Does anyone notice the menstral time worse since dx'd???

Discussion in 'Fibromyalgia Main Forum' started by pamela, Mar 18, 2003.

  1. pamela

    pamela New Member

    I have noticed that since I became ill with this incredible FMS my monthly period is unbelievable. I have been checked out.... had my annual/mammogram all fine... and doc says its part of the lack of estrogen and FMS. I always had bad cramps but NOW!!! its like brutal cramps with lots of bleeding and this unbelievable, utterly aweful body fatigue and acheing all over my body. Its like magnified 200 times. Along with what I just mentioned, also is the targeted areas of aches and pain and fatigue SO BAD. For once im sleeping real soundly and thats unusual for me since I started. See my doc has put me on the pill everyday more periods bcz its so very bad and I had breakthru bleeding and he says to go one week and start the pill again. Breakthru bleeding is normal he says when you take the pill this way. I dont know whats worse the Hong Kong flu or this??? Im in bed for days and I never use to be this way. What do you all think?

    A Baffled Pammy
  2. debbiem31

    debbiem31 New Member

    I know exactly what you mean. I feel just awful when I'm on my period. I don't have many tummy cramps, I get cramps in my back, which I think is much worse. I'd rather go back to cramping in the stomach! My whole body feels like I've been run over, too. So no, you're definitely not alone!
  3. tandy

    tandy New Member

    its bad for me too!!When its that time of the month,I'm flaring big time! I also have endometriosis.But the FM came first,then a couple yrs later the increased pain with my cycle started~I was DX with endo about 4 yrs after I was DX with FM.
    Yes,my periods got to be hellish! I'm now on shots to stop my periods.All I get now is some breakthru spotting~
    I still get some extra pain when my period is due.(it last a few days)
    Take care......
  4. pamela

    pamela New Member

    I am 41 but I still think its the FMS. I almost feel out of body not totally that... but its so hard to explain. You know your on your period but the feeling is just tremendously awful and the Lorcet 10 barely kicks in until you've had about 3-4 of them (spaced out of coursebut the build up of the Lorcet helps after every 3 hours).

    It barely takes care of the headaches. The weird burning, achy-- hard burning headaches that don't go away and anything can trip them off to be harder!!

    More replys keep 'em commin... thanks so much...still a baffled wore out Pammy!!!
  5. afeni

    afeni New Member

    I'm gonna get straight to the point...IT SUCKS WET BABY MONKEY DIAPERS!!! Its like living in torture one-o-one. Cramps front and back have me doubled over and wishing I could go to the bodyshop, and trade in ALL this faulty aquipment. The bleeding is outrageous and The flare is the killa from manilla. And the doc told me that some women just have uncool periods. She gave me some naprason. It actually takes the edge off sometimes. If I catch it in time.
  6. jeanderek

    jeanderek New Member

    My periods are scary sometimes. I flood, I have been to a gyno and he has told me everything is ok. I cramp so bad that I double over. I have clots (sorry I know thats gross) sometimes the size of the palm of my hand. Then sometimes I will skip a month. I went on birth control to regulate hormones a few years ago for this and since then I am alittle more regular than I was before but the cramping and the clotting is still there. I got so scared one month because I didn't stop for over 3 weeks and I had to change pad and tampon every hour on the hour or I would mess up my clothes. This was back when I was still able to work, I had to leave early several days because I would mess my clothes up. My boss was very understanding at that time. I wish they were all like he was. It was embarassing to tell him exactly what the problem was but he made me feel like it was no big deal and he let me take a few days off for doc visit and everything. I had to take a whole months worth of birthcontrol at one time to get the bleeding to stop(Dr. Orders to do this) Since that time its never gotten that bad again but the bloating, cramping, moodiness and just the emotional rollercoaster I go through every month is terrible. My husband says asking me a question at that time of the month is like going on a suicide mission lol. I hope that you feel better and I know just what your going through. Be sure to stay on the pills as long as the doc says but get checked regular for all the side effects of taking them, I had to stop because I was scared of the blood clots in my legs and other stuff that can go along with it. Best wishes,
  7. layinglow

    layinglow New Member

    Ditto here---just finishing my period--finally crawling out of bed, and see that the sun is shining. Thank goodness it only lasts a few days, but always surprised at the extreme symptoms it produces.
    Best wishes, LL
  8. pamela

    pamela New Member

    I guess we are all a club here. I feel better now that I know im not alone. I'll hang in there...I guess. Just one of those FMS things to deal with... Thanks for all your replies...Love and Hugs Pammy
  9. Frackie11382

    Frackie11382 New Member

    Pammy, I know exactly how you're feeling. I am about a week before my period right now, and I just got out of bed at 4:30 (AM) because I couldn't stand to lay in bed in pain anymore! I have been on BCP's since I was 13 years old b/c of the pain and bleeding so severe that I was anemic. My live-in boyfriend can always tell when I'm close to my period b/c I get overly emotional. I even tried during the summer to go off the BCP's, but I couldn't b/c I got so nauseous that I couldn't even work! Now that I'm back on them, I do a little better with the cramps and bleeding, but I still live on pain pills for 3-5 days every 4 hours.

    Friends in Fibro,

  10. EllenComstock

    EllenComstock New Member

    Hi, Pammy:

    My FM is definitely worse just before I start my period, which I understand is quite common for those of us with this disease. I used to have terrible cramps and was very sick the first day of my period, but over the years that has greatly improved. I also have stage 4 endometriosis. I think you should be checked for this. Or it's possible you could have fibroids. I don't know too much about those, but a co-worker of mine has this and it makes her feel sick and she definitely has a flood when her flow starts! I don't know if it causes her any pain, though.

    I know we can't give out websites here, but I would check out the Endometriosis Association. You should find their website if you do a search under endometriosis. It is quite common for women to have both FM and endo unfortunately. The only way you can be diagnosed with this is to have surgery called a laparascopy where they make a tiny incision in your abdomen and the endo growths are burned off with a laser. The recovery time for this surgery is not long-several days. Of course you will feel sore afterward. This is not a cure-all for endo (like FM there is no cure, but hopefully with research a cure will be found soon!) and unfortunately the growths often come back or may be in a place that is too risky to have the growths removed (like the colon). If you do have the surgery definitely go to a endo specialist. The Association can give you a list of doctors or if you tell me where you live, I would be happy to check my list. I don't know if they will give you this information if you are not a member. I am a crisis call listener for the Endometriosis Association.

    I would definitely do some reading on this. Good luck and let us know how it goes. Let me know if I can help you in any way.

  11. pamela

    pamela New Member

    Yes I live in Austin, Texas. I could go either San Marcos Texas or Austin Texas. I have not had that surgery yet. They were cautious due to other surgeries I have had and did not wnat to go in and fight my intestines if they were stuck together. They said if you have had other surgeries in the ab area there is a possibility of your intestines being stuck!! I will loook up Endos under that name...Thanks a bunch!!! pammy
  12. jjoys

    jjoys New Member

    Hi Pammy,

    I've always had some PMS, but it's become much worse since I was dx'd with CFS. All my CFS symptoms get worse too.

  13. lmn

    lmn New Member

    i get abdominal and lower back cramps, as well as severe fatigue and achiness. add that to the increased brain fog and "overflow" and i'm a total mess. usually starts a week before and ends about two days into it. i have my period now and i feel like i have the flu! it really is a b*%@h!!!
  14. dd

    dd New Member

    at that time of the month. My menstrals have become worse since the CFS and FM. I get uncontrollable anger feelings and mood swings really bad. I get cramps from hell and am usually in bed for 2 days with the menstral. Mine lasts for a whole 7 days with very heavy bleeding and clots. I am 38 and have had my hormone levels checked a couple of times and they all come back fine.


  15. kmelodyg

    kmelodyg New Member

    That's ironic, I just wrote a message that is kind of similar to this. I have had chronic pelvic pain since I was 18 ( I am 25 now). Sex is very painful for me sometimes. My periods are an absolute nightmare. I'm usually a raging you-know-what before my period. My cramps begin about 3-4 days before my period. Every month I have had to call in sick to work for the day before and the 1st day of my period. I am usually doubled over and getting sick because the pain is so bad. Not fun! BCP's have not helped for me, and I have tried dozens! They usually just make me nuttier than I already am. I did have laproscopic surgery 3 years ago. That was definately the worst pain I have ever had (from the recovery). It lasts about a week, and is horrible. But it's worth it if they do find endometriosis. In my case, they didn't. They just said that it was probably "microscopic endometriosis and/or painful ruptured cysts". Someday, hopefully they will figure out what is wrong with me. Since my fibro symptoms have developed, a year ago, my periods have gotten significantly worse. Thank God for my pain pills!! I don;t know what I would do without them!!

  16. Tattoopixie

    Tattoopixie New Member

    I had 2 wks of a *remission* (no pain except in my arthritic knees), but since auntie flow started today my back, side, arms, ribs, etc. are all in pain. Have noticed that about 2yrs ago when I started getting FMS symptoms my periods got worse. I always felt 'fluish' a day or so before til the day or so after it stopped. Now I usually have bad pain in my lower back & if I try to walk any distance or carry anything I will be in excruciating pain. I did however, medicate myself this evening w/a pint of Godiva Chocolate Cheesecake ice cream! I swear it has miraculous properties! LOL!
  17. TerriM

    TerriM New Member

    I am so much worse during my period since CFS . . . I bleed heavier, am much more fatigued and the brain fog is terrible and the mood swings/depression happen then also. I have only CFS, not FM, so I'm not sure about that, but I have discussed this with my Endocrinologist. He says that many people with CFS have neurotransmitter imbalances in the brain (probably an effect vs. a cause) i.e. low dopamine where people get restless leg syndrome or low seratonin -- both of these can also cause depression and mood swings and hormones interact with these in the body making the imbalance worse during our periods. Hope this helps . . . it makes sense to me. Love, Terri
  18. pamela

    pamela New Member

    but it sure is a mess. I just stopped my period...ending the week, but I think whats worse is the body feeling I have. Its like a never ending acid-aching type headache..body aches and weird pains all complete fatigue...just like your a walking dead person. Just no life what ever...left in the ole' bod. If I did not have my pain pills I honestly could not do it!!! Just throw in the towel...throw me off the bridge!!! Ya know what I mean? Open the pit and toss me over the edge!!! being silly ...well...okay...Could endometriosis cause a person to feel like this all over their body with headaches??? I know cramps are a big sign and the bleeding is only for 3-4 days thats heavy...after that its spotting. That question is really important..need answer...Love Pammy
  19. Fibrolady37

    Fibrolady37 New Member

    Hi pamela,
    Youre not on youre own,im exactly the same as you,im going through it now & boy is it painful.
    I use my wheat bag & my hottie to try to ease the cramps,i still feel pretty bad but what else can we do?
    Try heat maybe it might help that is if you havent already tried it.
    Good luck
    sharon d(UK)
  20. pamela

    pamela New Member

    who wrote me back on this. Your all great and you know with all this support we can get through the day...each and every day. Hope you all have as many pain free days as possible..lordie I know this added to our usual aches/pains doesnt help, but...alas at least we know we are not pregnant!!! AR!! AR!!! AR!!!! Okay...some humour thrown in...Thanks again a bunch to a great group of women!!! Pammy