I have been diagnosed with FM for around 14 years. I functioned well for about two fo those, and then had a very bad spinal and neck injury, and developed non-restorative sleep and became disabled. I started going down hill dramatically about a year and a half ago, having multiple infections, the infections would not clear, fatigue deepened, and Provigil no longer seemed to help. The malaise and the infections just grew worse and worse, and had gotten to the point where getting dressed and going to the doctor was almost more than I could manage. This spring, one of my docs saw me, and I mentioned it to him, and told him the character of the symptoms had intensified, I was having all these infections, and had almost become bed bound. HE TOLD ME I WAS FAT, AND IF I LOST THE WEIGHT IT WOULD GO AWAY. HE WAS VERY, VERY WRONG. He ordered all these labs, including CORTISOL, AND THEN PROMPTLY FAILED TO ALERT ME. My level was only 1.0 with 4.0 being the low number of norm. I was in ADRENAL EXHAUSTION AND SEVERE. His rules are that they contact you about labs, don't call me, as in his office. When I appeared for my 6 month, I told him I had been on oxygen with bronchitis, had developed a staph infection from a small cut and it had taken weeks when it was not even methicillin resistant, to recover, had sinus infections, and my endurance had worsened, and the first thing he said WAS LOOSE THE WEIGHT AND YOU WILL FEEL BETTER. I wanted to kick the jackass. Then, he leafed through the chart, and asked why I had not returned for counseling on my labs, and I told him YOU DID NOT CALL OR WRITE ME A LETTER AND THAT IS YOUR POLICY. YOU NEVER CONTACTED ME, HE SAID, THEY MUST HAVE, I SAID I'LL GET MY TELEPHONE RECORDS, AND WHAT DOES YOUR CONTACT SHEET SAY, AND THEY HAD NOT CONTACTED ME. Then he said, well your cortisol is in exhaustion BUT WOULDNT' GIVE ME THE NUMBER, and rushed me out the door as quickly as possible. I was on IV Immune Globulins, because I was not producing lymphocytes, probably associated with the cortisol exhaustion, at $10,000 a whack, so I had that doc repeat the results to discover that the cortisol and ACTH were both low, and the cortisol was EVEN LOWER THAN IN THE SPRING. To make a long story short, we now know my adrenals are normal on cat scan, and the labs show cortisol deficiency and ACTH, so it is pituitary. I still have to have an MRI, but I have had the ACTH stimulation test and started on solu cortef, which is the drug of choice and mimics cortisol the best. I am far from out of the woods, and I AM FRIGGIN ANGRY THAT I HAD BEEN NEGLECTED, BY ALL THESE HIGHLY PAID DOCS, OF ALL KINDS OF SPECIALTIES, AND PEDIGREES, DESPITE MY DESCRIPTIONS, BECAUSE I WAS FAT, THEY BLAMED EVERYTHING ON THAT, AND EVERYTHING IS NOT BECAUSE OF FAT. WOMEN WHO ARE OVERWEIGHT, AND HAVE DIAGNOSIS OF FM AND CFS ARE ABUSED AND MISTREATED IN AMERICAN MEDICINE. I WAS AN ADVANCED NURSE PRACTITIONER, RN, AND CERTIFIED REGISTERED NURSE ANESTHETIST FOR ALMOST 25 YEARS PRIOR TO BECOMING ILL AND WAS A GREAT HISTORIAN AND THE JACKASSES IGNORED ME AND BLAMED EVERYTHING ON FM AND BEING FAT. DO NOT LET THEM DO THIS!!!!!!!!!!!!!! ALL OF US SHOULD HAVE CAREFUL AND FREQUENT ADRENAL AND PITUITARY TESTING.