Did you change your Drs. mind about treating your pain?

Discussion in 'Fibromyalgia Main Forum' started by tandy, Jul 28, 2008.

  1. tandy

    tandy New Member

    Hi everyone~

    Is there any hope? How can I convince my dr. that I need something stronger for pain?

    he's my Rhuemy for fibro and the last time I asked for something stronger than ultram, he blew me off saying that once your prescribed narcotics you'll always need them,..so he'd prefer NOT to.
    But I've honestly tried long enough using OTC tylenol,motrin and the ultram and nothings helping me at all.
    I feel i'm at the end of my rope,and can't go on like this. I wake up each day in pain and end each day in pain. What kind of life is this?!
    Who would WANT to go on like this? they'd have to be crazy.
    How can I go about asking and convincing him that I can't do this anymore with ultram alone?
    (sorry for the 'down' post)
  2. marti_zavala

    marti_zavala Member

    here is my opinion;

    if you can't change your doctors mind about pain medication, CHANGE DOCTORS.

    He works for you and if he is not helping you, it is time to move on.

  3. tandy

    tandy New Member

    I find tho,.. with medicaid for insurance the pickins are very limited. not many drs. even accept/take medicaid.
    thats why I hang in there with the dr. I have.
    I figure,..its better than not having a dr.???
    but at this point he's almost no help to me and my illness.
    and yes,..I have had this complaint for a very long time.
    I'm sure you have seen other posts by me.
    and I appoligize for the repeated nagging about it.
    But its an issue I'm determined to fix.

    thanks agin
  4. marti_zavala

    marti_zavala Member

    how about a clinic or better yet, a teaching hospital.

    When I was on indigent health care, I was sent to a teaching hospital and got better care than I am getting now.

    Jeerie's idea about ER is a good one. It proves that you are willing to sit in the ER lobby for hours in order to get some help.

    I had another thought but I lost it.


    Got it. Can you go to a GP and ask to be referred to a Pain mgmt doctor. Anymore, that is just the way it is going now.

    [This Message was Edited on 07/28/2008]
    [This Message was Edited on 07/28/2008]
  5. tandy

    tandy New Member

    I just hate the ER, but sometimes I make myself go.(when its horrible)
    about the depression side of dealing with all this. ??
    sure I'm mega depressed. It started where I noticed a few changes in me. Now I'm hardly the same person I was.

    My family would vouch for me there,... but I don't even think they realize why. they simply don't understand.
    they think I'm just grouchy some days.(like PMS)
    it has nothing to do with my cycles.
    (its like I'm really out spoken these days)
    I'll say exactly what I feel to people and I just don't care. I never use to be that way!! quite the opposite.

    I'll try again wednes. as I have a Rhuemy. appointment.
    Wish me luck since he only sees me every 3 months.
    If I don't get any help this week,... it'll be Oct. before I see him again.

    thanks again you guys~
  6. gapsych

    gapsych New Member

    Are you on any kind of antidepressant?

    You are absolutely correct about pain/depression becoming a never ending/self feeding cycle, which makes both worse.

    Antidepressants can not only help your depression but can also help with the pain.

    I was unknowingly taking a lowered dosage of Zoloft and I was in the worse pain I have experienced with FM.

    Once the incorrect dosage was discovered and I started getting my original dose, the pain started decreasing.

    If you already said you are on an AD and I missed it, I have to blame my fibrofog!!

    I am sorry that you have been in so much pain.

    Take care and keep us posted on how you are doing.


    [This Message was Edited on 07/28/2008]
  7. tandy

    tandy New Member

    laughing at myself cause I can't remember your full name!! how embarrasing :)
    No,... I'm not on an antidepressant. But probbaby at this point need to be.
    A long long time ago I was taking low dose elavil at night for sleep. But I stopped that because I did'nt feel it made a difference in my fM or sleep or anything for that matter.
    I'm gonna ask tomorrow for something. anything!!
    this is so darn cruel this disease.!!
    i'm not sleeping well, my brain is racing,my pain is over the top! etc. even my IBS is so bad right now.
    thanks for asking~
    (aren't ya glad ya did!!??) lol
  8. Janalynn

    Janalynn New Member

    I'd say, "I could care less if I'll need them for a long time, I need something!!!". Actually what I'd want to say is worse than that.
    There are a lot of articles out there that talk about pain meds used for chronic pain and how the rate of addiction is very low. (dependency is a totally different thing)
    My Doctor actually told me early on that I'll probably be on my pain meds for a long time. So the nice thing is that she knows she's going to get that call for the refill every month.

    I think it's the National pain association that has a website - talks about pain meds. There is also a recent post here that someone posted "fms and cmp info" addresses pain meds there as well.

    Yeah, so live in excruciating pain with zero quality of life because your doctor is afraid you'll have to take them for a long time. OH that bothers me!

    Good Luck - don't give up. It's your life you're fighting for - tell him /her that. You are fighting for some quality for life!
    Please let us know how it goes!
  9. tandy

    tandy New Member

    I agree 100% with you~

    I'm not afraid of addiction. (maybe I should be??) It does'nt even enter my mind.
    at this point I just wanna live again!! at least semi-normal at times. Give me a few hrs a day where I can feel ok. That'd be a big help!!
    right now its all day,..non-stop HURT. to the point where I can't do anything.

    People have said to me,.." try not to think about it so much" and you'll feel alot better.
    yea! ok.
    thee ole mind over matter trip.
    It does'nt work, or has'nt for me anyway.

    thanks again for your input & understanding,
  10. kellyamos

    kellyamos New Member

    Tandy, I am so sorry to hear of the pain you are having. I was exactly where you are about 3 years ago. I was dx with Rheumatoid Arthritis in 1999 and Rheumy had me on Vicoden.

    Then in 2005, started having the horrible pain of the onset of FM. This worthless Rheumy would not prescribe anything stronger, so I FIRED him.

    I found a new rheumy AND a Pain Specialist. This Pain doc has been a LIFE SAVER for me. I am still able to work full time and have some sort of a life with the Oxycontin and Percocet for breakthrough pain he prescribes.

    Most docs (rheumy's and even general practitioners) will not prescribe the high doses of narcotic pain meds we need to function. Please do some research to see if there ANY pain Docs in your area that accept Medicaid. There have been many studies done that have proven that pain control has enormous positive affects on our bodies.

    And I feel that these pathetic docs that won't prescribe the narcotics we need to function, are ultimately forcing patients to live a miserable life, because they are afraid of the DEA coming after them. Very sad.

    I have been truly blessed with my pain doc and I hope you can find one that truly cares about your well being as my doc has.

    Please keep us posted and I will say a little prayer that you can find a doc that will help you.


  11. bobbycat

    bobbycat New Member

    As for a nerologistphyscological examine look under some of my post. If the pain is affecting your brain function then maybe he will give you the proper pain treatment. Also give him this web site or take him in some imformation and articles from websites about the use of narcotics to manage pain in FMS patients. Try to give him enough information to try to make him understand that your pain is out of control and that it is causing you not to be able to function and remind there is no CURE. Start asking for accuputure, massage, therapy overpower him with information. Continue to tell him that the meds he is giving are not adequate for pain control and you will end up bedridden. If that does not work you do need to find a Dr that will help you or it will wear you down and it will have a serious affect on other parts of your body and your mind. Bobby
  12. tandy

    tandy New Member

    I'm off for my appointment soon.
    its @ 10 am.
    wish me tons of luck,... as I'll need it.
    If he won't budge,... I'm gonna ask if I can be referred to a pain dr.
    will post back later today with HOPEFULLY good news.
  13. JohnThreeSixteen

    JohnThreeSixteen New Member

    You just have to find the right one for you. I switched and was taking a way lower dose than I should have and the pain was worse than it has ever been. I was totally astounded and scared of that pain. It was bad! But as soon as I increased my dose to what it should have been, the pain went away. Cymbalta has been the best for me, but Lexapro, Citalopram (Celexa), and Minalcipran and Pristiq also worked well.

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