Does it sound like fibro?

Discussion in 'Fibromyalgia Main Forum' started by Kayteecatt, Aug 22, 2008.

  1. Kayteecatt

    Kayteecatt New Member

    Hello all. My mother was diagnosed with fibromyalgia almost 20 years ago...of course back then it was almost unheard of. I've listened to her comment on aches and pains that I have had for years now. "that sounds just like me before I was diagnosed", but I just blew it off.

    For years it's felt as though I was stepping on glass when I get out of bed in the morning. I was diagnosed with IBS 15 years ago. Stirring a bowl of cake batter for 3 minutes makes my arms feel like I just rowed across the ocean. Having my husband gently rub my arm is actually painful. I have a hard time falling asleep at night, and when I wake up even 8 hours later I feel as though I only got a few hours of sleep. Most mornings I wake up feeling like an 80 year old woman and I'm only 32!! I suffer from occasional migraines and low back pain. And for the last 5 months I have had constant aching in my chest.

    I've had EKGs and x-rays and everything is normal. The pain isn't sharp, it's just dull and achy and when I raise my arms or turn sideways it feels as though something is being stretched. It feels as though my sternum is bruised if you touch it. I've not been short of breath, it doesn't feel like an elephant is sitting on my chest, it just aches all of the time.

    My doctor wants to run a very expensive radioactive stress test to rule out heart disease. I am nowhere near my deductible for the year with my insurance. This test could cost me hundreds of dollars I can't really afford. My mom is insisting that I see a specialist about fibro.

    I thought I would post here to get opinions from other people with fibromyalgia. Are my aches and pains like yours?
  2. Kayteecatt

    Kayteecatt New Member

    Thank you for responding...I was afraid no one would. Maybe I'll make an appointment with my moms specialist after all.
    [This Message was Edited on 08/22/2008]
  3. jasminetee

    jasminetee Member

    I had to respond because your Username is so similar to mine. :)

    It does sound like FMS to me. I had IBS all my life but didn't develop other symptoms until I was an adult, that I recognized anyway.

    You might want to try typing in, "Fibromyalgia Support Groups in ______________________(whatever town or city you live in)" and then type in ones close to you to find the nearest FMS support group to you. Then ask them for doctor recommendations to diagnose FMS. Good doctors for this can be Neurologists or Rheumatologists or Family Doctors etc... it depends on the doctor as a person, not so much what type of doctor they are.

    I caution you though that once you have a diagnosis like this it can be very hard to get good Life Insurance, Health Insurance and/or Disability Insurance so if you're able to work you may not want an FMS Diagnosis on your medical record.

    You can learn a lot about FMS from Message Boards like this and elsewhere online. I don't know your particular situation but I wanted to give you that information.


  4. gapsych

    gapsych New Member

    A lot of us here have costoconditis along with FM/CFS.

    It affects the muscles in your chest.

    I mention this as you said it hurts when you touch your sternum. It is an achy feeling, much like the FM pain. You can do a search on it at the top right of the page. Achiness is the type of pain I get and touching your chest just plain hurts.

    BTW, costoconditis can run in families. My father has it, I have it and my younger daughter.

    But I am not a doctor. While I know you do not want to have the test, it might give you some peace of mind.

    Did the doctor say why he wants the test run. Do you have any risk factors for heart disease.

    I have had the radioactive stress test it did not hurt and just a minor inconvience.

    But that does not sound like the issue. Would there be any kind of program that could help pay or someone loan your money.

    It is stories like this that point out that something is wrong with our health care system/

    Take care and keep us posted.

    [This Message was Edited on 08/22/2008]
  5. Kayteecatt

    Kayteecatt New Member

    About the risk factors...just 2 weeks ago we found out my cholesterol was high, I started taking medicine for it (Crestor) and my results came back Wednesday and my cholesterol is now totally normal.

    My father passed away at 56 from a massive heart attack. He had VERY high blood pressure for years and never took a thing for it. I take after my mothers side of the family, and my blood pressure is beautiful. He is the only one in my family to ever have a heart condition. My maternal grandmother is 84 and in perfect health, and my paternal grandmother is 91 and just last month entered a nursing home.

    These are the only risk factors I can think of.

    I'm not over weight, or even close to it. 5'8" and 133 pounds. I don't have diabetes, it's not even in my family.

    I think it's the fact that I say my chest hurts. You say chest pain in a doctors office and immediately they start thinking it's something cardio related.

    I'm pretty sure I've convinced my doctor that it's something muscular, she now says she wants to run this test to get "a baseline". I just think it's a pretty expensive baseline.
  6. Kayteecatt

    Kayteecatt New Member

    It about kills me to wear a bra. Anyone else have that problem? Thank goodness I don't have much that needs being a stay at home mom helps a lot too, if I don't want to wear a bra I just wear a baggy shirt. I've even moved the fastener to the last loop and it still hurts.
  7. AngelBride

    AngelBride New Member

    I know exactly what you are going thru, sweetie. I am 59 and have had FM for yrs only dx'd last December...FINALLY !!
    My first bit of advice, which others have offered, is to get to a "rheumy" who is very knowledgeable with FM. She will press or touch your "trigger points" and see how you react to them. IF you have at least 11 of them cause you great pain, or at least some pain, thats one way of dxing FM.
    There is a wonderful medication now being given for FM. It's called Lyrica and does wonders for FM (at least it has for me.)
    I know how u feel about wearing a bra..ouch, talk about uncomfortable. Just the slightest touch usually will set off my pain. I've got it everywhere. There aren't too many spots on my body that don't hurt to touch.
    PLEASE feel free to write...I am here for you, my friend.

    Gentle Hugs,
  8. Kayteecatt

    Kayteecatt New Member

    I actually found information about costochondritis several weeks ago and asked my doctor about it. She told me that it's not possible to suffer from that for 5 months. I'm confused now. Can it turn into a chronic condition?
  9. colorfulcolorado

    colorfulcolorado New Member

    About the bra thing....Yes, I understand completely! There are days that even looking at it hurts! So I wear sports bras instead because I have to wear something when I go to work, but at home sometimes I just wear that and shorts, its comfortable. I even wear it to bed on days that boobs are killing me because of my lousy periods or should I say when ever they decide to happen.
  10. jasminetee

    jasminetee Member

    I hate to say it but I know people with FMS who have had Costo pain for many years with no let up yet. It's so funny how some doctors think they know everything. They're not online with actual patients all day, we are. If their textbook doesn't say it then it must not be true.

    Bras hurt me too. I usually don't wear them unless I go out or people come over.