Disability for CFS/FMS

Discussion in 'Fibromyalgia Main Forum' started by charlottesrock, Jun 23, 2011.

  1. charlottesrock

    charlottesrock New Member

    I have been diagnosed with CFS and Fibromyalgia, and havent been able to work in nearly 4 years now. I was wondering if anyone here has had any luck getting long term disability for CFS/FMS. I am at the final stage now and have a couple weeks till my hearing. If anyone has any tips or info for getting disability, please let me know.
  2. rockgor

    rockgor Well-Known Member

    Have you visited the Disability/Benefits board at this same site? See upper r. hand
    corner. It's not very active, but you can probably find some previous posts
    that are helpful.

    Do you have an attorney? Most posters say that one is essential. If asked a question,
    you need to give specific answers.

    Don't say, "Oh, I can't do that." Say something like, "I can only stand for 3 or 4
    minutes and then I get dizzy and have to lie down."

    "I can cook for myself, but only if I use a microwave. If I use a stove burner or oven,
    I forget they're on and everything burns."

    As you probably know, most applications are denied. People who win do so on appeal, a
    process that generally takes some years.

    Good luck

  3. Mikie

    Mikie Moderator

    Comes before the hearing. My atty. had my docs fill out questionnaires about why I could do no meaningful work. You don't mention an atty. Do you have one?

    In any case, the atty's advice to me before the hearing was to wear something dark and loose and not to fix myself up. The judge needs to see people as they look when they are home sick. My atty. asked the judge if he could take over the questioning and he did. He asked questions designed to get to the heart of the matter. The judge had one last question. He wondered why I couldn't just sit all day in a receptionist job. I told him there would be no place to lie down when I felt that I had to, as I often did. That did it.

    If you have a good atty., he or she will help guide you through the hearing. If not, just be honest and let the judge see that there is nothing your condition will allow you to do. SS is only interested in your illness to the extent that it keeps you from being able to work. Just being in pain isn't enough. Having to take pain meds keeps one from working. Brain fog keeps one from being able to even take messages. Fatigue keeps one from being able to do anything without lying down, etc. Tie your symptoms into how they affect you and what you can do.

    Best of luck to you.

    Love, Mikie
  4. charlottesrock

    charlottesrock New Member

    Thanks for the opinions. I do have an attorney, and I had my primary doctor and my CFS specialist fill out the functional reports. But I dont really consult with my attorney about stragedy until the day before the hearing over the phone. Just want to prepare myself as best I can.
  5. Mikie

    Mikie Moderator

    How the hearing goes for you. Again, best of luck to you.

    Love, Mikie