Does anyone limp or have problems lifting arms/driving/dressing?

Discussion in 'Fibromyalgia Main Forum' started by AmnaRoswithaCharity, Jun 8, 2008.

  1. AmnaRoswithaCharity

    AmnaRoswithaCharity New Member


    Sometimes I have so much stiffness and pain in various areas of my body that I have to have someone put on my pants or my shirt, etc. For example, I had an attack a week ago and two days later I woke up with such severe pain in my right shoulder and upper back underneath my shoulder blade that I was unable to lift my arm above shoulder height and I needed help putting on my shirt. I couldn't use that arm to shift out of park and I drove primarily with only my left hand. The pain was so severe at night that Percocet only took the edge off it. THe stiffness/weakness and pain lasted for about 5 days, really bad for three days. Now, it is almost entirely gone and my mobility is back.
    I have had this before and I get similar things with other joint areas with my sacroiliac being the worst.
    This in my humble opinion does not fit with either chronic fatigue or Fibromyalgia.
    I would appreciate any comments and personal examples.
  2. stinker56

    stinker56 New Member

    I know exactly what you mean about limping and having problems lifting. Until last month when I went to the rheumatologist, I could hardly walk and had to pull myself up out of my chair at work and walk by holding on to desks, walls, etc. I told my doctor I had to have some relief from the pain and stiffness in my hip and lower back. I hardly ever have problems with my arms but I was having to pick my leg up and put it in the car to drive.
    Walking enough to do my grocery shopping was almost impossible. I would have to practically lay on the shopping cart to support myself.

    The rheumatologist ask if I had ever had any injections in the worst places of pain which I hadn't so he put one in my hip joint on the outside and in my lower back right at my waist. I don't know what was in the shots but by the next day I was soooooo much better.

    I had to call his office the following week to tell him if it helped and I told his nurse it did and when could I get the next ones if this wore off. She laughed and said in three months but he doesn't like to start doing this until he has exhausted all other choices.

    I don't care what it was or what the side effects are because for the last couple of weeks, I have had my life back. I am being treated for FMS and RA plus I have connective tissue disease so at this point, just give me something that will ease the pain when Percoset and Soma won't touch it.

    Hope this helps to hear others have the same trouble and hope you are feeling better soon.
  3. ladybird1

    ladybird1 New Member

    It does not happen as often as it used to, but I used have
    bouts when I could not lift my arms over my head to get things
    like out of the closet. I noticed it happened more frequently
    when I was having PMS. Now that I am nearing menopause it is not as predictable.
  4. fisher1949

    fisher1949 New Member

    I have trouble mostly with my left arm lifting above a certain. I have severe shoulder pain that runs down my whole arm making my hand numb sometimes. I do have arthritis in my neck but I can't believe that this is making my shoulder hurst so bad.

    I have trouble turning the steering wheel with my left side and cannot sleep on my left shoulder or roll over on it. Sometimes the seat belt shoulder straps hurts my shoulder.
  5. LaurieB

    LaurieB New Member

    I have the same symptoms. My right arm is sometimes so painful to move above my head that I cannot put my jacket on by myself. In fact, when shopping the other day I had to ask my daughter to help me try tops on. It was that bad! At night my shoulder hurts bad and sometimes my upper arms have a piercing sort of pain in the muscle. I have no pressure points --- yet the rheumatologist and a PCP I've seen both said (because they can't find anything else) I have FMS. It's tough to accept a rule-out diagnosis (they rule everything else out and diagnose FMS almost by default) but when I read posts here, like yours, I think I do I have it. Then again......
  6. Oh yes, I have trouble walking. And Lifting my arms to do my hair is getting harder by the day.
  7. Debra49659

    Debra49659 New Member

    I frequently go about my day in my PJ's, even going to the store. I had to go three days with no bra because of pain and limited movement. I can certainly agree with everything you have written about today!! Sorry, suffering from a bit of the fog today and the words are not the ones intended but i think i get my point across:)

  8. AmnaRoswithaCharity

    AmnaRoswithaCharity New Member

    I was particularly knowing if people who have a diagnosis of only CF or FME (or both) experience times when there is a physical sign such as limping or being unable to dress because of stiffness in very focal areas, etc.

    I think these are outside or such a diagnosis but would like to hear what other people have been told
  9. AmnaRoswithaCharity

    AmnaRoswithaCharity New Member

    Did the specialist comment on why you would have problems with limping, straightening up, etc. It seems to me that your problems fall in very well with those other two diagnoses and not the FM.
    I firmly believe I have something that has been misdiagnosed or not diagnosed. SO far the only diagnosis I got was Chronic Fatigue syndrome or "Post Parvoviral Syndrome" because all my signs and symptoms started with the onset of getting Parvovirus B19. Nothing has changed but no one will even consider me having anything else primarily because all my bloodwork is currently negative, including viral DNA.
  10. AmnaRoswithaCharity

    AmnaRoswithaCharity New Member

    Hi Laurie,

    Yeah, me too. I do not have enough tenderpoints and some days I have none, in order for me to be "qualified" to have FM but both Rheumatologists that I saw tried to shuffle me into that category because I have not had any typical bloodwork show up as positive since the first 3-4 months. At that time I had high CRP and ESR as well as a weakly positive anti smooth muscle antibody and a positive ANA. No one has done a titre on the ANA as far as I know.
    I absolutely positively believe that I have some form of an autoimmune disease and as one specialist said I have a prolonged immune response. I would like to be checked for TNF and IFN gamma because research that has been done in the past few years shows that chronic fatigue is associated with the continued upregulation of these antiinflammatory cytokines specific to parvovirus B19 infection. Read below

    I do know that I got Parvovirus and I do know there is plenty of literature out there showing that people can get many diseases after getting it, including Vasculitis, Dermatitis, Rheumatoid Arthitis and others.
  11. Fibrolady37

    Fibrolady37 New Member

    i limp very very badly i have to use 2 elbow crutches to ger around with.
    I also need help lifting my osteoarthritis is the worst its ever been & my fibro is also crippling me.
    There isnt anything else that i can do i just grit my teeth & get on with it hope this helps.
    Gentl hugs.
    May god bless you & yours.
  12. stinker56

    stinker56 New Member

    Sorry to hear you have such a hard time.

    I was just curious who got the elbow cruthes for you to use.

    I too have trouble getting around and a cane just doesn't cut it.

    Any suggestions would be appreciated.

  13. kat-E

    kat-E New Member

    I don't know if it is outside the spectrum of the diagnosis of fms.

    I don't personally know many others who have this problem, most just get the muscle pain and stiffness.

    I question my dx all the time. Surely there must be some reasonable explanation and a way to have a life again.

    I don't have the experience of narcotics helping. Most of the time they don't even touch the pain and are therefore pointless to take.

    I suppose we are all different.
  14. yes,this thing has returned to me big groin area is in terrible pain,and im limping.

    i think ill have to buy a indoor excersize have a go on daily.

    ive not been able to bike ride outdoors for two weeks now,i just cant breath outdoors.and it came on suddenly about three or four weeks ago.

    i know that i need to keep my weight very slim.

    i dont want to get fat, like i got while on off that now thank goodness.

    so i need to purchase a indoor bike,to keep my blood circulation going.

    but right now im sleeping alot in the daytime.i just cant stay awake,and im not fighting it,my body needs rest,i know it does.

    rest a bit,then walk round the house a bit.thats very important.keep that blood flowing around the body.

    love fran
  15. FibroGran

    FibroGran New Member

    I'd like to suggest seeing a good physiotherapist, you may have ribs out of place. When this happens you have no strength in your arms and pain in upper back and neck. It also causes shallow breathing which can cause anxiety and even panic attacks. I have been told this by both my physio and massage therapists. I see both weekly as that's the only thing that helps me from being bedbound.
  16. kriket

    kriket New Member

    I do experience limping due to a severe soreness and stiffness in my left foot. If I lift I have severe burning in my arms. I dont really have trouble dressing or driving.

    Someone mentioned having a rib out of place, and I do have this problem. It is very painful and needs to be checked out and put back in place if you do have a rib out.

    [This Message was Edited on 06/12/2008]
  17. Jackie41

    Jackie41 Member

    I don't know if I actually limp, but my legs are always tired and unsteady, and I have to use 2 forearm crutches to walk. I guess if I didn't have the crutches I would limp badly if I could walk at all. I'm not really sure since it's been over 2 years since I've tried walking without the crutches, and I don't think I can anymore. With the crutches, though, my walking is pretty steady.

  18. cbs1234

    cbs1234 New Member

    Have you ever taken levaquin, cipro, or another fluoroquinolone antibiotic? The on again, off again severe tendon pain sounds like you have suffered a severe reaction to one of these antibiotics. Do a quick google search on levaquin and tendons or fluoroquinolones and tendons and you will get a sense of how much damage these drugs can do to the muscular skeletal system.
    [This Message was Edited on 06/14/2008]
  19. TeaBisqit

    TeaBisqit Member

    Oh yeah. Me, too. I have tons of trouble getting dressed. I tend to call it rigor mortis.

    Limping.....well, I walk funny cause I'm always in terrible pain. And if I try to walk down stairs, I tend to go sort of one sided.

    Stiffness is a big part of CFIDS/FM. I've gotten it ever since I got sick.
  20. OWWEE

    OWWEE New Member

    My latest diagnosis and my doc feels my FM may be secondary to this. Thank god for this doctor and her kindness and amazing diagnostic abilities. She feels the FM may be secondary to the polymyositis. The symptoms overlap but PM involves weakness of the proximal muscle groups (the trunk and those closest to the trunk) so that may explain why sometimes you can barely walk or get up the stairs, or you can barely brush, let alone style, your hair, or why you can barely pick up a jug of milk, or why sometimes you can barely sit up and just have to lay down.

    Just another "amusing" autoimmune disorder in addition to FM/CFIDS, rheum. arthritis, Sjogren's,reynaud's, yadayada. I hate this stuff. I feel like my body is slowly killing itself.

    The only bright thing is that polymyositis is one of SSA's listed disorders so that may help me get my disability if I can ever get a hearing. Guess it's time to call the congressperson.

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