Do you have migraines diagnosed? Read this

Discussion in 'Fibromyalgia Main Forum' started by lenasvn, Nov 4, 2006.

  1. lenasvn

    lenasvn New Member

    From M.A.G.N.U.M.
    http://www.migraines.org/treatment/treatStatusMx.htm

    the following:

    Status Migrainous (Migrainousus) is a debilitating Migraine attack lasting for more than 72 hours. If moderate to severe Migraine pain lasts more than 72 hours, with less than a solid four-hour pain-free period, while awake, it should be considered an emergency requiring an office call or a trip to the emergency room...

    From migraines.about.com
    http://headaches.about.com/od/migrainedisease/a/what_status_mx.htm

    the following:

    Extended Migraines should not be ignored...
    What is status Migrainous (also spelled Migrainousus)?
    Migraine has now been shown to be a genetic neurological disease characterized by flare-ups often called "Migraine attacks." A headache can be one symptom of a Migraine attack, but it's just that -- one of the possible symptoms. Some Migraineurs (people with Migraine disease) have Migraine attacks without having a headache.

    When a Migrainuer does experience the headache phase of a Migraine attack, it generally lasts from 4 to 72 hours (untreated or unsuccessfully treated). The International Headache Society's International Classification of Headache Disorders, 2nd Edition, defines status Migrainous as:


    Description: A debilitating Migraine attack lasting for more than 72 hours.

    Diagnostic Criteria:
    Typical of previous attacks except for duration.
    B. Headache has both of the following features:


    1. unremitting for more than 72 hours
    2. severe intensity

    C. Not attributed to another disorder

    A general rule of thumb recommended by many Migraine specialists is:


    If moderate to severe Migraine pain lasts more than 72 hours, with less than a solid four-hour pain-free period, while awake, it should be considered an emergency requiring an office call or a trip to the emergency room.

    Why is it important that status Migrainous be treated?
    The pain of a Migraine is from dilated blood vessels in the brain and the inflammation of tissue and nerves around those blood vessels. Extended dilation of the blood vessels puts us at increased risk of stroke. Thus, it's important to stop a Migraine attack, as opposed to simply masking the pain with pain medications, as soon as possible.

    Inmemory of Abi, Migranious stroke victim, 21 yrs old:
    See: http://headaches.about.com/cs/management/l/bl_abi_mem.htm

  2. woofmom

    woofmom New Member

    In 1985 my brother who was 36 years old got a horrible headache. He knew that he was about to have a stroke. He had his wife take him to the ER. Yes he did have a stroke. They operated and when he didn't come out of his coma they operated again. He was having another stroke. If he had not been aware he would have died.
  3. abcanada

    abcanada New Member

    I suffer from these intense migraines almost daily. Very good info. I stay away from the Immetrex type drugs as I have a blood clotting disorder and they're not considered safe. I've also tried many families of preventative drugs, but have had adverse side effects, or no effect on migraine. I take Percocet, which just masks the pain. A good job it does! I'm waiting for my MRI results that I had this week. I think it will be interesting to see if they at least see vessel dilation, as I did have a migraine. In fact the MRI mmade it far worse. Thanks for the info, Laura
  4. lenasvn

    lenasvn New Member

    There is a long list of drugs that can be tried for migraines on migraines about dot com. Maybe try different ones until you find the right preventative? Masking pain is not good with migraines, the attack have to be averted. I tried Topamax which didn't help much, and had side effects. I only use Imitrex now.

    My mom had 2 strokes from migraines. I've had a strange episode that I wonder if it wasn't a stroke a year ago, and so I would like to have better care of my migraines. I have episodes that can last for a couple of weeks, I know NOW not to let it go on for that long. or at least watch if it gets worse.
  5. mezombie

    mezombie Member

    This is scary, but good to know. I've had migraines that have lasted that long, and had no idea I was in danger. Thanks for posting this.
  6. kjfms

    kjfms Member

    Great article and a great site. I am lucky Topamax helps me a little.


    Thanks so much,

    Karen :)
  7. woofmom

    woofmom New Member

    The only way I can avoid horrible headaches is to avoid aspartame, msg, and severly limit exposure to chemicals in the air (perfume, shampoo, air fresheners, dryer sheets etc). I can FEEL when the filters in my air cleaner machines need changing. Also, about 3 weeks ago I ate some mushroom soup in a dish I made. Sure enough, my symptoms started to return.
  8. dani78xo

    dani78xo New Member

    Hahah. Sorry for laughing, I just found this really ironic.

    A while back, when the symptoms of FM were first setting in (about Feb '06) I got a migraine. It lasted until August '06. Didn't go away, not once. Two different trips to ER which did NOTHING and useless referrals to psychiatrists and neurologists.

    Still don't have it figured out, but the migraines aren't as severe now, and they go away when I'm not fatigued.

    Just found it amusing that it's considered so serious, yet I didn't get any help at all, and I had the same migraine for months (meaning I went to sleep with one, I woke up with one. No breaks in between. It was the same one up until August.)

    I wonder if migraines with FM or CFS are considered linked to those illnesses, and therefore not considered as serious?

    -Danielle
  9. jake123

    jake123 New Member

    When I check into a ER I always put how I have had the migraine. 5 days? 4 days? and maybe details - joint pain? nausea for several days?
    It helps them to do triage the patients and you may go first instead of last!
    Topomax has helped me too but has not eliminated the ordinary tension headaches that still plague me. That's ok, I'm glad to get rid of the really scary ones.
  10. johnston

    johnston New Member

    posting a few days back---"I have two symptoms" Rhonda
  11. Gothbubbles

    Gothbubbles New Member

    http://headaches.about.com/cs/management/a/brain_lesions.htm

    This study in 2004 indicates that migraine sufferers have greater brain infarcts (necrotic brain tissue- dead brain tissue) and white matter lesions than do controls. Please read this study, especially if you have more than 1 migraine per month, and/or you have migraine with aura.
  12. IowaMorningGlory

    IowaMorningGlory New Member

    My migraines are the severe type and have been for years. I have tried alot of medications and none seemed to work. Always ended up at my clinic (who is great, all I have to do is call and they fit me in) and get demerol shots. I used to sleep for hours and wake up migraine free. Not so much anymore, sometimes I have to have two shots.

    I have found a medication in the last six months that works great for me. It is fairly new, when it works it is like a wave washes over my head and I feel a little funny and then poof the migraine is gone. It is called Relpax (eletriptan HBr) 40mg tablets.

    Hope this input helps,
    Take care and Blessed Be,
    Laurie
  13. Gothbubbles

    Gothbubbles New Member

    I have never read about relpax that sounds like a godsend for migraine sufferers!

    I hope it continues to work for you, migraines are serious!