Doc do you want to treat me or not!

Discussion in 'Fibromyalgia Main Forum' started by TFD, Nov 16, 2005.

  1. TFD

    TFD New Member

    First let me say that this place is a life saver. I guess I was in denial about CFS. I very often just felt like I was gravely ill and would not live long because we didn't know what was wrong with me. Then when my doc said I had CFS..I said yeah, right!

    I now understand what CFS is about..it's not just being overly tired. There is so much more to it. After reading and researching..I realize...THATS EXACTLY WHAT I HAVE! He was right!

    I have a Dr appoint tomorrow morning. The last time I saw my doc, he said..when you have more bad days than good, then it's time to change our plan of action. Really??? You mean I have to feel worse than..not being able to do things with my husband....worse than having to leave work early because I am so sick and in such pain I can't stay for the remainder of the day??? worse than not really having a life at all???

    The more I thought about that comment, the more upset I became. I need affirmative, agressive action. It all may not work...but please..do something. Right now, we are doing absolutely nothing to help me with my symptoms other than the research I do online and then buy herbs and other holistic meds.

    My question is this..I don't want to offend my doc..he has treated me for 15 years. I just want the respect that CFS deserves allowing me to have a chance at a normal life. If he doesn't feel like he can committ to helping me..I need to find someone that will. Could anyone out there give me some advise on how to approach this with my doc? I am so emotional right now and I need some direction.

    Thank you so very much!!

    Thanks so much!!!
  2. poodlemommy

    poodlemommy New Member

    It so hard to find a doctor who understands CFS and fibro. I was very lucky to find a doctor who does understand. I have so many friends who are being treated like children from their doctors , especially around pain meds. Your doctor may not know what to do for you. Its a complicated and confusing illness and what works for one person doesnt for another. Its going to take time, patience and finding the right TEAM of people to help you. One doctor alone cant do it. I know this is not the best news but its the reality of our ailment.
    hugs poodlemum
  3. TFD

    TFD New Member

    Thank you for the info. I know there is no "quick fix". I guess I am just impatient and my tolerance is wearing thin. I really do appreciate you:)

    Thanks again for the response.

    TFD
  4. TFD

    TFD New Member

  5. paintinglady

    paintinglady New Member

    My regular familiy doctor moved and the one I got next could do better with the smiling and caring dept. I explained everything to her she saw my records and since they just recently decided its probably FM I'm still having umpteen test results coming back but instead of going to the specialist that ordered them I have to go back to her first since she made the referrals.

    While there she is going through the results with me and I ask her after each one ok what is the next step? Well, she says, I want you to go back to the specialist to see what he wants to do about all this. I figure, fine then why was I told to come in here today.

    Anyway since I was already there and in pain, I tell her since I last came in my feet and legs hurt so bad I can barely stand and it keeps me awake at night. Could I have something for the pain. She says, no, I think we have enough going on right now. Lets see what the specialist has to say about all this first. Then gathered her goodies and left.

    I couldn't believe it. I just figured great, I've got one month until I see the specialist but I'm finding a new family doctor. I'm sorry, thanks for letting me vent. This hasn't been a great day for me either. At 5:30 I had to go to sleep for awhile before I did standing up. Two hours helped but what a waist of time. Frustrating.
    Carol