Hi, I about reached the end of my rope this week. I was in bed and could not even get up to brush my teeth. I have been denied for the 2nd time by SS, because I was too sick to work the necessary quarters. They even got the paperwork wrong, and listed the wrong date for when I began being treated by my physician > listing the date as later than was clearly typewritten on the letter from my doctor. Those of us who are afflicted with this malady knows the devastation it wreaks in your life. I have lived it for years. I attempted to get some type of grant for help, but I do not know how to do it - and cannont summon the energy to pursue it. I have good days when I can function like a real human being - and then I crash, with severe headaches, the "death fatigue" as I call it..where I can hardly summon the energy to breathe. My cousin was just on t.v. doing an interview for voting machines. She is very articulate, and once owned her own business before falling into CFIDS. I have asked her if she would do a segment, if we can garner enough support, to lobby for a change in the SS laws that prevent those of us not poor enough to receive aid, but not wealthy enough to afford this disease. It is appalling to see the grants being handed out for nonsensical things in the light of those of us suffering so terribly. Does anyone know how to apply for a grant? Is ANYONE willing to lobby their legislators for a change in these SS laws that are harming those of us afflicted with this malady? If so, please email me at [email address removed as per rules] I want to see if I can get some type of petition going, and see if enough of us will contact our legislators to garner support for us. PLEASE ACT NOW. I don't know about you - but I've been sick long enough. It's time we got some help.