disability living allowance consultation. send this letter to politicians

Discussion in 'Fibromyalgia Main Forum' started by simpsons, Mar 4, 2011.

  1. simpsons

    simpsons Member


    in association with the 25 per cent group in the uk this response above has been sent to the consultation regarding the changes in disability living allowance which they have presented on behalf of the most severe patients, below is the letter that can be sent in by patients

    stirling work by stonebird greg and linda crowhurst and 25 per cent group

    http://www.stonebird.co.uk/ is the main web page and well worth following for further campaigns

    The 25% Severe ME Group and Stonebird
    Neither Reasonable Nor Fair :
    Response to Consultation on replacing Disability Living Allowance (DLA) with a Personal Independence Payment (PIP), on behalf of people with Severe ME.


    25% Severe ME Group and Stonebird

    Introduction :

    In December, the Government launched a consultation on replacing Disability Living Allowance (DLA) with a Personal Independence Payment (PIP) which will have a new method for assessment, including 'independent medical assessment' and more reviews of claimants.

    Disability Living Allowance is essential for people with Severe ME as it provides tax-free financial support for care or mobility needs – it is not related to an ability to work.

    The closing date for the Consultation is Friday 18th February . It is crucial that the voice of the Severely Affected be heard by the DWP and the Government. We have created a form letter and if you are in agreement please feel free to send this or your own response to the DWP and a copy to your MP :, before Monday 14th February.

    the consultation is closed now but you can still send a copy to your mp

    You can send this letter by post and or by email as follows :

    DLA Reform Team
    1st Floor
    Caxton House
    Tothill Street
    SW1H 9NA
    Email: consultation.dlareform@dwp.gsi.gov.uk

    Please also send a copy to your MP (you can email them by entering your postcode into www.writetothem.com).

    The full consultation can be found here :


    Dear DLA Reform Team,


    I have severe Myalgic Encephalomyelitis (ME), a neurological disease that affects multiple systems of the body, and I am severely disabled. There is no known cure for my disease. Severe ME brings profound cognitive problems as well as functional disabilities, severe ongoing malaise that is amplified on even minor exertion, and many other complex symptoms that can make life a torment.

    Disability Living Allowance (DLA) is an essential payment that people with severe ME rely upon to help meet their care and mobility needs. There are no compelling grounds to abolish it. The suggestion that the DWP can justifiably slash the welfare budget under the banner of replacing DLA with a system of ‘Personal Independence Payments’ (PIP) that is ‘simpler’ and ‘fairer’ is fundamentally flawed and disingenuous. It would appear that many people who face additional costs of living as a result of having a long term disabling disorder will no longer qualify for help when DLA is replaced with PIP. The predictable impact of the PIP system on people with prolonged ill health and disabilities will be enormously detrimental and unacceptable.
    There are also potential adverse knock on consequences. If a person loses their benefits under PIP, then their carer may loose Carer's Allowance, then making it impossible to pay basic bills and to carry on caring.

    The administrative costs of replacing DLA with the new system will be hugely expensive and a poor use of taxpayer’s money.

    The Ministerial foreword to the consultation paper states: “We are steadfast in our support for the principles of DLA, as a non-means-tested cash benefit contributing to the cash costs incurred by disabled people.” If this support is to progress beyond lip service then the government require to radically rethink their legislative plans for a new system.
    I ask you not to abandon the Disability Living Allowance and replace it with Personal Independence Payment. The government’s plans amount to the introduction of an inferior, unreasonable and unfair system. The introduction of PIP may act to reduce the budget deficit but unlike DLA it will not meet the needs of people who are chronically sick or disabled.

    Yours sincerely,