Does anyone feel slightly mad - like you've gone a bit crazy

Discussion in 'Fibromyalgia Main Forum' started by Misdiagnosed, Apr 11, 2003.

  1. Misdiagnosed

    Misdiagnosed New Member

    Hi there

    Since I developed FMS I feel different mentally - super irritable, unstable, like there's something affecting my brain too.

    I have an enlarged gland on the side of my neck that the doc. is going to biposy next week. I had 24-hour viral diahorrea about 6 months before all this happened then developed really bad constipation that resulted in my right shoulder muscles going all sticky and gummed up, and created an intense feeling of pressure up my neck and into my skull. I really had to stop myself from feeling I was going mad till I got the constipation under control. That took 6 months!

    Then I had a spasm in my hip and the muscles there responded by staying stuck and 2 years latrer are still stuck. Now affecting my leg and toes, both hands are numb in the fingertips - what the heck is going on?

    I'm not getting very far in solving this as there's constantly spasmed muscles in my lower right spine that pull on the hip and leg muscles all the time. Deep tissue massage has relieved the stuckness in my shoulder but the deep spine, groin, hip muscles cannot be got at tin the same way.

    Does anyone elese have these chewy muscles and lumpiness?

    Thanks
  2. layinglow

    layinglow New Member

    If theres anything that will make you feel outta whack it's these disorders. The CFS makes me spacey, forgetful, incompetent, and dingier by the day.
    The endless places that FM can assault astounds me more with each passing day. Some mornings when my hubby asks how I am, I jokingly reply, "My big toe is great, today, thanks!"

    I went through a very irritable time, and also finally realized I was depressed as well, and have taken measures to help this. I know my family can tell you it was a godsend!

    Are you taking any meds, supplements, and vitamins to help you get the muscle symptoms and also the numbness under control?

    Best wishes,
    LL
  3. Misdiagnosed

    Misdiagnosed New Member

    Hi Layinglow

    Thanks for your support .

    Tried anti-depressants and gave them up after 3 days - couldn't sleep or eat (Zoloft). Tried anti-inflammatories - no benefit.

    Valium helps when I'm having a severe stress attack and muscles need to be turned down. Am not really keen to take medications. My main problem is related to the spasm in the right hip - if I could undo those muscles I think I could cope a lot better. Had lots of physical therapy, but none will resolve it.

    Am taking Co-10; Vit C; B Complex, Vit E; Fish Oil; Flax seed oil; Probiotics; valerian and ZM to sleep. Have just been put on natural hormone troches as my oestrogen and progesterone were unmeasurable (menopausal), and am looking at glyconutrients.

    I'm aware of being depressed but don't want to take anti-depressants.

    What's your regime if you don't mind sharing it with me.

    Thanks
    Gill
  4. Mikie

    Mikie Moderator

    You might look into Klonopin. It will help with the edgyness and it will help you sleep. It also helps relax the muscles and helps with sensory overload. Of course, it doesn't work this well for everyone, but it has been a God send for me.

    Klonopin is an anti-spasmodic medication in the same family as the tranquilizer, Valium.

    There is an article on Klonopin in our library here written by Dr. Paul Cheney. Do a search on his name and it will bring up all his articles. The article on Klonopin does an excellent job of explaining many of our symptoms.

    Love, Mikie
  5. klutzo

    klutzo New Member

    I have had the same irritability you describe ever since menopause. I also have two friends who complained of this extreme irritability when they went through menopause, and they do not have Fibro. It can last for years, since menopause is not an overnight thing. I'm sure the Fibro makes it worse, but menopause can do this to anyone. I do not like these personality changes at all....I'm with you on that! But, I liked what the hormone pills did to me even less. So, I just take Xanax when I am going to be around people I don't care for so I won't lose my cool. This works for me because I spend most of my time alone, but if you have a big family at your house, or friends visiting all the time, you'd be popping pills all day. I don't know the answer, so I try to look on the bright side, and yes, even irritability has a bright side! Before this, I let people use me and take advantage. I was everyone's free shrink and dumping ground. Now, I don't take any s*it from anyone, and I assert myself and stick up for my needs. I may have some enemies now that I did not have before, but I also get my needs met more often, which is good.
    Klutzo

    P.S. BTW, your supplement regime looks very good, but have you tried GABA? It is the major calming neurotransmitter in the brain, and has been proven to be low in Fibro folks. It is a lot cheaper than drugs, has no side-effects, and can be found at the health food store. I take the maximum dose (750 mgs. twice a day) and it really helps. Neurontin, Klonopin, Xanax and Valium all work by increasing GABA and/or attaching to GABA receptors. The OTC GABA is not as strong, but it does have an effect, at least for me, and is cheap enough to give it a try.
    [This Message was Edited on 04/12/2003]
  6. Misdiagnosed

    Misdiagnosed New Member

    Thanks a lot to all of you for your suggestions - I'll look into GABA at the health food store and might ask my wholistic GP about Klonopin although she is very against drug taking - she's the one that put me on compounded natural hormones - I got the valium from my last regular GP.

    The feeling of tension is mostly confined to my right hip, lower back and leg. The rest of it is being fairly well controlled by physicial therapies, but the tension in my right leg/foot/hip/lower back drives me to the point of snapping - I just never feel normal.

    Thanks for your support
    Regards
    Gill
  7. marta

    marta New Member

    Yes, there is nothing like this illness to make you feel like you're losing your mind. Worse, many doctors support that belief to one degree or another.

    I had a lot of muscle spasms allllll over my body, mainly concentrated in my left hip. My knees and neck were also painful as well as my upper back. I spent hours and many dollars at the chiropractor and, although he helped for a day or so, bingo! right back again.

    Then my doctor had me stand in front of her, barefooted, and said that my arches had fallen which had caused my hips to be displaced. Amazing but true. I knew my feet hurt a lot but hadn't associated it with the rest of me. I got orthotics from a podiatrist and have had much improvement in my pain. Just a thought for you.... It's easy to forget that we can have "normal" problems, too.

    Marta
    [This Message was Edited on 04/12/2003]
  8. TracyV

    TracyV New Member

    I just feel like people expect too much somedays(family!) I recently gone back to work after 3 years of being a stay at home mom(so I mean I just get paid to work now, I worked harder at home) I've gone through a big move to another part of the country (I haven't been very happy about it on the most part) I've had to change doctor, I've finaly found one I can deal with but it took seeing a few jerks first.(I still liked my old doctor back home better, and just got another referal to a pain specialist that treats FM also) so we'll see. My imedited family and some in-laws can't understand why I'm in a bad mood most days(none of them can pronounce fibromylagia much less know what it is)
    I know I'm not much help with this post, but it is sure nice to vent somewhere! I've tried for the past 2 days to be as sweet as sugar, but I feel like my heads gonna explode pretty soon if I have to keep up the act!
    Hugs from a ranting lunatic!
    Tracy