do I need to see a rheumatologist?

Discussion in 'Fibromyalgia Main Forum' started by Jenni-2, Dec 17, 2005.

  1. Jenni-2

    Jenni-2 New Member

    Hi all, I am newly diagnosed with fibromyalgia by a family dr. I have had this for several years but it just kept getting worse and worse. I was diagnosed one month before I found out I was pregnant with my second child. I was taking muscle relaxers and an antidepressant and it really helped. I cannot take either of those meds now that I am pregnant. My question is, should I be going to a rheumatologist or any other specialist? I am in terrible pain tonight. I am aching from head to toe! I have burning and tingling shooting up my arms as well. I went to the grocery store yesterday and could hardly push my grocery cart because my arms were so weak and hurting. I also feel like people that know me, think I am being lazy and making it up. I am constantly exhausted. I have a 3 year old child and a stay at home mom. I don't tell people how bad I really feel because I feel as if they just don't understand or just don't believe me. Is that how any of you feel? I want to know what I need to do after I have my baby to help get through this pain and exhaustion. I guess what I mean is what doctor should I be seeing about my fibromyalgia. I also think, but I have not been diagnosed with chronic fatigue as well. People have been dismissing my tiredness to taking care of a toddler, but it as if every ounce of energy has been zapped from my body. I know it cannot be normal. If anyone could reply I would greatly appreciate it. I would love to talk to someone who really understands how dibilitating this can be. Thanks so much!
  2. Lolalee

    Lolalee New Member

    I cannot imagine being pregnant and having a toddler and also having FMS/CFIDS. Yes, it might help to see a specialist, but be careful. Not all Rheumatologists are knowledgeable or sympathetic. Do some research on doctors in your area and only see one who is familiar with these illnesses. You may not be able to take meds while you are pregnant to help with your symptoms, but I would advise you to get help from friends/family if you can. You need to rest as much as possible. Overdoing it and exposing yourself to too much stress will make your symptoms worse. There is great information on the web re our symptoms. Start educating your family and friends now. Also, you might have to lose some of those people who don't/won't accept that you are ill. The people who truly care about you will stand by you.

    It's taken me 8 years to realize that I can't push through this illness. It makes me worse to pretend that I am well and push myself.

    Blessings to you.
  3. justlooking

    justlooking New Member

    When I was pregnant I was allowed to take some pain meds for my pain. Talk to the Dr who treats your FM and ask them to talk to your OB/Gyn. Because you have a Dr who currently treats you and believes in FM, he can discuss this with your OB/Gyn who may or may not know anything about the treatment of FM.


    Good luck and Congrats on your pregnancy.

    Sincerely
    JL
  4. cczub

    cczub New Member

    I know what you are going though. I'm a 27yo male with a 6 year old at home. I work a full time job as does my wife and it's horrible for me. I'm actually at work taoday sealing the new kitchen floor. I have such a big to do list at home that just keeps getting things added to it. I was supposed to clean and finish the basment today to get ready for new years... That's not getting done.

    When I get home from work everyday I go right to my room to lay down. I have almost no energy and what little I have gets zapped at work. Alot of people don't understand that I could be this tired and think I'm just being lazy. It's tough. My family understand but alot of my friends just don't get it. Even my brother doesn't get it sometimes as he bugs me to go fishing with him.. I love fishing but just can't do it now.

    Just hang in there the best you can and when you have down time(even the little you have taking care of a 3yo), use it to your advantage. Try to at least lay down and relax when you get it....

    As for a rhummy... I'm 50/50..If your PCP is doing a good job managing your pain/fatigue stay with him. My PCP is horrible... He just doesn't get it either and I just saw my rhummy 2 weeks ago. He's running 2 more test before he will diagnos me with Fibro... I"m not sure I like his medication choices in the bewtween period while waiting for the tests but we'll see what happens when the results come in and see if he treats me with other meds..

    How is your sleep?? Mine is horrible and that's what I link alto of my pain/fatigue to...
  5. Jenni-2

    Jenni-2 New Member

    Thanks to everyone for the replies, I actually got tears in my eyes to see that people are being so nice and supportive. It helps to see other people like me! As for my sleep, it is horrible! I think lack of sleep has sooo much to do with it too! I am only 28 and I feel like I am 98! I have always woken up all through the night. I have lots of crazy dreams that disturb my sleep as well. I will wake up and have to turn over because of aches and pains if I lie in one position to long. I do have to say that the muscle relaxers did wonders for my sleep. I sleep comfortably through the whole night and woke up refreshed. Something I have not experience since I can't remember when. I only got to take them for about 3 weeks because of my pregnancy. I remember I told anyone that listened that it was the best I had ever felt in my life when I was taking them. The aches and pains were almost completely gone but if I over did it, I would get achey by the end of the day, but I could manage it. I don't know if muscle relaxers are something you can take forever though. I doesn't seem to sound to healthy to take them everynight for the rest of my life. I don't know, I will find out. Thanks again for the replies! Everyone take care!