Dizzy head, How do you get rid of it.

Discussion in 'Fibromyalgia Main Forum' started by Shazzy, Jun 7, 2003.

  1. Shazzy

    Shazzy New Member

    Hi all,

    I want to hear from those who suffer dizziness.

    Its always been a big problem for me. It comes with fatigue and sets of anxiety which just makes it worse.

    Im told its not vertigo as the room doesnt go round.
    I feel like i am going to faint all the time.

    Infact my whole head seems a problem. Brain feels like its being squeezed and shaken.
    Ears feel like they are blocked and hiss quite alot.
    Vision is very blurred.

    Anybody with these problems and what you do about them.

    Thanks
    shazzy
  2. elaine_p

    elaine_p New Member

    I found my dizziness greatly reduced when I started drinking lots of water. I had to force myself at first, but now I crave it and drink about a gallon a day (some of that's coffee).

    (Don't know if I'm doing this right, since I've only been on these boards a week. Maybe I should refer to the thread where different meds were talked about.)
  3. Ishy75

    Ishy75 New Member

    I have the same problem Shazzy as I've written before and am still trying to figure out a way to get rid of it or lessen it as that is what keeps me down for the most of the day. The doctor had me try a few things for dizziness including Dramamine (like hello, it's not vertigo or motion sickness) and a few other prescription meds but none of it helped. I've done and still do the whole water thing. That doesn't help either. Hopefully somebody will have some suggestions for us. Lessening that would give me a little bit of my life back. I know this didn't help but at least you know somebody is rowing in the same boat with you. :eek:) Big Hugssssss.

    Ishy
  4. goingslowlycrazy

    goingslowlycrazy New Member

    I have suffered every day with dizziness and feeling off-balance. It was my first symptom, two and a half years ago.

    I find that gingkgo biloba definitely helps it, as I had to stop taking it for a week, prior to ENT balance tests, and it was much, much worse without the ginkgo.

    However, I think I am taking too high a dose. I take 400mg each morning on waking, but I am going to order a lower dose next time.

    If you would like the addy of the UK site that I order mine from (which is MUCH cheaper than buying it in chemists) please email me (addy in my bio) and I will send you the URL.

    I also have the horrid full feeling in my ears - but I just have to live with that, or so I was told by the ENT specialist...but he was a bit of a jerk - so I am interested to see if anyone has a solution for that.

    I also have a really irritating twitch in my lower left eyelid which has been going on for days. It is only just visible to others - but is driving me bonkers! Again, no 'cure' that I know of.

    Just wanted you to know that you are not alone,
    hugs
    Mary x
  5. Princessraye

    Princessraye New Member

    I have heard that can cause it. It can also make you sick to your stomach.
  6. AC77

    AC77 New Member

    Sounds weird and scary! I wont lecture you to see a neurologist, but if you feel its nessasary. Phenergan may help. 12.5mgs may help. Wishes
  7. tansy

    tansy New Member

    I still have problems with mine but water and sea salt help. Am using sub-lingual methylcolbalamin and my head symptoms have gradually got a bit better. Took that after I learned about "neurotoxins" and this is supposed to detoxify. Ginko was a disaster for me, even the prolonged release ones, but I've known others like Mary to benefit.

    For Goingslowlycrazy

    Hi Mary

    I've had that twitching too, mine became noticable following a "traumatic lumbar puncture". Haven't got to the root of it yet but sure it's connected to what the eye specialist found - back of eye jiggling around all the time.
    When I find out what it is I'll let you know. I'm hoping this will settle on it's own if I can get the hypercoagulation/chronic infection problems sorted. I actually have one side that's slow and one that's a bit hyper, the hyper is the same side as my dodgy eye.

    Cheers

    Tansy
  8. teller7

    teller7 New Member

    I have the same dizzy problem. I do drink lots and lots of water. It helps a little, but doesn't take it away by any means. Most of the time when I get the dizzy problem then I get a spell and don't walk right. Does anyone have this problem? Man, I walk like I'm crippled when that happens. Also, me head does feel the same way and my ears, so you're not alone dear.
    Carol
  9. Judi

    Judi New Member

    Hi, Shazzy.
    This is a problem I suffer from a neck injury, along with FM. Like the one person said though it can be an ear infection also. By the time I usually go to my family Dr. the infection is more than an ear infection. When I live with things like this most days sometimes we just try to over look problems other that the DD, I also drink A LOT of water, I also have sleep apena also, I didn`t pay attention to see if these signs got worse, but I can tell you I started passing out or going to sleep driving even just a couple of miles & was always dizzy before hand, so this probably should be checked out.
    God Bless You,
    Judi
  10. ladybird1

    ladybird1 New Member

    For the past month I have had more significant dizziness, headache and nausea. Don't why. I usually drink water and
    lie down for a while. Sometimes it helps; sometimes not.
    Ultram, acetaminophen etc haven't helped much.
    Sorry I can't be of much help. Just want you to know you're not alone.
  11. Mumu

    Mumu New Member

    I had the dizziness really bad until I started working hard at controlling yeast. I take Diflucan, one tablet every month or two, as needed, plus acidophilus, and I avoid taking antibiotics whenver possible. I finally found a dentist who would let me sign something so I don't have to take amoxicillin before every visit (I have mitral valve prolapse, and an antibiotic is usually required.) Whenever I start feeling that itching and moist feeling in my ears, I know the yeast is trying to come back, so I attack it again. The dizziness is not a problem anymore.
  12. Dayle

    Dayle New Member

    Vertigo should be my name...I have had alot of relief as I have stayed on my LOW-CARB DIET. I HAVE LOW BLOOD PRESSURE. 103/69 I believe that causes a problem too.
    I hope you try the diet it may help.
    Blessings,,,Dayle
  13. Dara

    Dara New Member

    for the last couple of days I've been so dizzy, can't drive, and feel very unsteady. I feel like if I can hold my head still, without turning my neck, it's not as bad. I also feel like I've got pressure coming from the back of my head and neck area. In fact, this dizziness is what it finally took to make me quit my job back in 2001. I just couldn't take it anymore. I feel like I have to walk very slowly or things seem to jump or bounce around. Also, keeping my eyes closed as much as possible helps me. Other than that, when I had it before it just gradually got better, I sure don't know what made it kick in the last two days though.

    Dara
  14. Shazzy

    Shazzy New Member

    Hi Folks,

    Thanks for replys on this dizziness problem.

    Not much to go on to help apart from water and sea sat and maybe BG

    Its is more disabling than the fatigue itself dont you think.

    Shazzy

  15. givemethebrain

    givemethebrain New Member

    Hi all,
    I too have had the same problem..I was diagnosed with labrynthitis..nausea,emotionalproblems..went to a pa..his test was simple..laid me back on the table.told me to pick one spot on the ceiling, he then turned my head back and forth ..i focused on the ceiling,,after 3 times of the side to side movement with my head..I came up off the table nauseous and literally roaring at the intense feeling ..he kinda giggled and said..you have a deep inner ear problem, said he had the meds for me,,meclazine astrong antihistamine.in 3 days it was gone! figure youll have to take time off work..get a dr note that it is not safe to drive.
    it seems to run in my family..look it up on the net..it may reoccur down the line but at least you know what it is.
    its worth a try.my mom has the same symptoms.and told her to see this doc..I have found pa's are more willing to help and listen to us .
    please try . it got meback to work!
    namaste
    J.
    ps with fibro there will be eye jiggling..there are muscles that are in spasm
    hope that helps..im just one of those who has to find the answers..and my PA's are wiser than the docs:)[This Message was Edited on 06/09/2003]
  16. Sweetmia

    Sweetmia New Member

    Shazzy- I agree, the dizziness and feeling off balance was the most distressing symptom. I cannot emphasize enough that my dizziness, ringing in the ears and pain behind my ears left me as soon as I started on Strattera. My blood pressure also increased--it was low. Low BP can cause these problems. I had tried every natural means of increasing my blood pressure i.e. licorice, increasing fluids to no avail.
    Have your doctor try Strattera--it has helped me tremendously-it is worth a try. Amy
  17. mrs1349

    mrs1349 New Member

    you may want to look up MAV (migraine associated vertigo), I have this and was told that fibromyalgia can cause this also.......

    The symptoms you mentioned seem to fit this.....

    Kim
  18. jslady

    jslady New Member

    helped me. I wasn't actually dizzy where the room spun, nor did I feel I was moving. I was just lightheaded to the
    point of being dizzy and nauseated. Dr. had me try several
    pills that didn't help. She sent me to PT where they gave me several easy exercises to do daily that worked for me.
    I went 3 times a week for a month and I haven't had any
    more problems. Sometimes I think we expect too much from a pill. Jslady
  19. ssMarilyn

    ssMarilyn New Member

    Sounds like you might have some low blood pressure going on. Get yourself a cuff from the drugstore and check it on a regular basis at home. Be sure you've been resting for awhile before you take your bp. A couple of years ago, my bp was continually at 85/55, and I always felt so faint. Now it's right around 110/65. If your bp is really low, you need to see a doctor because you might have hypotension. My daughter gets real low bp and almost passes out if she doesn't drink enough water, so now she carries a bottle with her wherever she goes.

    Marilyn :)