Disappointing Doctor Visit

Discussion in 'Fibromyalgia Main Forum' started by SusanEU, Feb 1, 2007.

  1. SusanEU

    SusanEU New Member

    Well, I have a new family dr out where I live cause mine is all the way in Toronto and it is just too difficult to get to her.

    Just got back from seeing her. Well, she said Fibromyalgia is not a real diagnosis. NOT A REAL DIAGNOSIS!!!! I sat there and nodded and part of me thought are you frigging kidding me?

    She wants to test me for rheumatoid arthritris which I am sure I don't have. At least she is sending me to the sleep clinic (at my suggestion). Then she gave me antiflammatories. I think she was a little ticked I didn't keep taking the Elavil and said the sleep dr would probably give me that anyway.

    Plus she is the sourest woman I have ever met.

    Drs are scarce out here and you can't just go from one to the other.

    I guess all I can do is educate myself and use her for refills and referrals and try and get into the city to see my "good" doctor.

    Oh I feel so much worse now than before I went.


    Sue in Ontario
  2. fungirl2100

    fungirl2100 New Member


    Sorry about the troubles you are having. Wouldn't you love to give that doctor one week of what you got? Let that doctor deal with the pain it causes you & around you that are worried for you.

    With you being in Canada & me being in the States, I am not sure what I could do to help you in the doc dept. I would suggest a search engines for pain management docs in Canada.

    You may want to see what others in Canada are doing or how to go about finding a good pain clinic out your way.

    Best of luck to you.

  3. NyroFan

    NyroFan New Member


    If I were you, I would take a trip to the city. I mean: why suffer if you do not have to. Maybe some of your symptoms can be decreased by taking that trip.

    Although, maybe you are right by at least trying this docs appoach. If it does not help then you know it may be time to try the other doctor.

    Just get plenty of rest, too.

  4. dononagin

    dononagin New Member

    Welcome to the club!

    I had one doctor actually tell me "Well, ya look like a healthy girl to me!"


    I had another tell me that CFS/fibro wasn't a diagnosis. BUT the great thing was he sent me to a rhumie ( my RA Factor is just slightly high). The rhumie said that basically CFS/FIBRO isn't a diagnosis in the normal sense of saying you have cancer or diabetis.. something you can prove with a test. In other words, it is not a disease, but a collection of symptoms that create a syndrome that is very, very real.

    I know it was such a relief to be acknowledged! Now the wonderful thing my rhumie did though was to educate my primary doctor. He sent him all kinds of literature etc. and I've never been treated with a lack of compassion or understanding since. Basically Sue, that's what I do, I use my primary for refills and go to our big city to see my rhumie for yearly checks.

    Some doctors shouldn't be in the business..

  5. spacee

    spacee Member

    Where I used to live, a pharmacist told me to not keep changing docs because they would blackball you. So I did what you mentioned. Just let them keep referring me to some specialist cause they didn't know what to do.

    That is so pathetic. I will say though that it is really this site and the CFIDS Journal (I have CFS and FM) that has helped me. I read about what helps others and then I try it. Never more than one thing at a time.

    It has been trial and error but it has paid off.

    Hugs to you! I hope you find relief.

  6. Cindyvr

    Cindyvr New Member

    Hugs to you and a swift kick for the Dr.

    I ad a pain management Dr that sent me to my Rheumy..Rheumy said Fibro.
    Went back to pain management for the next appt. He said with a smirk...No such thing as Fibro..You are just fat.
    Loose weight and all your pain will gop away..

    I actually bawled when I got in my car!!I called Rheumy and asked to be referred to another pain Dr.
    Best thing I ever did.
  7. SusanEU

    SusanEU New Member

    I understand what you mean ,but she's not as helpful as that. She was actually pretty miserable.

    She really just said fibro is debatable and likely a combo of depression and anxiety and sometimes that causes pain. And when I told her my fingers hurt (like so sore it is painful to take clothes out of the dryer), she just shrugged her shoulders and said well that's what happens when you work on the computer.

    But, thanks to the support of my friends on the board, I am educated enough to know what to ask for.

    Thanks for the input,
    Sue in Ontario

  8. roge

    roge Member

    dx is "debatable"

    tell her to check the world health org and why does govt and other insurers pay $$ for disability for these conditions. They wouldnt be if they were debatable as they were 10-15 yrs ago. But with more research very clear abnormalities shown in spect scans and much more. There is no debate.

    "the pain is most likley caused by depression and anxiety". ya i guess that explains how a top athlete in his day (now 36) has problems walking on some days. and when after trying to use the muscle, they hurt after. But yes of course, it is my mind and "mood" that is causing my muscles to spasm and jerk and be in pain. How could I and everybody else be all so blind.

    what a joke. that Dr. needs a good swift boot in the you know where.
  9. LongStruggle

    LongStruggle Guest

    I'm wondering if the best thing to do with primary care providers is to find one who is open to learning and than bring them the research so they can learn more.
  10. Lendy5

    Lendy5 New Member

    Hi Sue - This sounds just like my first pain management visit last week. I felt really good about the appointment at first and the RN ranted and raved on how wonderful this doctor was. Yeah right she was a joke and was only a Nurse Practitioner.

    She came in and asked was I working and I replied no and said oh you are receiving disability and I replied no but I hope to in the future if I continue to go downward. She was setting me up the whole time because the next thing she said was "I hate Fibromyalgia patients" and I gasped! please don't hate me. She said oh no not you just fibro because fibro patients are hard headed and don't want to better themselves or try anything different. She then said I will help more patients that try to work then anyone that doesn't try and I treat many fibro patients that do work.

    She did prescribe my daily pain med but recommended I talk to a counselor and told me to start making a decision to get better with exercise! I was thinking to myself looks like my search is not over.

    I could go on and on about her but she isn't worth my time.

    Good luck Sue and I hope you find a better doctor. Keep us posted when you can :0)
  11. SusanEU

    SusanEU New Member

    That is absolutely horrible!! These are the people who are supposed to take of us and hand out compassion, not judgement.

    I know I could not go out to work (fortunately I work from home), but I know some people just think I am lazy.

    Oh, I wish the non-believers could walk a mile in our shoes at least for a short time.

    Sue in Ontario
  12. Andrew111

    Andrew111 Member

    >>I had one doctor actually tell me "Well, ya look like a healthy girl to me!"<<

    I've run into this kind of thing too. I was seeing an acupuncturist and during one visit I told her I was not feeling better. But she kept saying things like "But you look better," and not accepting what I said. Later that week I remembered I had gotten a hair cut a few days before the visit. So, yes, I'm sure I did look better. But what does that have to do with how I feel.
  13. SusanEU

    SusanEU New Member

    What a relief to be validated by you guys!

    I just called my neighbour, who has many of the same symptoms as me (and is on disability as she is legally blind).

    She also saw this new doctor last week for a physical; and asked her about fibromyalgia and the dr brushed her off saying "oh, there is no such thing".

    Oh, I hope I can find someone else. I wrote to the fibro support group in my area and I'm hoping for a referral.

    Sue in ONtario
  14. ephemera

    ephemera New Member

    fm-cfs with the Canadian (.ca) afterwards should be of helpful info to you & maybe be a good resource.

    best wishes & phooey on that so-called doctor!!!
  15. jingles689

    jingles689 New Member

    I encountered a doctor such as she and all it got me was wasted time and alot of unnecessary pain....please look for another Dr if possible.
  16. Lendy5

    Lendy5 New Member

    I have had it with these non-believing doctors. I mean we are the ones that pay them and I feel they should "want" to do whatever it takes to improve our quality of life.

    It just makes it tougher on us when they do this because we have no choice but to keep searching for a doctor and if you upset one look out because they will blackball you in a flat second. It's crazy isn't it?

    Sorry I haven't been online to see your reply until today :)

    Sending gentle hugs ((((())))) to you and your neighbor.


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