Does anyone have the same problem I do?

Discussion in 'Fibromyalgia Main Forum' started by CockatooMom, May 21, 2006.

  1. CockatooMom

    CockatooMom New Member

    Hi everyone! I'm 37 and was Dx w/fibro over 10 years ago. Over the last 6 to 8 years I have acquired an increasingly annoying problem...excessive sweating, mostly my face & head, but also under my breasts. A girl I used to know told me she had excessive sweating and it was a "side effect" of fibro, but she sweat under the arms and so forth.

    For me the sweat just runs off my head and my hair gets soaked when I do something as simple as vacuum the floor, make the bed, cook dinner, or fold laundry. Sometimes I have to stick a "Bounty, cause its the quicker picker upper" under my breasts!! HaHa

    When I get ready to go somewhere I have to start my shower 2 hours ahead of time so my body cools down enough that I can blow dry my hair, or it's usless. Blowdrying causes me to sweat more and the hair on my scalp stays wet.

    I have tried running cold water over myself before I get out of the shower, opening windows in the winter to let the heat out of the bathroom, lower heat settings on my hair dryer...NOTHING WORKS! I do not take a hot shower either. And, I have to keep a fan blowing on me then entire time I am trying to get ready.

    This winter I stood outside on my porch in 20 degree weather to eat my breakfast because I would be soaked with sweat if I tried to eat in the house.

    It can't be menopause since this started when I was 28/30 years old.

    I used to be cold all the time. I would layer a t-shirt, turtle neck and sweater in the winter, and a coat for outside. I have sold all of my turtle necks, rarely wear sweaters, and do not even wear a winter coat...I live in Pennsylvania, so winters are cold.

    I am in college full-time to become a registered nurse, which I don't advise to anyone with fibro. I do not have health insurance right now and thought about going to an endocrine specialist after I graduate in a year.

    In the mean time any reply would be greatly appreciated. I make jokes about it, but I get really frustrated and depressed about this.

    Thanks in advance for your love and support!

  2. erfula1

    erfula1 New Member

    A couple years ago I had the same exact problem. Everyone else would be cold and I would be pouring sweat. It lasted about 2 years. I still sweat more than a normal person but it isn't as bad now. I don't blow dry my hair most days still. I have naturally curly hair thankfully so it looks good when I don't dry it.

    What meds are you on? I was on medications when it was at its worst and now I am med free and it isn't as bad. I know that Cymbalta can cause excessive sweating and a DR told me that some muscle relaxers can. You might want to check into that. I think that it is a FM symptom but I think the meds made it worse for me.

    I went to an endo to try and find out what was causing it and she had no answers for me. SHe said horomones were normal and everything looked fine. I had even researched about a gland that causes excessive sweating and she said she didn't think that was it. I was hoping it was because there is a surgery for that.

    Good luck, I hope they can tell you what it is. It is definately embarrasing and hard to live with.
  3. julieisfree05

    julieisfree05 New Member

    I had this problem until I started the Xyrem last year (see my posts about it if you're interested).

    One thing to beware of!

    The sweating, along with the immune system dysfunction, can lead to topical YEAST INFECTIONS!

    I had them on my neck and under my breasts for more than a year! The dermatologists all thought that I had some kind of rash and prescribed anti-biotics and cortisone creams - which FEED yeast!

    I finally saw a FEMALE dermatologist, and she recognized the rash as yeast, but I still have some scars on my neck from the rashes. If you do break out, ask your doctor to check for yeast. All mine did was put some "yeast" cream on it, and the cooling relief was immediate. That told us that it was yeast, and putting the cream on it for a couple of weeks cleared it right up.

    Hope this helps,

    julie (is free!)

    She only smokes when she drinks
    she only drinks now and then
    now and then when she's tired
    of bein' let down by men.. - Joe Nichols
  4. suzette1954

    suzette1954 New Member

    I get out of breath just turning over in the bed and then break into a sweat. Going to the store is awful. By the time I get to the checkout, You could wring me like a sponge and I walk very slowly and lean on the buggy. If I go down steps(forget about going up) the sweat pours off of me and yes I sweat under my breasts.

    Ive found that Shower to Shower powder helps some with the sweat and I feel like I smell better with it on.

  5. kmoss55

    kmoss55 New Member

    I have this also.I can't even go anywhere that when I get there I am sooo wet!!!!!!!!!!! My hair and face looks like I am in a waterfall. The Dr. says that it is from the Fibro and some of my med's. This is so bad, I hate having to go out.

  6. Jo29

    Jo29 New Member


    You just described me to a T.

    I could have written it myself. I have been looking for some relief. There are some clothes I would love to be able to wear, but just can't. I wear spring coats in the

    I am overweight, but have lost about 20 pounds. I still sweat! It is embarrassing.

    I am on Cymbalta and muscle relaxers and water pills.

  7. CockatooMom

    CockatooMom New Member


    I found out in the chat room today that Effexor causes this side effect also...I'm on 300 mg a day! Fortunately I have a med check June 15th.

    I hate to go anywhere either. I lost 65 pounds 2 years ago before starting college, and I STILL sweated terribly.

    I'm SO glad to know I am NOT ALONE!

  8. CockatooMom

    CockatooMom New Member

    I am SO blessed to have found this website and glad I'm not alone anymore with my quirky side effects!

    I appreciate everyone's input.

    Gentle hugs to all.
  9. jake123

    jake123 New Member

    I think it is a problem with your hormones. It could be something your ob-gyn can diagnose - can you do that before you finish college? It might save you some agony.
    It might signal a tumor on your pituary or somewhere else.
    I had this problem about ten years ago when I had a hysterctomy and then did not take hormones. I know the routine with the Bounty.
  10. jenni4736

    jenni4736 New Member

    I the mom to four feather babies. I have two cockatiels, a new (3 week old) green-split blue Quaker, and a sun conure who will be 1 years old on Wednesday!

    I am 34 years old and I live in Texas. Fill out your profile so we can get to know you better...o.k.?

    I know the sweating story. I have afan in the bathroom to cool down afetr showers myself. I sweat just like you do...UUUGGGHHH!

    I'm in Texas so the average temperatures are 95* right noW! I wish I could have Texas mild winters and then pick up and move the heck north for the summers! This heats wipes me out. I just have to stay inside.

    I CRACKED UP LAUGHING picturing women going around with paper towel rolls under their breasts! I can so understand that! Do you think we could start a new fashion trend....Bounty BOOBIES!!!!

    HAHA.... Good luck... I'll be watching for you

  11. UnicornK

    UnicornK New Member

    Ah, yes. We have a very close relationship, me and Bounty. I try to keep at least one dry bra around the house...just in case. If I'm home alone I just don't wear one...I carry the roll with me. LOL

    Sometimes Shower to Shower might help for a little while. If anyone knows of something else...Please Let Us Know!!!

    God Bless.
  12. zena01

    zena01 New Member

    Yes, Yes, and Yes!!! I could have written your post except I'm 45!!! And like you it is really awful after my shower hate to get sweaty right when I just got clean!!! I also go out when it's freezing in my robe to cool off, but as soon as I come in it starts up again!

    In the past, I couldn't get warm and used to put a heating pad on my feet in the evenings. Then now this. I'll be a bit chilled and have a sweater on.....then all of a sudden get waves of hot although my skin is cold and drip sweat off my nose, face, my hair gets wet, bra gets soaked and I pull the sweater off. Then, after awhile, I'm wearing the sweater again. Happens many times each day.

    I don't think it is my medication because it started when I didn't take any, and have taken different ones after. I'm interested in the other posts and will see about checking my hormones and some of the other things people suggested.

    I did find out I was running a fever just a couple of weeks ago. My normal temp is really low at 96.8/97.0 (I guess that a lot of people with these illnesses have lower than normal temps) and I took it during a sweat spell and it was 99.8.

    I went and bought a new thermometer (mine was very old and I don't exactly know if I should trust it) and got one that tells it quick as I wanted to monitor mine and didn't want to spend half the day with a thermometer. It is very interesting how my temp runs up and down all day. I have a Dr.'s appointment tomorrow, and will bring it up to him and see if he has any ideas.....

    Although I don't want others to have to put up with it I am glad I'm not the only one.....

  13. thirkmom

    thirkmom New Member

    and the worst part is waking up in the night to go to the bathroom and crawling back into a cold wet bed. It's a very shocking experience when you're half asleep. I use Degree antipersperant under my arms and breasts and it keeps me from sweating there. For "down under" I bought some feminine hygiene spray. I spray it on my skin and underwear. I may sweat but I don't smell half bad.

    I know there is a pill you can take for excessive sweating but cannot think of the name of it right now. I'll try to figure it out and let you know. LuAnn
  14. CockatooMom

    CockatooMom New Member

    I've even heard radio commercials in my area for botox being administered for sweating...but I think it's for underarm use.

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