Does anyone have a frozen shoulder?

Discussion in 'Fibromyalgia Main Forum' started by EllenComstock, Sep 11, 2005.

  1. EllenComstock

    EllenComstock New Member

    I have had severe pain and stiffness in my right shoulder for over a year. I recently heard about "frozen shoulder" and wonder if this could be causing some of the problems I've had. I have assumed that it was the FMS causing this, but I don't want to rule anything out.

    I tried to find information on this, but didn't find much except that physical therapy over a long period of time can help this.

    Has anyone been diagnosed with this and what has been your experience? Does anything help it? I've tried several things to help my shoulder (accupuncture, massage therapy, resting the shoulder as much as possible, carrying a lighter purse, ice packs, heating pad, chiropractic, etc.), but nothing helps the pain and stiffness. My neck and upper back are bad also, but my FMS doctor says that is the FMS.

    I go back to the FMS doctor next week and thought I would ask him about frozen shoulder. Is this something that is common with the FMS? Any information would be appreciated. Thanks.

    Ellen
  2. EllenComstock

    EllenComstock New Member

    for the replies. Sorry you all have suffered like me. I will definitely talk to my doctor when I see him next week. I am so glad I finally found a great FMS doctor who really listens to me and is willing to try to make me more comfortable.

    Ellen
  3. Bailey-smom

    Bailey-smom New Member

    I actually started PT about 2 weeks ago in part because of that issue. Mine was caused because of the trigger points in my right shoulder. With the ultra sound, moist heat & massage X3 a week it has begun to improve.

    I know that some do not like anti depressants but Friday my neurologist put me on a new one called Cymbalta. I have seen others post about it here as well. It has been remarkable for me. It has really helped with my pain. Dr King said that it is not only being used for depression but for FM pain as well.

    Good luck!

    Kelly
  4. FM58

    FM58 New Member

    Hi Ellen,

    Actually BOTH of my shoulders were dx as frozen earlier this year. I certainly can relate to your pain. I went to PT for months for the first one, then the other one started acting up. I only got improvement if I consistently stayed w/ PT. If I missed, I slipeed back. So when I was sick, I slipped back, my PCP's officed messed up the referral, I slipped back, I had a CFIDS flare, I slipped back - each time I may have missed only 2-4 appts So that is only 1-2 weeks.

    I finally saw a "shoulder specialist" ortho - He explained to me how it can take years of PT to get improvement. Sorry I can NOT afford the co-pays for that! The ortho gave me cortizone shots(ouch!) first in the shoulder that was the worst, pain & range of motion wise. Then 2 weeks later the other shoulder. I had the injections at the beginning of the summer, they ar just starting to wear off now - I am starting to get the pain back again & my range of motion is not what is was.

    The ortho told me they don't know what causes frozen shoulder. He told me perhaps my FMS has a part to play in it.

    Moist heat helps, I still try to do the stretching exercises the PT & the ortho taught me. How is your range of motion with your shoulder? How far can you reach up, out? Bend your elbow, stand w/ elbows tucked by your side, how far can you extend your palms out? How far up your back can you reach? These are all ROM points a doc will check.

    Good Luck Ellen. Let us know what your FMS doc has to say. Hope your shoulder feels better soon.

    Hugs,
    Patty
  5. ilovecats94

    ilovecats94 New Member

    Ellen,
    I have had frozen shoulder on both shoulders in the past. My right one was prior to my FMS dx.

    My left one was while I had FMS. On the left one I didn't do anything, but it took around 4 years to go away.

    My first symptom was pain, then loss of range of movement. Especially when I would try to move my arm to my back.

    I did have PT on my right shoulder and it really didn't help all that much. Seems the best help I got was just time (years).

    Do you have any problems with your range of motion for that shoulder being more limited than your other shoulder? Does it hurt more at night when you are trying to sleep than at other times?

    I don't know if it is common with FMS, but I know that it is common for people who have diabetes, which I have had for 29 years.

    I just hope once one gets it, one don't get it a second time.

    It will go away so slowly that all of a sudden you will wonder "what happened?"

    You can use meds for pain, heat, ice, whatever makes you feel better, but like the old saying "time heals all wounds," is so very true for this.

    You will feel better one day. :)

    Big healing hugs,
    Faye

    [This Message was Edited on 09/13/2005]
  6. jana15

    jana15 New Member

    I have experienced the pain in my right shoulder - thankfully it only lasted about four months. I found it most disabling - I couldn't drive or do any housework at all. I was prescribed Tramadol which was gread for cutting down the pain (it didn't take it away) Thankfully I have a wonderful husband who picked up the flack and so we managed to get through but I know what you're going through and I hope you're getting help and support too.

    As to whether it's frozen shoulder or not, well I don't know but I did mmet and observe a person with frozen shoulder last week and her ability to move was certainly much better than mine was when my shoulder was playing up.

    Cheers Jana
  7. tonakay

    tonakay New Member

    I've been fighting right shoulder pain for a few weeks now. I figured it was fm. It hurts all day but is worse at night if I try to sleep on that side. If I roll over on it in my sleep it wakes me right up. Jeez why couldn't it be my left shoulder so I could get more done...LOL

    Glad for all the suggestions!

    Hugz,
    Tona
  8. EllenComstock

    EllenComstock New Member

    It was great to see all the responses to my post this morning! Thanks for all the replies, but I'm sorry that all of you are going through what I am. I am on morphine (20 mg.), gabitril and cymbalta, all of which are supposed to help with pain, especially the morphine. I am fortunate to finally have found a doctor who is addressing my pain more aggressively.

    When I see him next Monday, I will have to ask him to up the morphine. I hate to do that as one of the side effects I've had with it is nausea. That side effect is finally easing up, but I'm afraid it will be back with an increase in the dosage. I guess I have to decide what's the lesser of two evils.

    I will also ask him about physical therapy. What kind of therapy did all of you have-just different exercises? I'm wondering if water therapy would be good as long as the water was warm enough. Just the thought of it sounds good.

    As far as range of motion, I do pretty good, except when it comes to raising my arm. When driving, I just use my left arm and rest my right arm on the console between the seats (is this the word I want?) The very worst is putting my arm back-if I have an itch on my back I have to stand against a wall corner and itch that way. I'm afraid to push my luck with the left arm since it's my only good arm. Unfortunately, I also have a lot of back itching.

    I'll keep you posted on what the doctor says. Thanks for all the replies.

    Ellen
  9. PepperGirl52

    PepperGirl52 New Member

    Before I even had FMS, I have had problems with my shoulders. I also have cervical (neck) disc problems, so I don't know which came first.

    Anyway, I had the cortisone injections a few times, and they felt WONDERFUL to me!! They really helped me. But you can only get a few of those, then you're on your own!

    I have also gone the PT route, with no help, and now I just use heat or ice, and hope for the best. Good luck!! PG
  10. EllenComstock

    EllenComstock New Member

    cortisone shots, but I guess I'm a wimp when it comes to shots. Of course it would be worth it if it helped. Maybe my doctor will have some suggestions.

    Ellen
  11. RioRita1717

    RioRita1717 New Member

    Hi Ellen,
    If you do have frozen shoulder I know how painful it can be. A lot of folks have written just about everything possible on it! I just thought I'd add my experience with. I don't know if "frozen shoulder" and "adhesive capsulitis" are the same thing, but I had several surgeries on my shoulder to repair a torn rotator cuff(have to go through ANOTHER one - that will make six!) and was told that if I didn't keep up with my p/t I would get this "thing"(they used both terms interchangeably). I DID my p/t ad-nauseum and STILL ended up with frozen shoulder/adhesive capsulitis. I've heard that even more extensive P/t can help it but I ended up having to have it surgically repaired(surgery #2!). So, if anyone recommends p/t, I suggest you do it as much as possible!

    PS - Mine was diagnosed by an ortho.

    Best of luck to you,
    RioRita
  12. tonakay

    tonakay New Member

    please start us a new thread after you see your doctor on Monday...

    Hugz,
    Tona
  13. EllenComstock

    EllenComstock New Member

    for all the replies and everyone's concern. This certainly is a great place for good advice and sympathy! I will start a new thread when I know more about my shoulder.

    Ellen
  14. happygranny

    happygranny Member

    I just hung up the phone from making an appt. with a new chiropractor when I came here and saw this thread.

    Chiro treatment does seem to help, for a while, then it comes back.

    I have had a lot of neck and back problems and await a CT scan.

    Ellen, hopefully you will get some help from your Dr. Appt.

    Happygranny