Does anyone have problems with speaking or writing/typing?

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by kjade, Jan 3, 2008.

  1. kjade

    kjade New Member

    I suddenly feel like I am going downhill very fast. Lately, I notice that I am having trouble speaking correctly. The words don't seem to come out right----I lose my train of thought mid-sentence. Or I have noticed that I sort of "stammer" or "stutter" when I am speaking to someone. It can be very embarassing. It almost sounds like I am drunk or something.

    Also, I have always had beautiful handwriting. Lately, I cannot even write a check properly. I mess up with numbers or letters constantly----I am always screwing up at work too. I have always been a very good typist and speller, but I can't even type anymore. It is like I have these big heavy fingers/hands and they just don't work. Like my brain is telling them to do one thing, but my hands do another. I cannot mess up like this with the job I have! I screw up so much when I'm trying to type that it takes me FOREVER to type anything!

    Also, I speak on the phone at work, I cannot find the right words and feel like I sound like I am slurring. This CANNOT happen to me now!! I will lose my job soon if this doesn't stop!

    I feel I have always been a very intelligent, well-spoken lady....but lately, I just feel very stupid and inadequate. I don't even want to talk to anyone because I am afraid what they might think when they hear me talk.

    I wonder sometimes if the meds I take aren't causing this, but how do I know for sure?? Or how do I know there isn't something else going on much worse than Fibro!! I am frustrated and depressed beyond belief!! I am not ME anymore!

    Could this all be related to Fibro symptoms and brain fog? Does anyone else notice these issues? I am really starting to get worried. Oh, and I won't even mention the problems I have with balance and walking...those sx are another scary issue for me.
  2. jennbug

    jennbug New Member

    Be careful that you don't let this isolate you. I had this happen to me and found that as soon as I addressed my sleep issues that Iam not as stupid. LOL
    jenn.
  3. Missizzy

    Missizzy New Member

    Kjade--I've struggled with both of these issues from the get-go. I used to be such an articulate speaker (I was a professional child advocate and public speaker) that the word-slurring and speech retrieval just floored me. Just don't give up. My sweet daughter-in-law (an English professor) has called me at 9:00 am for the past three years and given me a work-over. We discuss politics, philosophy, sociology, and sometimes (God help me) Britney!! She never offers up words to me but makes me work at it. It has been amazingly helpful as well as giving me a reason to wake up in the morning. Bless her heart. My doctor believes firmly in the "use it or lose it" philosophy. I think he's right.

    I also lost my ability to handwrite suddenly about a year into my illness. Overnight, my handwriting looked like a second grader's. I could not sign checks or fill out mortgage papers. It was so humiliating to have everyone "fawning" over me and telling me "it was all right". It was not all right at all--I was furious!!

    After months of working on my writing and knitting really difficult lace patterns, I've found that most of my skills have come back. There was a thread a couple of days ago about handwriting and the consensus is that it comes and goes with flares.

    So, please don't despair. These fine motor skills are probably not lost, just temporarily compromised. I truly believe that our central nervous systems have taken a direct hit. And by the way, if you read my profile, you'll learn about my struggle with ataxia, balance, vertigo, and tremor. Sounds like we have many symptoms in common and I have to admit, they are scary.

    I'll be thinking of you.

    Missizzy
  4. lookingoutthewindow

    lookingoutthewindow New Member

    I also started experiencing the same symptoms. I thought it was side effects to Lyrica, but my Dr said it wasn't and sent me to a neurologist. A MRI showed lesions on the brain in an area associated with MS. A spinal proved I don't have MS. I was told brain lesions can be part of FM. I still don't know if it has anything to do with the symptoms. I stopped taking Lyrica and the symptoms seemed to improve, but the pain returned. I started taking Lyrica again 3 weeks ago and will increase the dose next week. The last time the symptoms seemed to appear when my dose was increased. I will be anxious to see if this happens. I truly hope not because Lyrica helps so much with the pain.

    Are you taking Lyrica?

    Johnna
  5. CAAnnieB

    CAAnnieB New Member

    You are not alone in this...

    One problem I've been having more lately is word retrieval problems. A few days ago, it was extreme. My hubby & I were out shopping & I kept saying the wrong words! My brain felt SO messed up! I'd say a wrong word & then realize that it made no sense...Then I'd struggle to find the right word. And I mean REALLY simple words! Mostly I'd substitute the wrong noun for another. I felt so dumb! The wrong words were flying out of my mouth all day!

    I don't know why some days are worse than others for me. If I worked at a job outside the home, I'm sure that I'd feel more disturbed about it. My family has gotten used to my Fibro brain...Poor memory, word finding problems, etc...I have had slurring of speech when I'm fatigued or as a side effect of some meds.

    Because you also have balance & walking problems, I'd encourage you to pursue diagnosing these symptoms with a neurologist. Don't just write them off as part of FM until you have ruled out other possibilities.

    You could also check with your pharmacist or research online to find out if your meds are a possible cause of your symptoms. It could very well be contributing to some of your problems.

    I hope that you find some answers soon.

    Hugs,
    Annie
  6. kjade

    kjade New Member

    jennbug: I'm trying not to let it isolate me, but it's really hard not too - I feel very alone in my life....no one understands. Thank goodness everyone here does - I wish you could be with me all the time.

    missizzy: Thank you for your kind words. That is wonderful that your DIL talks with you everyday and tried to help you. Nobody helps me....they all feel I am fine - that I am just under too much stress. I agree with you that our CNS seems to be the problem. I just wish Drs/researchers would figure out the problem once and for all so we could all get better. The symptoms of this dd can be so severe at times, and it gets quite overwhelming for me. I only hope this passes soon. I really am having trouble typing, and I hate that.

    Johnna: Yes I too take Lyrica. Sometimes, although Lyrica does help with pain and anxiety, I do feel strange symptoms soon after I take it, so maybe it is the medication. Although I did notice these sx before I was taking Lyrica, so I guess it is just FM.

    Annie: I have had every test and been to every specialist there is over the years. My main fear a few years ago was that I had MS or Parkinson's or ALS. I had a brain MRI a few months ago, and they said it was normal, other than a few white spots. They told me those could be anything....like from bumping my head as a child to chronic headaches, so who knows? I'm glad to know someone else has trouble speaking. It gets so frustrating. I do the same as you - I replace the correct word I'm trying to say with another word that has nothing to do with what I'm saying. I try to laugh it off, but it still upsets me inside. I am so afraid this will only get worse.
  7. Missizzy

    Missizzy New Member

    Kjade--I have three little words for you--we're not nobody! Please don't forget that every single time you post on or read this board, you are using your cognitive skills and you are tapping into a huge well of compassion, knowledge, understanding, and love. I'm so sorry you have no one close who is responding to your needs but don't forget about your many friends here. Yes, I am blessed with having a wonderful daughter-in-law but I also feel blessed to have you guys. Nobody in the world understands like all of you. My thoughts are with you.

    Missizzy
  8. MamaT1967

    MamaT1967 New Member

    I have said that I am "orally dyslexic" for a few years now. Using that "unofficial" med term when I mess up in public takes the stress off of me and usually gets a laugh from whoever I'm speaking with.
  9. munch1958

    munch1958 Member

    I used to have the same sort of issues. Couldn't read a book because I couldn't concentrate. I'd read the same paragraph many times and give up because it didn't make any sense.

    Couldn't write anything without using a spell checker. Some days "THE" looked wrong.

    I found myself typing the wrong word. Like my fingers weren't connected to my brain anymore.

    I couldn't follow a conversation so I'd sit there and blankly stare at nothing. People used to ask me if I was OK.

    I have white spots on MRI in several areas of my brain. Also the diagnosis of brain atrophy with a possible 4 mm cyst scared the cr*p out of me.

    For awhile, I was a sea of bruises from walking into doorways and falling down. Balance was a big problem after the tick bite I had in 2001.

    Most of this has gone away with Borreliosis treatment with 8 hormones including HGH, heparin, Abx, and yeast meds.

    Most people with Lyme do not remember a tick bite or an EM rash. I do but my Lyme tests were all negative. Have you researched this?
  10. harmony21

    harmony21 New Member

    missing words when typing, letter in wrong place or missing, not being able to find the word we want and thus playing a game of charades.....

    Since taking Lyrica at least my fingers are going to the right keys most of the time but I still have issues with all that as well

    Recently had Ct for the brain and it showed nothing, that maybe the prob.lol

    No one knows its so ery scary

    angel hugs and blessings
    Connie
  11. CanBrit

    CanBrit Member

    There was a small study I read about before Christmas where a group of FM sufferers had MRI's. In the scans, it was noted that grey matter in one area of the brain had decreased while in another, it had increased.

    What I deduced from this rather technical summary is that the decreased area affects speach, balance, etc which can cause difficulties in finding or saying words, clumsiness and that off balance feeling.

    The increased side affects the pain receptors which can account for our increased joint and nerve pain.

    So it a nutshell, I get it too. I type words backwords, come out and say the damndest things and when I'm in a flare, I'm very clumsy.

    Classic FM to me...

    CanBrit
  12. Mom2Hayley

    Mom2Hayley New Member

    I stumble over words and say the wrong things all the time. I find it embarassing. For instance, I was out with my husband and say a man with a dog. I said to my husband and kids, look at the great dane! It was a dalmation. I saw dalmation, I thought I said dalmation, but it came out great dane! My husband corrected me. I do this all the time. It is driving me crazy, plus now I stutter and talk slow and am afraid of messing up at work. So far, I pretty muuch have control over my fingers, except they are numb so much of the time even while typing.

    I not only stumble over words, but bump into everything and have dozens of bruises. I hate FM!
  13. nerdieduckie

    nerdieduckie New Member

    I've noticed my problems seem to worsen when I get tired.

    I can never talk very well anymore, I sound like Elmer Fudd half the time with his "wascaly wabbit." I never had any speech problems when I was a kid, now I can't say anything with the letter "R" in it properly. I also stutter a heck of a lot more. I never used to have problems with that either.

    My handwriting has gone downhill (tho it never was beautiful to begin with...), my spelling is atrocious (and this is really painful, coming from someone who used to be the top scorer on the spelling teams in school >_<), and I also have the problem where it feels like my brain isn't connected to my hands. I will do that while typing and writing both. I'll be writing some word and it'll come out as another.

    it's really frustrating. i'm so excited that they have come out with word game video games. I've already purchased one of them. I'm hoping I can possibly regain my previous vocabulary. I miss it...
  14. littlebrownwren

    littlebrownwren New Member

    It's like a game of charades around here sometimes.

    Can't find key words. Occasionally have days of sluring words.

    I use to have pretty hand writing and now it's pretty much shot.

    Spent yrs working on my genealogy, writing tiny precise numbers and letters. Can't write tiny and neat anymore.

    A few weeks ago I went back through some of my old post, 05/06 and deleted quite a few but I noticed a big difference in the way I wrote a sentence then, and now.

    Now my fingers and my brain are out of sync. I am embarrassed at all the errors in my posts and have considered giving up posting and just reading.

    However, I have noticed that when my diet and sleep are in sync, my problems are not as bad.

    I always read the paper in the morn and work the xword to get my brain kick started. Uh,forgot to mention my morn coffee.

    wren

  15. soozan48

    soozan48 New Member

    i seem to have spells in which i am really bad but i am never great. I feel like i am a real idiot.
  16. AnnieLeu

    AnnieLeu New Member

    trouble speaking. I lose words & like you I lose my train of thought & have trouble comprehending at times. I stutter also. I have found myself repeating what I said more than once....and yes I feel stupid too! But I'm not going to quit talking because of it. My writing is horrible when I used to get complimented on it. It's another symptom of fibro I'm afraid because this was happening when I wasn't taking narcotics. I don't believe in giving up. You don't want to be a hermit because that is no good either! I have a friend with fibro who used to be a nurse, she can no longer remember what to do. I hope your employers are understanding & let you continue working, perhaps at something else.
  17. yellowstrawberry

    yellowstrawberry New Member

    Yes,I get like this quite often.I do believe some meds do cause these symptoms,but I get them without meds so I chalk it up to FIBROFOG!I also jump right to "It must be a brain tumor!"but that has been ruled out and brain tumors symptoms are different than this.

    Just know many of us have this.A lot of people think I have been drinking or drugging when I get like this,but I never drink or drug,so I just have to keep a sense of humor about it all.
  18. SpecialK82

    SpecialK82 New Member

    I am the exact same way - I think a certain word and say another. My husband knows what I'm going through and just laughs but at work it's is so frustrating. You are trying to appear competent and in control and sometimes you can't even get out a sentence correctly. I have to talk slower at work and think about each word more carefully before I speak. I think this just adds up to being exhausted at the end of the day! I've told this to a few doctors but they just kind of look at me funny - just another problem that I must be imagining.....

    Sometimes having these issues make me feel so alone - it's nice to hear you all understand!
  19. DeborahLynn

    DeborahLynn Member

    When I first started experiencing these symptoms and abnormalities, it scared me, too. Now I recognize them as symptoms of CFS and FMS, after researching and reading.

    I've noticed that good sleep seems to help me. For a long time, my sleep quality was very poor. I have found that taking 3mg melatonin a half an hour before bedtime helps me a lot, and taking probiotics helps with many of my ME/CFS and FMS symptoms.

    God bless!

    Debbie
  20. georgie0826

    georgie0826 New Member

    my mother in law was in the hospital last week. she was being a pain in the butt.we were talking to the doctor about what to do, he talked about sedating her. I agreed and said lets just keep her seduced. I don't know if he noticed but i about died. at least the words started with the same letter. I try not to talk to aquantices in town, i'm afraid they will think i'drunk. plus i'm not steady on my feet.
    Sorry for so many errors, i'm typing in the dark and i've had my sleep meds. Which don't seem to be working to good, since it 6 am here. haven't had any sleep yet.