Do lights bother you?

Discussion in 'Fibromyalgia Main Forum' started by EllenComstock, Dec 10, 2002.

  1. EllenComstock

    EllenComstock New Member

    In my reading I have read that fibromyalgia makes us more sensitive to sounds and lights (among other things). Now I know why I hate going shopping. I feel stressed out when I have to go and can't wait to get away from the noise and so many people. Now I am finding that driving at night really bothers me. Yesterday after work I had to go to my FM specialist in Monroe (an hour from work and 45 minutes from home). The glare of the oncoming headlights really bother me. I focus to the right so I am not looking directly at them, but it looks to me like everyone has their brights on. I'm sure they don't, it's just me. Anyone else bothered by this?

    Ellen
  2. EllenComstock

    EllenComstock New Member

    In my reading I have read that fibromyalgia makes us more sensitive to sounds and lights (among other things). Now I know why I hate going shopping. I feel stressed out when I have to go and can't wait to get away from the noise and so many people. Now I am finding that driving at night really bothers me. Yesterday after work I had to go to my FM specialist in Monroe (an hour from work and 45 minutes from home). The glare of the oncoming headlights really bother me. I focus to the right so I am not looking directly at them, but it looks to me like everyone has their brights on. I'm sure they don't, it's just me. Anyone else bothered by this?

    Ellen
  3. kadywill

    kadywill New Member

    this is a big problem for me and my husband....he seems to have autoimmune issues as well; he has Graves' Disease; his father has Myasthenia Gravis; my daughter has symptoms; my mother had lots of autoimmune sx. as did my father. So, the answer is a resounding "YES" and we have to keep the lights low and the blinds drawn on a bright day. We always wear sunglasses outside. We have no fluorescent lighting~~this really bothers me and none of our bulbs are stronger than 60....who really knows what I look like with my make-up on because I can hardly see when I'm applying it!! LOL
    Kady
  4. 1Writer

    1Writer New Member

    I have the same problem...check out my post on Flickering eyesight...got a lot of interesting responses. I have problems w/normal lighting, too. I never open my mini-blinds during the bright sunlit days and never use over 60 wt. bulbs. Gotta have DARK sunglasses when I drive and I have terrible night blindness and the glare from on-coming car headlights is really a problem. I turn my rearview mirrors down at night so the car headlights behind me won't shine in my eyes...that's been a problem for me for years...long before dx of CFS.
    1Writer
  5. TaniaF

    TaniaF Member

    Mostly flourescent lights--can't stand the flicker or the noise. Drives me nuts!!!!
    I must be really sensitive--but when I go shopping I feel spacy walking down the isles of a store--must be the lighting. I just want to run outside.
    Tania
  6. Vette

    Vette New Member

    Ellen, I have a problem with dim lighting like that in resturaunts, I get anxious and just plain ole' don't feel right, hard to explain. I feel depressed if I am not in good light as with the winter cloudiness in Texas, I cringe at the thought of even our short winters here on the north-east side of this state. Night driving was a problem for me, but due to cognitive difficulties I have only driven up to a mile a few times over the past year + since I use to work. Very sensitive to smells also, can't stand to go near the lumber department in the building supply stores since FM attacked me.

    Vette

  7. DeeMerrk

    DeeMerrk New Member

    This is a big time thing for me. I am definitely sensitive to every stimulus. Lights, sounds,(hate shopping, crowds, music in stores)tactile: can only wear clothes that "give",textures of foods, heat, humidity and cold. I like everything PERFECT.(for me) I have to wear tinted glasses, sunglasses when I go out. I love to see the snow, but can't stand the glare. Everything everyone says is on my list.

    Dee
  8. mightyslo

    mightyslo New Member

    Can't type well today as my hands have been hurting since I got up but I have always had real problems driving with night halos and headlight glare.In one of those gadgets magazines I found these yellow glasses for a long trip my child was taking. She had the eye surgery correction and has had bad halos in headlight glare ever since.

    Her friends laughed when they saw them but 100 miles into the trip everyone who drove was borrowing them and then they were all trying to find them to buy in the towns they drove thru. They couldnt even find them in the truckstops but they really worked. I drive as little as possible for the same reasons as you but if these goggles help then at least I have something I can use. The worst for me is the trucks or SUV beams. You can get these glasses in that new 'gadget' magazine and maybe other places. Under$10.
  9. LisaMay

    LisaMay New Member

    I have it bad! I hate shopping AND driving. I can't stand to be around too many people at once; the noise level is unbearable. My best friend is normally loud-spoken and I have to remind her to lighten up when around me. In addtion to this, I have headaches, shooting pains in my skull, and constant dizziness. I just got glasses that have "transitions" in the lenses(goes dark as the light increases and reverse for light into dark), but I still need clip-on shades because it's not dark enough.

    I wish it would all go away. Hugs, Lisa

  10. karen55

    karen55 New Member

    to lights, especially car headlights at night and glare from sun and indoor lighting. I keep the blinds closed in the windows near my desk at work because the glare bothers me so much. The brightness of the fluorescent lighting in my office bothers me too. I always dim my monitor because the brightness bothers me. And driving at night in the rain - forget it! I have enough trouble with headlights when the road is dry; when all those lights are reflected I cannot see at all.
  11. Annette2

    Annette2 New Member

    I have the same exact problem. I can't drive at night very well. The headlights really bother me. When I'd complain to my husband that someone's brights were on, he'd say, no, they're just regular lights. To me they are extremely bright! I also have to look away. I also have to drive with the visor down, even if the sun isn't shining. And extreme noise also bothers me. It seems as if I hear voices louder than they really are. Just one other wonderful symptom we seem to have. YUK!!!!
  12. EllenComstock

    EllenComstock New Member

    I can see that I'm not alone with this problem. Yes, I, too especially hate driving at night when it's raining. My visibility is really bad. Fortunately I don't have to drive at night too often. I would be interested in getting those yellow glasses that mightyslo talked about. I think I will post a message to her asking exactly where to get them. What is "gadget" magazine? Is gadget the actual name of it?

    Ellen
  13. kay

    kay New Member

    Lights, noise, etc. I really prefer not to drive at dusk and night. I ge terrible eye aches and headaches. When we take long trips and are traveling at night, I have to wear my yellow glasses or my dark ones also.I have to pull my blinds everyday even when bright and sunny though!! Gotta have that sun shine come in. Its like now, here I am driving in the day with sun glasses on. Its gloomy, and raining out but I just cant stand the glare. Yes and floresent (SP) lighting, forget it. It kills my eyes. In a store, by the time I come out, my eyes look like road maps, they are soooo red and hurt. The yellow glasses you can get at a mall even. The first pair I got was when I lived in Fairbanks Ak. because the glare from the snow was so blinding. They really help, and they are great for night time glare. I never drove at night with them on. Only if someone else is driving, so you all be careful!! Linda
  14. Mikie

    Mikie Moderator

    This is why I carry Klonopin tablets quartered in my purse. I can slip one under my tongue and it immediately helps. I have sworn off Wal-Mart til after the holidays and will not shop in crowded, noisy, harshly lit stores.

    It's our sensory overload which produces this problem. Many of us also suffer from sensitivity to touch and smell. My idea of hell is being stuffed in a hot room full of people wearing naseating perfume, rubbing up against me, as an acid rock band plays to the rhythm of laser lights.

    Love, Mikie
  15. 1Writer

    1Writer New Member

    Thanks for the tip on the yellow glasses...will have to hunt them down, although, I don't do much night driving anymore...only if I have to.
    Thanx!
    1Writer
  16. alsu

    alsu New Member

    It seems a common problem.I will be looking out for those yellow glasses.Do any of you think that age also adds to this problem.I'm 54 and have noticed poor night vision more over the last few years.It would be nice to hear from a younger sufferer on this.Untill i get hold of the glasses i will try out the tips given on this thread.As i live in the U.K i'll have to remember to look to the left not the right as surgested by Ellen.

    alsu
  17. achy

    achy New Member

    One reason i had to quit working was not being ablke to drive.
    The worst was early in the am...driving thru the shadows the trees along the road made. In and out of the bright light so fast made my head spin...I felt like I was on an acid trip or something...I have always had a problem at night...But then again, just a truck passing me makes me shiver and panic...don't know why...the noise i guess.
    I am sensitive to everythings as many of you said.
    I love walmart, but can't handle it many days. Too many people, too much noise, and the smells...Why do ppl have to wear so much perfume?? Oh yeah..the sounds the cash registers make littereally make me cringe.
    but, what ya gunna do, become a house hermit? that's not healthy either....
    Warm fuzzies
    Achy
  18. painin

    painin New Member

    Oh the light! And the noise!! And my husband is hard of hearing so he likes to blast the TV. We are constantly in battle of turning it up and turning it down. My smeller is not what it used to be either. Sometimes when I smell food cooking, by the time it is ready to eat, I just can't eat it after smelling it. And that goes for things that I love to eat too! Oh well, I usually can't taste it anyway!!

    [This Message was Edited on 12/12/2002]
  19. AnnG

    AnnG New Member

    Wow, just when I think I am weird and all alone, you all come through with the same symptoms! Its very comforting.

    I have pretty much given up night driving. I live outside of a small town called Duvall. I have to drive 10 miles of pitch black, unlit country roads to get to my house FROM the tiny town itself! The shock of headlights after being in the darkness is too much.

    I always have a feeling of anxiety when I am in a mall. I hate those movies/TV ads that flash from one image to the next! I usually just close my eyes and wait until its over.

    I know that flashing lights can trigger an epileptic seizure, any connection?
  20. nova

    nova New Member

    especially flourescent and mercury vapor!