Doc says ask you all about pain meds

Discussion in 'Fibromyalgia Main Forum' started by mrsjethro, May 5, 2006.

  1. mrsjethro

    mrsjethro New Member

    Well, here's a new one.... Doc had me on elavil to help with pain. After 1 month, had to quit them because they kept me awake all night and actually made me hurt much worse. I saw her today and told her about all the really helpful people here and she said to check with you and see what combinations you take. I am currently taking flexeril and lorcets, but am currently having a flare and feel really awful. They gave me a steroid shot today too and said I should feel some better by tomorrow. Any suggestions? She and I both know that different combinations work differently for everyone with fm, cfs and cmp. I have been blessed with all three.... Thanks in advance for any help you can give me. I'm supposed to let her know next visit.
  2. lovethesun

    lovethesun New Member

    How long have you been on the lorcets?I like my flexiril.I take kadian but you might not need that yet.Linda
  3. mrsjethro

    mrsjethro New Member

    I've been on the lorcets for a few years. I asked her about neurontin today, but only because I've seen it mentioned a lot on here. I know nothing at all about it. She also mentioned something with morphine in it too, but I told her I'd rather put that one off for a while. I don't know what I'd bump up to later if the pain got worse, as I'm afraid it most likely will. I thought it was really cool that she wanted me to ask all of you, though. Finally someone who takes me seriously!!!
  4. PVLady

    PVLady New Member

    I am having good luck with Subutex 16 mg day (4 mg 4X day, Ultram (1 day) and Tylenol Gel Caps (2 a day).

    My pain specialist here in CA is expert on Subutex protocol. This drug is extensively used for people who want to get off of opiates however it is also a pain reliever.

    I believe it is a mild opiate but much less strong that Lortabs - and it works well to prevent flares.

    You dissolve Subutex under your tongue and there is never a issue of tolerance as with Lortabs. (Also, Subutex is easier to stop).

    Previously I tried MS Contin (morphine)which stopped the pain but made me very sick.. I do not recommend MS Contin - there are many terrible side effects which include rashes, vomiting, severe constip.,loss of appetite. None of these went away.
    [This Message was Edited on 05/05/2006]
  5. mrsjethro

    mrsjethro New Member

    for that info. That was another one that she mentioned today and I was afraid of that one too. Is that the same thing as oxycontin?(not sure about spelling there) I was afraid it was and I don't need any more trouble with meds. The elavil made me want to pull my hair out. I could watch a commercial on tv and cry about it. What part of CA are you from? I'm flying out there in August.
  6. mrsjethro

    mrsjethro New Member

    I don't really know anything about them, but from all the bad publicity of people abusing them it makes me kind of afraid to try them. Are they any better thave a lortab or lorcet? I suppose people that use the meds for the wrong reasons can get hooked on just about anything. I know I don't get anything out of them than just enough to take the edge off and make it bearable, but I'm never without pain any more. AND with this last abd experience with the elavil, I'm a little gunshy about trying anything new, but I know that I'm going to have to.
  7. WoodstocksMusic

    WoodstocksMusic New Member

    has always helped to manage my FM flare up pain.... but after a couple years I figured out that the Lorcet was what was keeping me up at night...so I had to limit those pain meds to before 3:00 pm or they would interfere with my sleep (I was already taking 10 mg of Ambien and still staying up most of the night)

    When I cut the lorcet out in the evenings my sleep improved tremendously...when my sleep improved I needed less and less pain meds!
  8. Mikie

    Mikie Moderator

    It's an old tried and true opiod and really helped with pain until the Guai Protocol took over and I was able to go off my pain meds. I only take them now if I injure myself or have an especially ugly flare.

    As always, where pain is an issue with FMS, I urge people to read Dr. St. Amand's book, "What Your Doctor May Not Tell You About Fibromyalgia." His website, Guaidoc, has a lot of info too. The Guaifenesin Protocol is long term and requires commitment and patience. I was bedridden most of the time and on the Morphine before I started the Guai. It is one of the most important components of my treatment regimen. Had it not been for the Guai, I would likely still be in bed and on Morphine.

    Good luck to you.

    Love, Mikie
  9. NyroFan

    NyroFan New Member

    mrsjethro:
    I take Percocet and Ultram, along with Elavil, Klonopin and a sleepin pill for nightime.
    Good luck.
    NyroFan
  10. Pianowoman

    Pianowoman New Member

    There are so many drugs combinations; it really is about what works for you. It may be helpful to get some different ideas but don't reject a med because it didn't work for someone else.

    It is frustrating at times because what works for one doesn't always work for another. You and your Doctor will likey have to try some things before you get it right.

    Good Luck
    Kathy.
  11. millennia

    millennia New Member

    I take mirapex for the pain (though it is not a pain med) and it has helped more than I can say. I still have some pain, but I go hours without pain and when I do have pain it is so much less. I just went out with my friends last night, I wore four inch heels til 1 AM and I don't feel like I've been hit by a truck today!!!! I love mirapex. But a lot of people on here had trouble with the side effects. I didn't, though I have trouble with the side effects of 90% of meds I try. I don't know, maybe it could help you. I wish I could make everybody on this board feel better.
  12. Dee50

    Dee50 New Member

    I found no pain meds that helped me :( The side effect of fatigue is not doable for me because of the extreme fatigue I already deal with and my colon is slow and the meds I tried make it even slower. I wish you the best in your hunt for ones that help you. My body made more pain the more pain meds that I took. This may not be the "norm" but it is what my body did. I was afraid of ODing myself in the name of trying to lower my pain level and so was my pain managment DO doctor. I know that pain meds help many people I'm just not one of them. I'm not against using them if they help you have a better life :)
    Take care,
    Dee50
  13. Tibbiecow

    Tibbiecow New Member

    Have proved effective for some fibro patients.

    The difference between percocet and oxycontin is (besides that oxycontin has no tylenol in it) that is is time released, and so stays at a steady level in you body until the next dose. Percocet releases immediately, and all of the med can give you a euphoric feeling, followed 4-6 hours later by a crash. You then want more, especially if you overdid it when you were feeling good. This up-and-down is not so good for you, and actually causes more addiction/misuse problems than oxycontin, MS Contin, methadone, fentanyl patches which keep a steady dose of pain reliever in your system.

    Most abusers chew the long-acting tablets, grind them and snort them, or shoot up the fentanyl gel, they want a big high rather than pain relief.

    For my migraines, I eventually went on methadone. Percocet was giving me the up-no headache, down-headache is back syndrome. The timed release pain medication is a real blessing for those who need and use them properly.

    I hope you continue your research, and it sounds as though you have a great doctor who listens to you. What a blessing!

    Tibbie
  14. mrsjethro

    mrsjethro New Member

    You have no idea what it means to me to have such response to this. This has given me a wealth of information that I can take to my next doctor visit. I know that it's probably going to be a trial and error type thing for a while until we figure out what combination is going to work for me, but this gives me such hope. I miss my life so bad. I used to be really active in church activities all the time and a real "career woman" and this has taken those things away from me. The doc gave me a steroid shot yesterday, so I actually got to get out and ride the harley with my husband a little bit today. I very well may feel like I've been hit by a truck tomorrow, but at least I had 1 day of fun with him. I've never had the shot before, so I have no idea how long it will last. Seize the day!! You all have given so freely of yourselves. I feel such love here. God bless you all and thank you so very much!!! You all have given me such hope that there may come a day that I can be normal again. There is no way for me to put into words the way that you have made me feel. Thank you, I love you all....
  15. lovethesun

    lovethesun New Member

    which is Morphine,but I like the Neurontin best.
    Linda
  16. JLH

    JLH New Member

    What helps my fibro the best is Neurotin and Cymbalta during the day, and Zanaflex (a muscle relaxer) at night.

    If the steroid shot helped you, then you must have a lot of inflammation in your body--as from arthritis. Otherwise, I don't think the steroids would have helped your pain that much.

    Have you been checked for RA and/or other arthritis-related problems?

    Try to take as little steroids (prednisone, etc.) as you can because that have terrible side effects that you don't know are working on you -- in time, your bones will become brittle and break, and you will end up with osteoporosis sooner. Steroids are hard on diabetics and they also cause eye problems. I am having a hard time thinking of the correct terms to describe what I want to, so I just have to put it in simple words!

    I have Lortabs to take for my back pain, but they never did help my fibro pains.
  17. rosemarie

    rosemarie Member

    I have tried the Lorecets and the tramadol and they do NOTHING at all for me. I have tryed so many of the NONE narcotic which toradol and Loracet are. I got that from my pharamist. They are a NON narcoitc non steriodal pain relief.

    But for me they give me painic attacks and I will not take them for that reason and they didn't do anything. Ibuphern did more than either one of those did. But then that is me and my body not some one else's. I have tried the other meds you mentioned and it is by trial and error that I have found out what work for me and what does not.

    Each of us are unique and we all don't react to this DD the same way and just as we are different we don't react to the same meds the same way that someone else does. I have been told to try this med it just works so well for me and when I have tried it nothing happend and I was left in pain. So as we are differnt we have to find out what works for us and what our doctors will prescribe for us.
    I wish that I didn't have this dd and didn't have a need for pain meds at all. that would be so great but it is not going to happen any time soon. HUGs too all,


    Rosemarie
  18. mrsjethro

    mrsjethro New Member

    What a bummer!! It's 5:10am here and I've been up since 2:00 am on the heating pad with waking every hour prior to that since going to bed at 11:00. (Actually that's nothing new, lately) I got so excited because I finally had a day that I felt like "me" in a really LONG time and now it's gone. I guess I probably expected too much. Must have been a steroid rush or for lack of a better term steroid high. The search for my med combination is back on again. Keep those posts coming. I am getting so much helpful information, that it is just overwhelming me. Of course, I'm still a little emotional anyway from the elavil. That stuff made me a big cry baby. Any opinions are appreciated. I really can't find the words to tell you how much I appreciate all of you!!
  19. Mikie

    Mikie Moderator

    It is a quick acting Morphine. Kadian is the time released form of Morphine. I tried it but the dose was too high and knocked me out for about 30 hours. My doc and I decided the short acting Morphine suited my needs better.

    It isn't always just pain meds which releive the pain. Some have found success with low doses of antidepressants. I have not gone this route myself because of side effects of these meds. I do take Klonopin and one of the side effects of it is to interrupt the pain signals in the brain.

    Love, Mikie
  20. CanBrit

    CanBrit Member

    He prescribes me 10 mg morphine up to four times a day and a Lunesta for sleeping.

    For the most part, I take 1 morphine and the sleeping pill at night because I've found the better and longer I sleep, the easier it is for me to cope during the day.

    I still have pain but it's manageable for the most part. I have restless legs as well and I find that it get's much worse in flare or if I come down with a bug. When that happens I go to 2 or 3 pills a day until it settles.

    I use heating bags at work and make sure I get up every hour and stretch. I try to walk 30 minutes at lunch, and while it sometimes pushes my pain to the limit, it mentally gives me a lift.

    Onwards and upwards, eh!!

    Eileen