Do you see Karen Vrchota? I'm at the end of my rope- I can't handle it

Discussion in 'Fibromyalgia Main Forum' started by LISALOO, Dec 10, 2008.


    LISALOO New Member

    I'm on the wait list and not sure if I should see her. Need more advice about my lyme results (not sure if I have lyme, only a couple of positives on the Igenix test).

    I see a lot of people say that she follows Tietlebaum, but I went to the FFC's and followed his stuff and it didn't work.

    DOes she work with Viruses?

    I dont' know what to do anymore, if she doesn't work I'm done with life. help!
    [This Message was Edited on 12/11/2008]

    LISALOO New Member

    Bump, help please

    LISALOO New Member


    LISALOO New Member

    Thanks, that's the article where I found more about her, enough to make an apt.

    I'm at the end of everything.
  5. Forebearance

    Forebearance Member

    I was waiting for someone who has been to her to post on your thread, but since they haven't, I have heard from members here that she is a very good doctor.

    I know she understands Rich VanK's simplified methylation protocol. I know she is aware of neurotoxin issues like Dr. Shoemaker talks about. So it seems that she is up on the latest developments in CFS.

    Have you searched old threads for mention of her name?

    Personally, if I were going to go see a CFS/FM specialist, she is the person I would go to.

    My second choice would be Dale Guyer in Indianapolis, who Slayadragon goes to. He's equally up on the latest developments, but it seems like he would be more expensive because he likes to put new patients through a lot of tests.
  6. Renae610

    Renae610 New Member

    Hello! Keep hope. There are other protocols depending on what your specific diagnosis is and what your body can tolerate at any certain stage of the process.

    Are you far from the Twin Cities? Many in the Lyme support groups here see Dr. V.

    In 2007, I took my daughter, age 21, twice to Dr. Vrchota. She used IgeneX lab, Red Lab, SpectraCell lab, and Lab Corp, which was a breakthrough diagnosis for us! Two viruses were found, and yes, Dr. V. recommends treatment for them.

    My daughter was highly sensitive, unable to tolerate most meds and supplements, so Dr. V. realized she would need a very cautious approach. This meant for us, that Teitlebaum's approach was too advanced, and I found the Cowden protocol through this Immune Board, and she is not only tolerating these herbs, but in a year, has come to tolerate many more supplements. Might see Dr. Vrchota again in the future.

    I would recommend visiting a Lyme Support group! You will feel like you're not alone and that there is hope.
    [This Message was Edited on 12/12/2008]
  7. Janalynn

    Janalynn New Member

    I'm sorry that I can't help you at all with the person you are referring to. I have Fibro and really know nothing about what you're talking about......however...

    I think many of us have felt at the end of our rope at one time or another. In our darkest days we just can't phathom one more day like this, but please don't ever lose hope.

    We've all shed many a tear about the hand we've been dealt and the situation that we're all trying to cope with. We are a very strong group of people!

    Keep reaching out to people, do whatever you can to get yourself through another day - pamper yourself whenever possible, do something, anything, to get your mind off your illness for a while.
    Do you have a supportive family? friends? anyone?

    Please remember that you are not alone. when I feel my lowest, I remind myself that there are a whole bunch of people who are or have been in my very same situation and they DO understand. WE here do understand.
  8. Renae610

    Renae610 New Member

    I'm thinking of you today and praying that you will find the help you need.
    Dr. V. could explain your IgeneX test, and could provide further testing, which would give you more direction about how to specifically treat.

    Dr. V. told my daughter that when Lyme is killed off, Fibro will automatically go away.
    I look forward to getting to that point! Coinfections might make it more difficult to move forward, so possibly this is what you're dealing with too. They have to be treated separately.

    My daughter was encouraged, as we learned about the Cowden Protocal with NutraMedix herbs, and by talking with Michelle at Renewal Enterprises. The Green Pharmacy is very helpful too.

    Keep us updated!

    When is your appointment with Dr. V.?


    LISALOO New Member

    Thanks for your note. I've tried the Cowden protocol on my own, however, I have interstitial cystitis so I couldn't handle the samento. I've had all the tests for viruses, nothing major, arvovirus and coxsakie 6 (which drs tell me they can't treat) I've tried valcyte which brought my interstitial cystitis out of remission.

    I've never been tested for coinfections for Lyme which is why I've wanted to see this dr. The local dr only put me on antibiotics which even though I took prescription and natural antifungals, I had a yeast infection that wouldn't go away so I had to quit. That's why I tried the Cowden protocol. I didn't feel worse or better on either so I don't know if I truly have Lyme. I only had a couple of pos, bands.

    I really don't think I have hope. Nothing has helped in 5 years.

    I'm actually in Madison WI, no good drs around here.
    [This Message was Edited on 12/13/2008]

    LISALOO New Member

    Thanks for your kind words.

    Other than my husband, there's no one around me to help support me. I moved to a different city to marry my husband and got sick 3 months after I moved so I never made any friends.

    My family is really only my mom and she's not near either. I'm so sick I can't get my mind of my illness.

    LISALOO New Member

    I'm on the wait list, so it will be months before my apt. can even be scheduled from what the receptionist said. I can't do the Cowden Protocol because it irritates my IC( seriously can't sleep because of the pain), can't do antibiotics because of yeast.
  12. Renae610

    Renae610 New Member

    Until your appointment with Dr. V., you probably could get started with the process. We had to collect records from all former doctors we had been to. She wants this history.

    I wonder if Dr. V. would be willing to review your IgeneX test results (fax to her) and she might respond to you by e-mail or phone? Tell the receptionist of your current confusion and need to clarify treatment.

    In regard to your IC, I ran across a post on this site by Slevah, Nov 14, 2007, which might be a clue to the cause of IC and might lead you to potential treatment:

    ".....stealth, or chronic infections are a major contributor or cause of CFIDS. There is comment I would like to make, and that is Chlamydia Pneumoniae CANNOT be cured, or removed from the body WITH JUST ONE ANTIBIOTIC, azithromycin! One of these days our mainstream medical society will wake up and realize that it has THREE life forms that repeat and infect us continually: elementary bodies, replicating bodies and the cryptic form of this bacteria. One antibiotic only sends it further into hiding making us sicker in the long term. Chlamydia Pneumoniae has been proven to be linked to: Multiple sclerosis, Chronic fatigue, Cardiac disease, Interstitial cystitis, Prostatitis, Crohn's diseasei, Inflammatory bowel diseasei, Alzheimer's disease, Asthma, Arthritis, Fibromyalgia, Chronic refractory sinusitis, Macular Degeneration, and others. Do you really want it in your body?? I have it and I don't!!! Dr. Charles Stratton of Vanderbuilt University proved this! But, no one seems to want to listen....hmmm kind of like H. Pylori or washing your hands before surgery!!!! Hopefully, one day a "light bulb" will go off!!! For what it's worth.....perhaps someone will benefit from this statement."

    Notice IC in there?? Have you been tested for Chlamydia Pneumoniae?

    Perhaps if you call The Green Pharmacy, the Naturopath can tell you if any of the NutraMedix herbs with the Cowden protocal might work for you.
  13. Renae610

    Renae610 New Member

    I was reading some information last night and ran across IC, as possible Lyme Disease involvement.... I thought of you.

    Anything new? I hope you're finding help.

    LISALOO New Member

    I read that too. My urologist says IC is from too much Ibuprofin use, who knows?

    Nothing new. I'm just tired of reading everything that says after 5 years with CFS you have no hope.

    LISALOO New Member

    No Chlamydia Pnuemonaie I wish.