Discussion in 'Fibromyalgia Main Forum' started by Teddifromindy, Jan 1, 2003.

  1. Teddifromindy

    Teddifromindy New Member

    Hi. I hope everyone had a safe New Years eve. Today for me has been kind of a let down. I never did really enjoy New Years day even as a child.

    I do have a question. Later this month I will go see my doctor(a general internist) and I thought of bringing up the possibility of fibro as a diagnosis. I don't think he believes in CFS so I am afraid to say that. I don't have severe pain though, just an achiness all over especially my neck and shoulders. I don't know if he will agree to refer me as he already has referred me to an ent and so far that isn't bringing about much relief....except for them to tell me that they think my sinus symptoms are not sinus at all but severe gerd.( I am taking a doubled dose of protonix and prescription ibuprofen as I guess my larynx was inflamed because of the gerd.) But I still feel tired most of the time and have extreme tenderness in the glands of my I felt with mono years ago. Do rheumatologists also treat the CFS symptoms if you have them together with the fibro? Are there other types of doctors to see? My internist won't even prescribe antibiotics when I have told him I felt I definately had an upper respiratory infection and am coughing up green mucus etc. He just says my chest sounds fine to him.

    Also I have noticed that if you have been diagnosed with depression which I have, they sometimes want to attribute most of my complaints to that even though I have done all I know to do to treat the depression and have faithfully taken my meds for it etc......I really don't feel it's related at least not at this time. Do you have to have a referral if your insurance doesn't require it...? I am getting so frustrated at not feeling well and yet not finding anyone who will treat me....or help me find some answers or relief.

    Any wisdom or experience anyone could offer is appreciated. Thanks in advance. Teddi
  2. karen55

    karen55 New Member

    you had a complete physical checkup with blood tests to rule out certain things. As for rheumies treating CFS along with FMS, my guess would be that it depends on the doc. So many docs don't even believe in FMS, my PCP included. My osteo has given me my diagnosis and has been treating me, but he just referred me to a rheumy who was really wonderful, and now she has referred me to an endocrinologist for some further tests. From what I have learned over the last few months, there are many things that need to be checked and/or ruled out before an actual diagnosis of FMS or CFS is made. Regarding referrals, if your insurance company doesn't require one (if you are on a PPO, or open access HMO, or point of service plan) you should be able to make an appointment on your own to see another doc. A rheumy may be a place to start; another option is switching internists if you can. Good luck.

  3. garyandkim

    garyandkim New Member

    good one. If he treats you this way, find another. You pay him and you must be your own advocate and don't give up.

    There is a doctors listing above. Click and check out your area for a FMS/CFS specialist. Also you can call all the Rhumy's and infectious disease docs to in your area find one.

    Make sure you write an on going list of all your symtoms no matter how small or non related you think they maybe. Keep a diary to to let you know what makes you feel worse or better.

    There has been research finding that women should not take Advil and that kind too much because it raises some womwns BP.

    Good luck, Kim and Gary
  4. teach6

    teach6 New Member

    I agree with the others about finding a new doc to treat you. I went through the same thing for years with my PCP's. When I took weeks, or even months, to recover from sinus infections I always got that look and the rolling of eyes, like there was no way I could still have it.

    When I had pneumonia for a month they sent me for a chest x-ray when I went back the third time, still feeling awful, still coughing, and they could still hear the rattle in my chest. I guess at that point they didn't even believe their own ears, let alone anything I said!

    I just was able to switch to a wonderful family medicine practice and am so glad I've found them. They have such a good team assembled there, including a doctor who is board certified in geriatrics, for my mom.

    Look under Doctor Referral at the top of this page and see if there are any CFS and/or FM specialists in your area. I believe I've seen someone on the list from Indianapolis, but I could be wrong.

  5. Teddifromindy

    Teddifromindy New Member

    My deepest thanks to all of you who responded to my post. I do think I need to get a new primary doctor, it just took me so long to find him. You see because of the depression, I currently am on ssdi and therefore my insurance is medicare and medicaid with a spend down and sometimes it is difficult to find a practioner who will take it. I am very grateful for it but I can't go to a doctor unless I know most everything will be covered as my family and I are basically living paycheck to paycheck and have no extras...

    Also about taking ibuprofen, the ent actually did prescribe celebrex first but medicaid would not pay for it..or any of the newer antiimflammatories.

    Being able to correspond with everyone helps me to not feel so alone and gives me hope.....I will keep trying to find a good practioner as I need to get better as I have an active 6 year old boy to raise.....those of you who have more children I don't know how you do it!

    Well everyone take care and thanks again..I will keep you posted. Teddi
  6. karen55

    karen55 New Member

    Would any of the "older" anti inflams be covered? There's one my doc is trying on me, cataflam, which is the generic of voltaren. The "newer" drugs are always more expensive; this one's been around for quite a while. Just thought maybe that would help.
  7. Teddifromindy

    Teddifromindy New Member

    Thanks Karen for the info on the cataflam. I didn't even realize there were older drugs of this class, other than ibuprofen and naproxen. I will mention it to my ent and see what he says. Is it easier on your stomach? Take care, till later, Teddi
  8. karen55

    karen55 New Member

    I've only been taking it for a week, and the main thing with this one is you have to take it twice a day. I take everything with food anyway, so as for the stomach, ask me after a few more weeks. LOL Seriously though, I've tried Celebrex, Vioxx, Mobic and Bextra, none of them helped me and I suspect this one won't either since I don't really have inflammation, but I'm trying it, hopeful it will help with some of the pain. Last week when I mentioned to my doc that I had stopped taking the Bextra because it wasn't helping and it was expensive, he suggested the Cataflam. It's an older drug, comes in generic and is cheaper.

    Here's what rxlist has to say on it:


    Pronunciation: dye KLO fen ak
    Brand: Cataflam, Voltaren, Voltaren-XR

    What is diclofenac?
    • Diclofenac is in a class of drugs called nonsteroidal anti-inflammatory drugs (NSAIDs). Diclofenac works by reducing hormones that cause inflammation and pain in the body.
    • Diclofenac is used to reduce pain, inflammation and stiffness caused by many conditions, such as osteoarthritis, rheumatoid arthritis, abdominal cramps associated with menstruation, and ankylosing spondylitis.
    • Diclofenac may also be used for purposes other than those listed in this medication guide.

    Hope this helps.