Discussion in 'Fibromyalgia Main Forum' started by cindymindy, Oct 16, 2004.

  1. cindymindy

    cindymindy New Member

    Please help. I have fibro along with degenerated cervical and lumbar spine w/osteoarthritis. Pain specialist tried injections, no improvement. Now he wants to deaden the nerves to get rid of the pain. Has anybody tried this and did it work? I'm wondering if it only works for arthritis and if I will still be in pain from fibro. Any input is appreciated. cindymindy
  2. suz9601

    suz9601 Member

  3. cindymindy

    cindymindy New Member

    I think its called radio frequency. I searched the web, but couldn't really grasp what they said about it.
  4. Mikie

    Mikie Moderator

    I would see a neurologist for another opinion before I let anyone do such a procedure on me. Second opinions never hurt to get and can make your decision so much easier to make. Good luck.

    Love, Mikie
  5. tandy

    tandy New Member

    checking into and knowing exactly what he wants to do!!

    I've heard of them cutting off nerves that are being pressed on by bulging disks and such.

    I'm not sure if its a good procedure for our pains?? or even what you mention you have.
    I'd be leary. No way jose!!

    Are there any gaurantees?? you need to find out more.
    I have never heard of this being done on Fibro patients.
    And I've been trying to learn all there is to learn over the past 12 yrs. Hmmm???
    Let us know how you make out.

  6. sdmay3

    sdmay3 New Member

    I did a google search for this and the procedure is called neuroablation. It is described as (I copied and pasted from a site):

    Neuroablation is the destruction of nerves that serve as pathways to the brain. Typically performed when other treatments have failed, doctors may use heat to sever the nerves that are transmitting pain signals. Neuroablation is the destruction of these nerves. It may be permanent, or the nerves may grow back in time. Neuroablative techniques are usually applied only as a last resort when other therapies have failed.

  7. drzaring

    drzaring New Member

    I think this is the procedure that's being referred to here.

    <br>[<i>This Message was Edited on 10/16/2004</i>]
  8. cindymindy

    cindymindy New Member

    I will ask the doc exactly what he wants to do and how its done. Someone suggested asking a neurologist. I went to one first and he said he couldn't find anything wrong with me. Told me I'd feel better if I exercised and got a job. Of course he didn't talk that way in the beginning, waited till he got all the insurance money he could get then tossed me out. Been a long battle and continues to be so.
    Thanks for all the replies.
  9. Mikie

    Mikie Moderator

    Maybe a GOOD neurologist.

    Love, Mikie
  10. cookstove

    cookstove New Member

    After doing your research on the web for this, I would definitely have a second opinion by a neurologist. This is a procedure that could have major consequences.

    My naturopath has been having me use St. John's Wart oil this past month and it is supposed to help with nerve pain and regeneration of nerves. I use it from my toes to my waist and then along my spinal cord up to the neck and along my shoulders.

    I am feeling some difference in feeling--that is so strange after all of these years. Also it does help with the pain. The only time it is not helping with the pain is when the pain is related to the weather changes. That is interesting too. Will be glad to see what she has to say when I see her again.

    But I would always seek a second and sometimes a third or fourth opinion for procedures like you are talking about.

    Good luck.
  11. s-rose

    s-rose New Member

    This sounds like a procedure called nerve ablation. They go in and burn out the nerves that transmit pain to the brain.

    It is a very dangerous procedure.

    I had it done 6 months ago. It wasn't worth it. I was in more pain after for about 6 weeks. 6 months later my pain is just as bad if not worse.

    I will try to find my previous post and bump for you

    Love and prayers,
    Susie Rose
  12. cindymindy

    cindymindy New Member

    Thank you for the info. I'm going to ask to see another doctor in the office cause I think my doctor is needle happy. Just read in the paper that he just bought land for over 3 million dollars and is going to build a small hospital. Can't help but think all the injections,etc.... are paying for it. Thought it might be intersting to see what one of the other docs say. I know a family member that sees a different doc there and he hasn't even suggested the injections. Mine did about 12 of them on my first visit. Anyway, I've decided I'm not going to let them do it. Just sounds too scary. I wouldn't even go back, but I filed for social security and it will look better if I do. I'm so sorry you had to go through all this and hurt even worse now. I know how it is when some form of treatment is brought up and you think its worth a try. By the way, were you awake during it?
  13. FM_DD

    FM_DD New Member


    I have had Radio Frequency Lumbar block three times in my lower back. IT IS WONDERFUL! They are VERY careful which nerves they do, there's testing involved so they know which ones to block. Its a little painful, maybe about a 4, but you get an IV with some pain meds in it before. It has given me my life back and I am now able to work. Good luck,
  14. s-rose

    s-rose New Member

    Cathy I am glad you had some success. I still wouldn't recommend it from my experience. I've talked to other people who didn't have luck with it either.

    Cindy I was awake. You have to be so you can tell them if you have pain somewhere else. that tells them they hit the wrong nerve.

    Talk with other Docs. and get all the info you can find before you make your decision.

    Love and prayers,
    Susie Rose
  15. cindymindy

    cindymindy New Member

    SusieRose, is Radio Frequency considered the same as what you had done?
  16. s-rose

    s-rose New Member

    I'm pretty sure they are the same thing. My doc just called it nerve ablation.
    I will try to find all the info I can for you.

    Here's a start.

    Radio Frequency (RF) Nerve Ablation can be used to temporarily deactivate minor nerves around the spine. The pain generating nerves for many patients are often small, unimportant fibers which can cause severe pain. These nerves can be temporarily shut down using radiofrequency energy to heat the surrounding tissue and deactivate the pain generating nerve fibers. The procedure is performed by accessing the affected nerve under x-ray guidance. Once properly positioned, a special probe is advanced allowing the delivery of radiofrequency energy to the targeted area. Results can last from months to years.

    I still would not recommend this procedure.
    Get lots of info and a second opinion.

    Why do they want you to have this procedure?

    Love and prayers,
    Susie Rose
  17. s-rose

    s-rose New Member

    Radiofrequency ablation is used to interrupt nerve conduction on a semi-permanent basis. Following two successful nerve blocks, radiofrequency ablation is done. Because nerves cannot be seen under fluoroscopy, special insulated needles are positioned using the bony landmarks, which indicate where the nerves should be. Once the special needles are in place, using a radiofrequency generator, sensory stimulation is performed, which may produce a "buzzing" or "tingling" sensation. Next, motor stimulation is performed which may produce a thumping or jumping sensation in the muscles. When correct placement is verified, using the stimulation tests, the tissue surrounding the needle tip is heated with an electric current produced by the radiofrequency generator, which "burns" the nerve. Keep in mind that we are only working with the sensory nerves, you will have full feeling and movement of the extremity. Radiofrequency ablation may provide pain relief anywhere from three month to two years.

    love and prayers,
    susie rose
  18. jasper12

    jasper12 New Member

    I have fibro, also ruptured disk in my back I have lived with this pain from 27 years old I'm now 60. My nuralogish just did this to my upper back area where as you know cases extrem pain for sometimes weeks on end. I have been to every doctor I could be sent to until my new nuroligist went over every detail of what he was going to do I refused and he was very patient with me, I decide to do it .Yes it is somewhat painful but it only last minutes and believe me after years of pain a few mintues is nothing.You go in with no pain meds for 24 hours ruff, they need to know the exact location of the pain. with in 30 I was back in the waitng area they keep you for an hour, you do have IV and constant blood pressure checks, but after he pulled all those needles out no pain. Some sourness from the needles the next day but no pain. as for the lower back I had no idea how much pain I ws in until none in the top and lower&lt;BR&gt;
    terrible. I have no regrets from this and no problems he told me it should last 6 months if not longer then I can deside if I want it done permently. If I get 6 months free I will thank god every day.Talk to a nuroligest first. hope this helps.
  19. kbak

    kbak Member

    Better do a bunch of reading online about that before you even think of doing it. So many people that have done that ended up not having it help and causing worse problems.&lt;BR&gt;
    I do understand that you can be in so much pain that your willing to try anything. There is nothing worse than living in this terrible pain. Have you tried Oxycontin or Methadone for your pain?&lt;BR&gt;
    I think I would try those first before I did that. I'm not sure that would work for fibro since it's a different pain mechanism. Go to their discussion board talks a lot about these different procedures.&lt;BR&gt;
    Take care,&lt;BR&gt;

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