Does anyone else feel fibro is over diagnosed?

Discussion in 'Fibromyalgia Main Forum' started by shelly33, Jul 19, 2008.

  1. shelly33

    shelly33 New Member

    I'm just wondering because the more I learn about it, that's the feeling I get. Since being diagnosed just a month ago everytime I tell someone they say they know at least one other person with fibromyalgia. I just feel like it's something that can't be quickly diagnosed. I feel confident in my dr. diagnosing me because I have back and forth to the dr., specialists, etc. for almost 10 years. I've done everything and tried everything with no success. Then when my surgeon told me that I definitly had more then 11 of the 18 tender points (I actually think there are more then 18) I was certain. Finally, an answer to my mystery illness. Plus even though I had heard of fibro before that day I really didn't know what it was. So when I came home and looked it up I literally started crying. There it was in front of me. I feel sad to have this disease but relieved to know I'm not crazy. Now I can begin to move on. Anyway, I'm getting away from my original topic. Do you all ever feel that way about fibro being over diagnosed? My dr. told me that he had a lady come in that had only been his patient for a couple of months and told him she had fibro. Maybe she does but I feel there may people who say this because it can't really be scientifically proven. However, those of us with it don't need a scientific test because we know how we feel everyday! I'm sorry that I'm rambling but this past month has been a rollercoaster for me. I guess I haven't been able to wrap my mind around what my life with fibromyalgia means and I don't know what to do next.
  2. Janalynn

    Janalynn New Member

    I think there has a been a lot of discussion about this very thing. I think it really happened a lot before they came up with a better criteria and was more of a 'waste basket' diagnosis, which with what I've read lately, they are really getting away from.
    My cousin has Fibro. I never see her, but did last year - she lives across the country. I was really surprised. She only has "unexplained" pain in her back/ left shoulder area. She takes Aleve and it feels better. She doesn't have any of the other symptoms that I certainly have.

    Maybe some of us have "classic, no doubt you have Fibro", and maybe some have "you must have Fibro cause we can't find anything else wrong" ?? I really don't know.

    Overdiagnosing or giving wrong diagnosis certainly isn't helping the rest of us that's for sure.

    To you for a second... the time right after diagnosis is tough. Although it is such a huge relief to have a 'name' to what is going on, the rollercoaster as you described it begins. It's been a year for me (although I've had it for many many years) and it's been quite a journey...but I've made it, learned a lot, made some great friends and some adjustments as well.

    Support is KEY!!! I hope you have that in your life!
  3. lrning2cope

    lrning2cope New Member

    It seems like many people that I talk to say something like "Oh my sister/friend/boss/fill-in-the-blank has fibromyalgia. I have some people say that the fibromyalgia went away , or the person got therapy and it went away . Many people think they are experts just because they know someone who has fibro.

    I just can't believe that there are so many people coming out of the woodwork who claim that they have , or know someone who has fibro. , yet they live active lives with no symptoms . Of course , because of this , they can't understand how I can't just "work my way out of it".What is perplexing to me is that so many doctors don't know how to diagnose fibromayalgia , yet the tell people that they have it , apparently just to " get the people off their backs" .This kind of flippant attitude makes it hard for people who are really suffering from a very real and authentic case of fibromyalgia that changes thier whole way of living and their whole life forever.

    It makes feel like saying " Yes , I understand that _________has fibromyalgia , but it must be a mild case if she/he can do all the things they do. I just wish that real cases of fibro were taken more seriously . What I mean by real is the kind of fibro that changes your life so much that it turns your whole world around.It takes away all of your dreams for the future so that you are upside down from where you were and you have to re-invent your life , quite often with not much to work with from your " old life".

    Are all these people who say they have fibro doing so from a real diagnosis ? Do they self-diagnose ? Did they have a doctor who just "guessed" at what they had , and thought that fibro is so much in the news , I'll just tell them that is what they have and give them some excersizes and tell them to take ibroprofin?

    I don't mean to belittle people , but my fibromyalgia is the kind that needs major medical intervention , not the kind where I can do some stretches , take some over the counter meds and be all better. My kind of fibro has come into my life like a bomb. My life looks like a city that has been burned out with not much left to re-build. My kind of fibro is a totally life changing , forever challenge that needs much medical understanding and a lot of intervention from others just so that I can have a "normal" day and do the everyday life tasks.


    [This Message was Edited on 07/19/2008]