Discussion in 'Fibromyalgia Main Forum' started by myalgiamania, Sep 4, 2006.

  1. myalgiamania

    myalgiamania New Member

    my doctor said it's probably when i'm trying to fight off the pain. it's just another annoyance to add to the brain fog.
  2. PianoGirl

    PianoGirl New Member

    for several days now. I started having problems with my left ear in April, been on 4 antibiotics since and am currently on one as I write. The ringing is driving me crazy, and it feels like i have water in the ear. Can't hear right out of it, and to top it off, i am developing one horrible sore throat.

    This DD just has me baffled at times.

    ANNXYZ New Member

    and annoying
  4. catmom50

    catmom50 New Member

    I have had the ringing or whatever you could call it for a year now. Funny thing is, I forget to tell Doctor when I go, as I am getting so used to the noise.( Need to write a reminder note before next visit)
  5. TerryS

    TerryS Member

    i'm 45 now. this started years and years ago...they ring 24/7. i don't really pay any attention to it any more until someone brings up ringing in the ears!!! don't know of anything that can be done for it.

  6. SusanEU

    SusanEU New Member

    I have had it for quite a while, some days worse, some better.

    Pretty sure mine is due to the TMJ, which is due to the fibro/cfs and so on and so on......

    Sue in Ontario
  7. tiredohsotired

    tiredohsotired New Member

    Hi Myalgiamania,
    I love your user name bye the way ;-) It is crazy the stuff we deal with on a daily basis. I have TMJ, Fibro & CFIDS and yes, ringing in the ears almost daily. I have learned to block it out most days. I hate the itchy ears feeling in addition to the ringing and the blocked hearing feeling. I have suffered from several inner ear infections throughout my life as well. I wonder if they are in some way related to all of this? Take care.
  8. wordbyrd

    wordbyrd New Member

    It's more of a low pitched tone, sometimes pulsating like a drum beat for me. It's been constant since March. Had an ear infection, 2 courses of antibiotics. The noise remains.

    Most bothersome when I'm in a totally quiet environment, so I try to keep some sort of background noise on - quiet music, TV with sound turned down low, when I'm up. At night, it's hard to fall asleep, even with medication, because of the ear noise.

    Yes, another bothersome symptom. So sorry you're dealing with it too.

  9. Granniluvsu

    Granniluvsu Well-Known Member

    Hi Myalgiamania,

    Oh yes, I have had it I think almost as long as I have had this stuff like 20 plus years. I have it all or most of the time. As far as I know there is not actual treatment for it. My PT tried something she thought might work, put a couple of her fingers all around in my month and it hurt when she did it but if it worked - who cares. Well it did not so I am bck to square one on that score.

    If anyone has any ideas of how to get rid of this aggravating symptom, I am literaly all ears. I also hear pulsations like my heart beating- really strange. I feel like my head is almost about to explode. I think it used to be more in my upper head and now it is in the back, lower part and around the neck area. I feel like I may have swollen nodes or something.. Could this be??

    Bye for now !!

    Granniluvsu (Marilyn)
  10. jarjar

    jarjar New Member

    Ringing in the ears is classic lyme symptoms. Please get an igenex western blot to rule this out. It reminds me of the CFS/FM dr in Houston who had a full practice of fm/cfs patients. He also suffered from the disease. Now he and all his patients have tested positive for lyme and they are targeting the cause of all the bacterial symptoms such as ringing in the ears.
  11. lillyrose33

    lillyrose33 New Member

    I have ringing and other sounds in my ears and I went to an ENT and was diagnosed with Menieres Disease.

    I have also lost some hearing in my left ear. I also have Fibro but no one mention it was a cause of ringing and sounds.

    I have had this off and on for two years. I thought it had went away but not that lucky. I would have it checked out by an ENT.

    Do you loose your balance, get dizzy or sick feeling at your stomach or the room ever spin? Look up Menieres and Tinnitus. Hope you are one of the lucky ones and it is not either of them. Best of luck.

  12. LittleBluestem

    LittleBluestem New Member

    Definitely see an Ear, Nose & Throat Specialist about your ringing ears. It can be caused by a brain tumor, although that is RARE. Don’t panic, just see an ENT.
  13. MsOnlyMe123

    MsOnlyMe123 New Member

    Hi Mya,

    My Opinion: Hope this helps you.

    Many doctors and people will make up an answer for all of us if they don't know. Don't be scared and please see an ENT doctor (Ears, Nose and Throat). Ringing in your ears is called "Tinnitus". I don't believe it's from FM or CFS. I got Tinnitus roughly 20 years ago. Went to 2 ENT doctors and both diagnosed the same. Once you get this, it will never go away. You will hear all kinds of ringing, bells, ocean waves, buzzing, (ect.), sometimes extremely loud and sometimes kind of softley.

    Some reasons for this that I have read about is: people working in a load environment with machinery, load music and many concerts, (ex: Musicians), STRESS and ANXIETY, women or man working in an office environment using a Dictaphone, (I was an Administrative Assistant for 18 years and used a dictaphone) and then a Paralegal for 12 years.

    I was diagnoed with FM and CFS 9 years ago, and has been all down hill for me with a few other diseases. That's why I believe FM and CFS has nothing to do with it. Too many years in-between. When I was tested, I lost hearing in both ears but nothing really to be concered about right now.

    I suggest researching, "Tinnitus" on the Internet to learn more about it or pick up a book or read about at a Library. I hate to tell you this but there have been many times, throughout the years, that the ringing ect. has been soooo LOUD for me that I actually will pull my hair and shake my head, and just scream, ANYTHING to STOP the terrible noises. It doesn't help!!!!

    Soft music, TV backgroud, earplugs, anything to distract the ringing and all will help a little. But honestly, if at all possible, try to be as stress free as you can. Anything that makes YOU feel good. I believe that STRESS is a killer and it will or bring on some other terrible disease which nobody needs.

    One more thing, I know that many medications will also cause ringing in the ears, but I don't know of any off hand. Whenever you get a precription filled, it comes with a pamphlet about the medication and its side effects. Make sure you read that also and you could always talk to the Pharmacits.

    Hope I helped with some of the knowledge I know and experience with "Tinnutus". Bringing back stressfull memories and much ringing in my ears right know so need to go.


  14. sixtyslady

    sixtyslady Member

    I"ve had it for yrs now,
    I think different things affect it,seasons changing weather.
    but I have found that certain trigger points in my neck and shoulders affect it.
    I found these by trial and error. and the help of the book
    the trigger point therapy workbook, by Clair Davies.
    I"m far from a expert on this as I"m just starting but I"m learning. hope this helps. sixtyslady
  15. greatgran

    greatgran Member

    Ringing in Ears 24/7 for 5 years now..I have seen an ENT had complete test a CT Scan and he didn't have an answer..I also had dizziness and vertigo at the beginning of this CFS..My PCP says its just a part of the disease..

    I take xanax and it does help, doesn't take it away but helps me tolerate the ringing and too with the xanax the sound isn't as loud..

    Sorry, you have it but I do believe it is a part of this DD..I also have fibro and sjogrens...

    God Bless,
  16. Leaknits

    Leaknits New Member

    I've been told the constant ringing can be tinnitus.

    I occasionally get ringing ears but it's just when my BP is above my normal low-low. Dr's assistant, when I told her my pressure was up, asked me how I knew and when I told her I knew because my ears were ringing, she said she had never heard of that before.

    She checked my BP. It was up. Way up.
  17. Butterfly_of_grace

    Butterfly_of_grace New Member

    I ALWAYS have tinitus and its a pain in the butt and a niusance. I also get rushing sounds and thumping sounds as well. The thumping sounds are the worst. It feels and sounds like someone is taking their finger and tapping your ear drum. From what I have found from this website and others these symptoms seem to be also common with fibros.
    I was diagnosed with Meneres Disease before I was diagnosed with Fibro. They found nerve damage in my left ear after going thru a series of testing. ENT still to this day has no idea why I have nerve damage but I do. Soemtimes my balance is so off I just fall over for no reason. Other times I get the dizzys really bad. Since I have had the Fibro diagnosis I am assuming its all related to the fibro and nothing else (well, maybe the nerve damage in that left ear).
    Some days are better than others. If you want to try to get to the bottom of it see an E.N.T. There could also be some fluid in your ears which can cause this as well. Good luck
  18. myalgiamania

    myalgiamania New Member

    i have never had ear infections...
    not to much dizziness...only with some prescriptions...

    i was exposed to severe toxic mold for 15 months and have read that it can cause this ringing.

    my doctor also says its part of fibro.

    i will write down some of your thoughts before i see him again otherwise i basically have almost gotten used to it as part of the new fibro ME lol!

    Thanks and God Bless You all!
  19. jake123

    jake123 New Member

    Mine seem to wax and wane according to fatigue and headaches. It is a symptom for me to go to bed.
  20. nanna4550

    nanna4550 New Member

    I have had ringing for years. I have been to the ENT doc and had a hearing test- he said my hearing is fine and the ringing is just an annoyance. This has been at least 15 years ago and I have just lived with it. I guess I should get a Lymes test, huh. What do they give you to treat Lymes? Anyone know??? LOL, Nanna

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