortisol, and growth hormones and has to take all three. I love her dearly, but she has never been healthy.

    You might ask to get your hormone levels checked.

    Deb
  7. Michelle_NZ

    Michelle_NZ New Member

    I think she should relax (harder to do that talk about it.. sheez I know that for sure)... its only been 6 months.

    Most doctors say to give it at least a year.

    Take care
    Michelle
  8. angellwolffe

    angellwolffe New Member

    i've had fm symptoms since i was a teen. We've been pregnant three times and lost all three. I come from a huge family and the doctors can't figure out why i can't carry full term. I have no problem getting pregnant just carrying it. I have hypothyroidism also. don't know of any significance but my brothers and sisters kids all seem to be having an easy time having their own to.

    Angell
  9. sorekitty

    sorekitty New Member

    also seem to have endometriosis which can cause infertility. I went through 3.5 years of infertility. I found out I do have endo as we began to investigate why we weren't getting pregnant. But I also found out my fallopian tubes were malformed. I did IVF (in vitro fertilization) to have my son. It was a major struggle to get pregnant, won't go into too many details.

    If your daughter is getting closer to 35 years she may only want to wait 6 months. I was 33 and wished everyone hadn't told me to wait a year. If there is a problem with the woman time is of the essence! See if they can test her FSH (ovarian reserve). It is a blood test.

    I don't know if the infertility was in part due to FM and CFS or not. It was partly something that I was born with.



  10. Jo29

    Jo29 New Member

    I have told her everything all of you have said. She and I want to thank all of you for taking the time to help her out.

    If they should succeed... You all will be the first to know.

    You have all been so kind. Thanks again.

    Hugs

    Jodi
  11. please dont think im being vulgar/rude..but id just like to tell you about how i got pregnant against all the odds.

    ive only known i have fibro/ME chronic fatigue syndrome for 12 years,thats when my specialist told me about it.but he said, all those years ago they had actually known id had these illnesses for many many years before that even,and just hadnt chosen to tell me back then,as i wasnt complaining of having mobility problems.

    looking back i guess it was when i was pregnant with my eldest child who is in her 20s now.the nurse had asked at a routine check up...did anyone in my family suffer from rheumatic fever..i said yes,it was my mum when she was very young.so i then know that rheumatic fever has struck me too.i had many problems over the years with cysts on the ovaries,and other things going on in the lady department.

    i had a healthy baby,then things started going wrong.i was told i had a condition where no eggs are being released each month,and its unlikely ill ever have a second child.

    we tried and tried and never got pregnant.i had ovarian cysts regulary,had them removed,then got told i was in a early menapause.i was 34.

    now as i said, please dont think im being vulgar or rude.im only telling you this because it worked for me.i got pregnant and my lad is 17 now bless him.

    i made myself stop thinking about getting pregnant,and i think over the next few months id become more relaxed.just got on with my life.

    after my husband and i had made love.i decided to just stay laying down in bed for half a hour after the love making,and i decided to lay on my tummy that whole half hour.

    looking back i know i was no longer worrying about getting pregnant,id not been stressed out about any desperate need to have a baby,id excepted that life just goes on,with the one child we were already lucky enough to have.

    id gotten a job,and then one day i just got a feeling that something was different,and my periods stopped.and sure enough i was told im pregnant.

    when the nurse first came to visit me at home she said....i cant believe youve concieved.i did the test that showed you were no longer releasing eggs each month,yet here i am visiting you with your pregnancy..she then laughed and said....its quite obvious that a egg was there this month haha.bless.

    so dont give up,mother nature has a way of working miracles when we least expect it.good luck.


    love fran
  12. mollystwin

    mollystwin New Member

    I did have trouble. I am very blessed to have two boys ten years apart. Wanted at least one more but it was not to be. Now at 47 I find out that I have hormonal imbalances, progesterone being one of them. It helps with pregancy. I wish I knew that ten years ago!
    Fran, my second child is my miracle baby, just like you have a miracle baby. I was told I would never concieve again!
  13. monicacat

    monicacat Member

    I got pregnant by taking the plain robitussin cough syrup.

    google robitussin and pregnancy and you'll find plenty of info.