Disability Documentation

Discussion in 'Fibromyalgia Main Forum' started by SolitaryDancer, Sep 1, 2006.

  1. SolitaryDancer

    SolitaryDancer New Member

    OK I have come to the conclusion that obtaining disability is a nightmare.

    I am not on disability but I don't know how much more I can keep going at the pace I am required to go now. So, I would like to know what kind of information and documentation can I start to collect now, just in case.

    Are there records I can keep on my own or what?

    Any info will be helpful.


  2. SolitaryDancer

    SolitaryDancer New Member

    Would an online journal help?

    I have no idea what to save, create or acquire. Let me know what kind of documents you should have to disability.

    thanks so much

  3. SolitaryDancer

    SolitaryDancer New Member

  4. 69mach1

    69mach1 New Member

    go to....so helpful...

    you need medical records ok...and you could do a journal..but go to wesite...they want you to see psychologist specialists...

  5. SolitaryDancer

    SolitaryDancer New Member

    Thanks Jodie. I will check it out.

  6. wordbyrd

    wordbyrd New Member

    In all honesty, is it possible to pursue an SSDI claim if you do not have health insurance? I mean, health insurance that would pay for extensive testing to confirm or support a diagnosis of CFS/FM?

    I've had CFS for 16 years; FM for 11. I have never had a sleep study or a brain MRI or neuropsychological testing.

    When I first became ill, I pushed myself and continued to work part time in my home-based medical transcription business. Dealt with the crashes & treated myself with symptomatic care. My HMO (Kaiser) was worthless - I did get a doc to make the diagnosis - he just didn't have any treatment to offer.

    It was my understanding back then that self-employed people, though they paid into Social Security, were not eligible for SSDI, so I didn't pursue it.

    When I became unable to work a few years ago, I figured it was just tough luck, but then I discovered that I could indeed file for SSDI.

    However, my husband was laid off from his high tech job in early 2005 and we have been uninsured since then. He now has a temporary position (huge pay cut & long expensive commute) so we can't afford the health insurance the temp. firm has offered him. And obviously, I can't qualify for a private insurance policy.

    I pay out-of-pocket for all of my medical expenses, and they are many. Can't afford to pay for testing.

    So, with a very understanding and helpful doctor (God bless her - she's been my primary care doc for the past 11 years now), and a symptom journal that I could put together, would this be enough for me to pursue an SSDI claim?

    Or would I have to have the medical tests (sleep study, brain MRI, psych. testing, tilt table test, blood testing - I'm not sure what kind, specifically) in order to have a fighting chance to qualify for SSDI?

    I'm 51. I also have Type 2 diabetes, on insulin. I've had spinal surgery for cervical spine problems (laminectomy and disk fusion, C5-C6-C7) and a hysterectomy in recent years.

    I just cannot seem to get to a functional level to allow me to work even a few hours a day. So..........

    Feedback appreciated. Thanks!

    [This Message was Edited on 09/01/2006]
    [This Message was Edited on 09/01/2006]
  7. SolitaryDancer

    SolitaryDancer New Member

    Thanks Skeesix. I really appreciate the info.

    Wordbyrd I don't know what to tell you. I hope someone has some info for you.

    Have you talked to talked to an attorney to see what your options are?

    I hope you can find a solution.


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