does anyone feel lik their making progress?

Discussion in 'Fibromyalgia Main Forum' started by sixtyslady, May 7, 2006.

  1. sixtyslady

    sixtyslady Member

    I don"t want to sound negative, but I just don"t feel like I"M making any progress here,
    just about the time I think I"m feeling better,then a new symptom starts in .
    I just had chills all this weekend,and I have stomach cramps,I just hate that because I have I.B.S. and if it starts up it takes along time to get straighten out again, the weather is so nice and I tried to go out side but just Don"t have the energy to stay out, I"m so tried of being trapped in the house, and everyone else enjoying the nice weather. all I can do is just sit here and cry.
    the drs haven"t helped me, I keep trying things I read and I think some of it helps,but then another ailment pops up.what can we do to get our bodies so healthy that this monster,cfs,fm just has to leave. sixtyslady

  2. mom4three

    mom4three New Member

    Me too. If it is not one thing it is another.

    I too am stuck in the house. I wish so much that I could go play with the kids somewhere. I feel awful that they do not get to go do fun things anymore.

  3. Jordane

    Jordane New Member

    I wish I had an answer for you hun.

    If there were a way to make us better.Believe me,I would tell you all!!!

    We all try this or that to help make it go away. But so far, nothing has worked!!:>(

    And yes I look out at this gorgeous weather we are having. And I wish I was out in it. My job I had was working outside,So I really miss it!!!

    Sending you gentle hugs!!:>)
    And a prayer for your painfull body to be well!!
    Luv "Ya,
  4. Mikie

    Mikie Moderator

    I have been making progress over the last five years but it has been agonizingly slow. I often have to look back a couple of years just to see how far I have come.

    I still have flares and get sick. I'm sick with something right now and running a temperature. I'm back on my Doxycycline for a week. I call things like this "little bumps on the road to healing."

    Love, Mikie
  5. Cromwell

    Cromwell New Member

    I actually feel a lot better than I did a few weeks back. The only thing that is bugging me at the moment is a really tight and very stiff neck and head and shoulderblade area, sore knees and the carpal tunnel.

    I really would be feeling greta today if I could rid myself of the stiff neck, which is not FM stiffness, it is like a pulled musle-so anyone with cure for it write!

    I was feeling like you, as the pain moves about so much, just a DAY without pain please----but if this pain goes, then I feel I will be doing pretty well.

    I even checked if I had meningitis symptoms today as the pain was so bad when I woke up, even worse than the day before.

    It will get better, your pain, you will progress I am sure. One day will be a little better. We may always have some pain, but so ong as it isn't on #10.

    Love Anne C

    Love Anne C

    ANNXYZ New Member

    but I have spent a lot of money and tried many things ( 2 fFFC's) and I have not had made a lot of progress .
    I am struggling with this issue and really low . If any of you here pray , I could use your prayer today .
  7. Mikie

    Mikie Moderator

    I pray for all of us all the time and just sent up a little prayer for you.

    As I've said many times here, it has taken me five years to make progress. Improvement can be so slow that we don't realize it's happening. Of course, if one is getting worse, one is not making progress. I hope you feel better.

    Love, Mikie
  8. sixtyslady

    sixtyslady Member

    thanks, it helps to know that some are making progress, it gives us all hope. I just wish we all can have good reports some day.I guess we all just have to keep trying and helping each other. have a good night, sixtyslady
  9. spacee

    spacee Member

    First, I had to get the kids to move out! lol. I have 3 sons, 30, 28 and 21.

    But the Immune Transfer C seems to be the thing for me. Now I realize that it doesn't do the same for all. But I travel, exercise, read, listen to music. Really amazing. Just can't work at a job...darn! hehe

    But at the same time, my heart aches for those of us who have the worst of this DD.

    Hugs, Spacee

    PS, My latest thing is no preservatives. I also eat an organic salad with spiced pecans and a few slices of granny smith apples and organic dressing for lunch. My nails have quit splitting and I definitely have better brain function and energy. I feel like a very lucky duck.

    Hugs, Spacee
  10. janieb

    janieb New Member

    Hi, I know we've talked before. I'm starting on the guai program. My new specialist tells me she has had some success and some failures. After all these years with little alternative, I'm excited about the prospect of this working.

    However, I know what you mean about something new always coming up. We might have this even without the fibro, you know. Perhaps I shouldn't have said that, because it isn't what any of us want to hear, but I try hard not to feel sorry for myself and not bother my family with every day's pain. My family is wonderfully patient with me, but sometimes, I can see that they just think I should just get up and do something. Walk around the house 10 times, go shopping, etc. Those are the days when I just can't.

    My husband has colitis and uses Immodiam for it. It works well. He has a sister with fibro who has IBS and uses the Immodiam, too. You might want to think about it.

    Sorry I couldn't be more help, but I do pray for all of us with this disease.

  11. anniec345

    anniec345 New Member

    sometimes prayer is the only thing my 60s brother can do - or that i can do for him. Remember that your limbic system (controls emotions) might be out of whack, too, which is hard to remember when you're feeling crappy. But the pain is real, the distress is real, and the crappy life is real. You have every reason to cry - lots to mourn, too. I say this from a Norm point of view, just knowing my brother. He tells me that that prayer helps him scrape by. STill, it's a scrape. I pray for your peace of mind and body.
  12. smiffy79

    smiffy79 New Member

    i'm on a good balance of meds for me, i pace and i work to manage my day and symptoms.

    yes i'm still ill but i am making progress by being positive and not looking to what i am unable to do. that doesnt matter - look to what you can do and build on that.
  13. Tantallon

    Tantallon New Member

    I have been taking supps to increase my energy and they seem to work for a few weeks but then stop and I'm back to normal.

    I've now realised that underlying factors need to be treated first before improvement can happen, so that is why I've started a new regime to treat the underlying causes first.

    The problem is we all seem to have varying illnesses and one line of treatment will not work for all, all we can do is ezperiment with different things and hope that we find a gradual improvement.

    I know you will probably already know this but it's the only answer I can give at the moment, sorry.

  14. suzette1954

    suzette1954 New Member

    worse each month. I sit and cry alot too. I have lost my purpose in life and the Lord hasnt shown me what its supposed to be now. I will pray for you as I do for all of you.

  15. JohnKlar

    JohnKlar New Member

    I am a first-time member, but I'm overjoyed to join you folks.
    I was devastated by fibro in 1997, as a 34-year-old male. I had the IBS, CFS, and pain that became so severe that I often couldn't walk.
    When I initially connected with support groups, I was frightened by how gloomy my prognosis seemed, and I had no helpful solutions so I dropped out.
    I tried everything, spending thousands on vitamins, acupuncture, therapies, different remedies.
    After a couple of years, it was suggested I might have Lyme Disease, and I ended up on a course of antibiotics. After one and a half years of this, I could say that I was actually improving. After another year, I burned out my stomach, and spent the next year trying to heal that. Now I'm back on the antibiotics, and they seem (though slowly) to be helping. I can easily say that I am immensely better off than I was in 1998, and this has given me hope that I may continue to improve. The way I feel today would make a healthy person think they were very ill, but compared to the way I once felt, this is a world of difference, and bearable. I still suffer greatly if I don't get enough sleep, eat poorly or don't eat, encounter significant stress, or do too much. But there are relatively pain-free periods where there were once none, my IBS is almost completely resolved, and I sleep pretty well most nights.
    I must offer that I found faith through the intensity of this illness, and that prayer and hope are in themselves curative. Many of the things suggested in the other entries are also undoubtedly helpful: avoid toxins like artificial sweeteners, tobacco or drugs, caffeine, or alcohol; try to get restful sleep and gentle exercise; breath deeply, especially when stressed by pain or circumstances; pray or meditate.
    Research is revealing that a substantial percentage of fibromyalgia sufferers have Lyme disease, which can attack the cranio-sacral system. I don't wish to offer false hope, but for people who have Lyme, other treatments will likely not kill this bacteria, and successfully treating it can offer near full recovery. If nothing else, all fibromites should be properly evaluated for Lyme Disease. Please note that "properly" means by a physician with noted expertise in treating Lyme, for the standard tests are unreliable, and a false negative could leave you suffering for life.
    Many will tell you that there is little or no hope for curing fibromyalgia -- do not despair, for that will make you worse, and there definitely is hope. I am convinced that prayer has helped me immensely, and I am actually thankful for that aspect of this illness which has helped me to appreciate the little things in life, and which has networked me with so many fellow sufferers, with whom I share an immediate and powerful bond of compassion and understanding. We must stick together, recognize that life is not over, and find ways to remain positive. See Romans 18:28-28. Bad things happen to help us find a better path....
    I hope some of this information is helpful or encouraging to someone. I will pray for you all.
  16. sixtyslady

    sixtyslady Member

    once again thanks, it gives all encouragement to know people are getting better.
    it helps us all to want to keep,moving foward in this battle to get well.
    and I truly believe we well find the way, through sites like this, research, from all of us trying different approach"s. and sharing our ideas with each other.
    Hugs, sixtyslady
  17. millennia

    millennia New Member

    Yes, I've made a lot of progress. It started with Omega 3 and calcium pyruvate which helped with energy and fibro fog and depression. But I was still in pain. My doctor gave me mirapex, I know a lot of people had trouble on it, but it has worked great for me. My pain level has dropped! Hopefully if you keep trying new things, you'll stumble onto the right connection. Good luck.