I don't mean to whine and apologize if it comes across that way, but I am so saddened by what I hoped might lend some sort of idea to what has been happening to me this last year with more exacerbation. My insurance recommended that I go over to this large facility and I saw all kinds of different docs and specialties. Well I finally a month later got a report of their initial assessment in the mail. The one doc that I thought was very thorough and believed there was something going on, even said he thought I might have small-fiber neuropathy, has put in this report even with all his colleagues findings and all the records I took out there that he is suspicious for Briquet's, which is somatization. I have never been as depressed as I am right now. I have had this disease since 1995 and have had my EBV going up and down and my sed rate going up and down and positive tilt table, positive ear infections this last year, positive inner ear testing. I have another acquaintance who told me that they are trying to place that diagnosis on folks now with fibro, CFS, MS, Gulf War, etc., under the DMS diagnoses. I am just so saddened by this. This doctor wants me to go back out there for more autonomic and peripheral nerve system testing, but if it's negative, even though I have positive tilt and have seen Dr. Grubb locally with a positive tilt and seen them for years, he will then suggest that it is all in my head. This because with our illness we have many symptoms all at once. I am going to talk to my regular doctor about this, but I just feel so lost and hopeless right now. I feel like bursting into tears. I have been so sick and in such a flare that like the one gal posting on here now got really bad after getting 2 vaccines at once last fall and it totally set off my immune system. I have had repeated ear infections and sinus issues and been so sick and ill it's not fun. I just feel like giving up. I know some of you have gone through this as well, but it's just so disappointing to be treated that way. This guy doesn't even know me and I have years of positive findings and his colleagues found things, so how can he even suggest such a thing. I thought this people would be more educated about our condition, but I guess not. This is so sad and it's sad what they are trying to classify our conditions under. If any of you have experienced this, please respond and let me know, as I would love to hear how you dealt with this. I just refuse to accept that kind of diagnosis since I know it's not true. I'm so, so disappointed!!!