Does anyones legs give out on them...

Discussion in 'Fibromyalgia Main Forum' started by Babygurl24, Aug 26, 2003.

  1. Babygurl24

    Babygurl24 New Member

    I was wondering if anyone had a problem with their legs giving out on them..Im really getting fustrated...
  2. ranger

    ranger New Member

    My legs always become weak and wobbily when I walk too much. I've had dreams that they gave out, but so far it hasn't happened. I usually sit down when I feel they could. I've had my ankles give out and let me fall. I've walked with weakness and felt to grab a wall or a person's shoulder and somehow found strength to take steps. But I always worry that someday they will give out. Has this actually happened to you? What did you do? I am unable to do walking for exercise as this weakens my legs too much. So I hear ya Babygurl.
  3. jmaxjmax

    jmaxjmax New Member

    Yes I've fallen down a number of times. Its my ankles that give out. Its scarey to have it happen.
  4. Ahorsesoul

    Ahorsesoul New Member

    Yep, I have taken several spills due to my legs just not working correctly.It seems like my balance is off too.
  5. sharon5650

    sharon5650 New Member

    HI, YES MY LEGS ARE VERY PAINFUL, AND VERY WEAK. SOMETIMES IF I HAVE TO USE STAIRS, IT IS AWFUL, THEY BECOME SO SHAKEY AND TURN INTO A FEELING OF JELLY, USELESS. THEY ARE VERY PAINFIL, AND I AM ALWAYS LOOKING FOR A NEW RUB TO USE. MY CALVES ARE THE WORSE. I USE TO BE ABLE TO WALK FOR MILES, I AM ONLY 47, I LOVED TO WALK 2 YEARS AGO, NOW I AM ACTUALLY SCARED. I WAS A BIT, AND THEN I AM SO SICK AND GET SO TIRED AND MY LEGS HURT SO MUCH, BUT I STILL MAKE AN EFFORT. THEY ALWAYS FEEL LIKE THEY ARE GOING TO GIVE OUT COMPLETELY. I GUESS WE HAVE TO KEEP MOVING THEM AS MUCH AS WE CAN, AND RUBBING THEM WITH A RUB, TRY GETTING SOMEONE TO MASSAGE THEM, IT HELPS FOR ME. .............SHARON28
  6. Myth

    Myth New Member

    My muscles are like trembling mush. Half the time I walk around like a drunk... stumbling into things and doorways. Sometimes I tipped over simply from losing my balance. If I squat or kneel down or bend my knees too much they will crap out on me. Sometimes me hip joint just kind of moved out of place and I fall down. I also trip over my feet alot. And of course there is always the pain. If I am in a whole lot of pain, sometimes my legs will just collapse with the refusal to let me stand on them and with a spiking jolt of pain that keeps me sitting for awhile.
    Myth
  7. marcus1243

    marcus1243 New Member

    But if I walk too much, they feel like jelly and it's a pretty scary feeling. This extreme muscle fatigue scared me when I first got it, because it's usually associated with MS, but after LOTS of reading, it seems it's just another part of this crappy illness we call Fibro. Bummer.
    --Marcus
  8. JannyW

    JannyW New Member

    In March of this year, I was feeding my birds & had my left ankle just collapse ... heard it POP! and it was bent sideways. We thought it was fractured (there was an old fracture site on the x-ray) but there was a lot of soft tissue damage too.

    Well, the end of July I was walking to my car & the same ankle gave way ... this time it's broken. Our driveway is pitched, which probably didn't help, but it just gave out.

    I've also had my knees hyperextend when I'm really tired of walking.

    Jan ^v^
  9. LADYBUG2

    LADYBUG2 New Member

    And I have fell several times. Just seems like I am a KLUTZ
    anymore,,but sometimes when I am not even expecting it,my legs just see to colapse. And like the above post, I suspect its in my ankles.

    I bump into doorways alot to, its like I can't judge the doorways, and many other items.

    I try to walk with caution....as I just had a very bad fall,
    due to misjudgeing the stair steps going down from my deck.
    And missed 2 steps, & fell 20" I thought for sure I had broken my ankle & hip, as I could not stand up, it hurt to bad,,,so, I had to crawl 30 feet to bang on the outside wall for my husband to come help me,,,he hearing is very bad, so I knew yelling would not help................
    I went to the emergcny room,& Xrays showed no breaks, luckly...

    I have 2 buldging disks in my lumbar area, L4 & L5 and my doctor thought I had ruptured them, as I was in so much pain, I couldn't even turn over in bed, with out excruciateing pain. But the MRI showed, I had not ruptured them,, my foot has very bad torn legiments, so I was instructed to wear their foot brace & crutches,,but I can't use the crutches,, as they make my back hurt to much.

    I try very hard to be carfull walking, when I have the brace on....it will take months to heal.......

    So, I can relate, to our legs giveing out..

    Take Care, LADYBUG2







  10. wle

    wle New Member

    Legs and ankles are my worst problem. If I walk too much they get very wobbly and weak. I have fallen several times. I have the most problem with aches and paines in my legs ankles and feet too. (knees as well) More so than other parts of my body. This is not to say that I don't ache ALL over but the worst is in the lower part of my body. WLE
  11. duketomato

    duketomato New Member

    I have several leg problems besides the pain and numbness. My right knee buckles at times.I'll be standing still and all of a sudden wham the right side of my body drops.I also have a problem when standing still and when I move to turn my left leg does not move at all. My left foot ends up with the toes touching my right foots arch .It is extremely disturbing.
  12. Eve612

    Eve612 New Member

    It was one my symptoms that I am experiencing lately. I will get out of the car after driving & my legs just go so weak that I think they won't hold me up...it's like there is no blood flowing to them...very scary feeling!

    Eve
  13. healing

    healing New Member

    Seems like there are a lot of different kinds of things going on here, not all related to FM or CFS. Some are structural, eg, and may have been inherited. Perhaps the question could be reframed to: who has leg collapse problems not related to blood sugar issues, lack of muscle strength, legs falling asleep due to sitting the wrong way, etc., that have developed since diagnosis with FM or CFS?

    I do have problems with my knees and ankles buckling without warning, which is a new condition since my FM. It comes and goes, does not seem related to any other thing including overall leg weakness.

    I am assuming that strengthening these joints will help, but only time will tell. Due both to work and illness, I was somewhat of a couch potato for a couple of years and have tried this year to really focus on strengthening, stretching, and posture issues, which seems to be helping overall.
  14. spring02

    spring02 New Member

    I haven't been diagnosed with anything yet but have been suffering with leg cramps, numbness and pins & needles pain for over two years. My foot and leg can either feel cold, heavy and numb (usually in the daytime) or hot and burning in the night. I get stabbing pains in my fingers and toes and cramping pain in my right forearm and left foot and leg. So far no diagnosis, all the tests, MRI, EMG, EEG are normal but my ANA is elevated ratio 1:2, and they suspect I may have some form of Lupus. Before all this started I had a rash around my waist and then had foot drop. I still cannot walk correctly as the arch on my left foot is higher then my right one. I have custom made arch supports but they don't help. My GP says that I don't have Fibromylagia but they don't know what is causing these symptoms.

    I was very active priot to these problems, now I don't have any faith in my walking or holding on to things. I also am very clumsy, dropping things and because of the numbness in my hands and fingers, it affects my fine motor skills.

    I cannot get a decent night's sleep and seem to toss and turn all night as the sharp pains and jolts keep me awake. I find I am exhausted in the morning and don't have any energy. My family are all grown up except for one teenager at home, who is 18. However, I used to feel like I was a productive member of society and now since I don't have a diagnosis, I feel useless. The Disability Insurance people make you almost feel like a criminal since you don't have a diagnosis and therefore can't prove your case. They doubt your explanations and send you off to see a psychiatrist to see if you are making up these symptoms or just want to be sick to get attention.

    It is difficult enough trying to cope with an unknown illness and not knowing what your future will be. However, the added stress caused by medical personnel and insurance people who doubt patients and don't really listen to them increases their anxiety. Who wouldn't be stressed out or suffer from anxiety when their whole quality of life has gone downhill and they don't even have an explanation as to why.

    However, I am hanging in tough and I told the psychiatrist that the only thing I wanted more than anything was to be able to walk out that door without having to look at my feet and worry about falling down because of my balance problems and weakness on my left side.

    Good luck to the rest of the group who have already gone through similar incidents, or who are now experiencing the pitfalls of our medical systems. If you get a good doctor who really listens and believes you, then that is the first step on the road to success and TREATMENT..............

    The Canadian
  15. Babygurl24

    Babygurl24 New Member

    Yes this has actually happened to me many times....And one time it happened when I was carrying and putting my son to bed....Im very thankful it happened when I was in the house...and he didnt get hurt..Each time this happens I sit down and elevate my legs....then put a heating pad under my legs..It works sometimes..I am unable to do alot of walking and exercise.Ive had Chronic Fatigue Syndrome for 10 yrs now...and this just started happening....Im only 24 yrs old...I pray everyday I will become better...
  16. tweety48

    tweety48 New Member

    My legs feel like rubber and I have fallen several times. Just last week my right leg gave out on me, I had to grab hold of a store shelf to keep from falling. When I am hurting all over My legs feel like heavy weights, if I stand too long they feel weak, I just thought it was my back pain that was the cause of leg weakness. I don't know.It comes and gos with me. My balance is off. I seem to fall into everything, my hubby says weebles wobble but charlie falls down lol. I can relate to you take care tweety
    [This Message was Edited on 08/27/2003]
  17. Fibrolady37

    Fibrolady37 New Member

    Yes I"ve stumbled & fallen quite a few times & it"s really scary my balance is awful.
    sharon d
  18. Jackie41

    Jackie41 Member

    This happens to me a lot. I used to fall often and almost broke my wrist once. For the past 10 months I've been using two forearm crutches when I have to walk very far and I haven't fallen since I started using them. Some people might think that's a drastic step but the extra security is wonderful. For instance, if I go to the mall, I always use crutches. On a good day I might not need them and only put a little weight on them just for a little extra security. But then some days my legs will get very tired, usually without much warning, and then I can't walk without the crutches. I don't use them much around the house or for short distances, unless I'm in a bad flare, and some days I don't use them at all. I have to stress that the underarm kind of crutches are no good; they're hard on the armpits and side of the chest. It's also very important to use the right gait. It's not that hard on the arms because even on a bad day, I'm still putting about two thirds of my weight on my legs and about one third on the crutches. If you want to know more, I posted a message on July 4 called "for those with difficulty walking due to tired or weak legs". There was a lot of interesting discussion about this issue, that you might find helpful.

    Hugs

    Jackie
  19. kellygirl

    kellygirl Member

    I started w/ mono-like symptoms more than 15 years ago and felt I was dying. I was diagnosed with cfs/fms. I use to take walking for granted until it happened for the first time. I was walking the mall and my legs wouldn't go! I barely made it to a bench to sit down. Today, I gauge how I am feeling, sometimes I need to push a cart for balance. Even then, my legs may be too weak. It comes and goes. I, too, worried about MS because researchers aren't sure CFS isn't caused by the same virus family as MS. So, I am not alone w/ this symptom?
  20. Babygurl24

    Babygurl24 New Member

    That is how it started out with me....I got mono when i was 14...I never really recovered infact it just got worse so my mom took me too see a specialist in N.C. And thats when Dr.Charles Lapp diagnosed me with CFIDS...Strange thing is my brother had mono and he recovered fast..and has never been sick a day in his life after that......And now docs tell me im Bipolar..When will this all end..

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