Does your Dr. Look At You Like You Are Crazy?

Discussion in 'Fibromyalgia Main Forum' started by GodsGrace, Oct 11, 2006.

  1. GodsGrace

    GodsGrace New Member

    Everytime I go to my General Doctor for anything she looks at me like I am crazy. She always tells me I need to see Mental Health. I was dignoised several years ago with FM and even my specialist Doctor told me she can not help me anymore about my pain. So I said ok and I have not be back to her sence. This is all Kaiser Permante. LOL
    I even went in with Chest Pains one day to the ER and the doctor found out I have FM and said "You have FM it was probably that". I tell you the doctors use this as a excuse for everything. I just tired of being treated like some kind of creep.


    Brenda
  2. Kimba4318

    Kimba4318 New Member

    I know Brenda... and I hope that one day, like me, you find a doctor who does not look at you that way and atleast acts as if they care! I still do not believe I have all of the answers I need, but it does feel good for a doctor to take the time and atleast try new things.

    It is hard - hang in there and keep tryng new ones. I went thru so many. It is really hard I know.
    Hugs
    Kim
  3. charlenef

    charlenef New Member

    sometimes i dont blame them and sometimes i get mad. first i have to call to make sure i am first then i tell the dr to be on time.
    i can barely make it there let alone sitfor an hour. i walk in with my pillow that i sit on(talk about feeling like a freak) then i sit and stand the whole time let alone the list of things that are wrong cmp fm hyperacustic(hear too loud wear ear plugs out )tmj sinnus stomach problems beyond anything medicine can touch now a heart arrythmia.
    then having to explain to each dr what is wrong is a nightmare. charlene
  4. charlenef

    charlenef New Member

  5. hermitlady

    hermitlady Member

    to be treated like that. I have 2 DR appts tomorrow. I like my doctors a lot, but tomorrow I'm going to talk to my Primary Doc and make sure we've done every test in the book one more time. Not looking forward to a day full of appts, it's sooo draining.

    Loved the earplug comment....I would never get a wink of sleep without mine:) They come in very handy!!!
  6. melodee49

    melodee49 New Member

    I go to a lot of doctors too, but I maintain a core few. I have been to so many to get to this point in my comfort,and had to weed them out.Primary, pain and psych (for the depression). ANd I know this sounds crazy, and I hate to say it for fear that it will change just for saying it, but...I had a hard time getting medicaid disability, but it is good insurance. I worked for 20 years as a nurse, so I am have experience with insurance. This is the best I have ever had. Lots of paperwork and red tape to go through, but worth all of it. I paid for it for the years I worked and I feel just fine using a program that I helped pay for.
  7. SherylD

    SherylD Guest

    You are definetly NOT alone on this one!

    I think this is one of the worst parts FM...then I hesitate to call another dr. just thinking I will be treated like some weirdo again...

    Good luck to you!
  8. Redwillow

    Redwillow New Member

    I hate to say it but I have seen that look so many times! Then they say well you "just need to relax!" If I had a dollar for everytime I have been told to relax!

    If I could figure out how to relax I would. And if it was that easy there wouldn't be million dollar businesses of psychologists, therapists, meditation self help tapes, yoga instructors and all the rest of the people who are being paid to try and help people with their stress levels!
  9. shootingstar

    shootingstar New Member

    I was diagnosed with depression many years ago. I have been back several times because I could not believe the extreme fatigue -- this is so far beyond fatigue there is no defining name for it -- was primary depression. I have always felt any depression was secondary to something else, particularly since antidepressants -- and I have tried many -- have been of no or very short-lived help.

    I have not had medical insurance for a few years now and can not afford doctor visits to chase down various symptoms. My primary doctor attributes everything to depression. No rapport, I'd love to find someone else and can't afford to doctor shop. The varied symptoms I have experienced never got put in a basket. It did not occur to me sinus problems, severe insomnia, digestive upsets, migraines, other varied headaches, and later pain etc. etc. were connected. Were I to see someone different now I might be able to be diagnosed, but it is simply a matter of having to set priorities on what I can and can not afford.

    Do I pay bills, help family members who are in difficult straits due to no fault of their own, do necessary maintenance on my home to keep it from deteriorating, buy food, almost no entertainment -- or start what has always been in the past a futile search for a doctor who is helpful and with whom I can relate.

    Fortunately CFS/FM seem to be more respected and recognized now than when I first started having symptoms fifty years ago as a child. I am not entirely unsympathetic to doctors -- I would not understand this either had I not been living with it for what seems forever. That does not diminish the fact that people with CFS/FM or other chronic difficult to diagnose/test/treat conditions generally receive less effective and sympathetic care than they deserve. Doctors don't know what to do with people with these types of problems and do not always react in ways that seem appropriate or caring because they don't relate. Hopefully with more knowledge emerging that will change.
  10. enjoysue

    enjoysue New Member

    I think every doc I see looks at me like I am crazy. I saw a rheumy today and he looked absolutely shocked when I wrote down I was disabled. "And what did you get that for." ARGH!!! I'm a type B person, very laid back, even my friends see how 'floppy' I get so it's not like I'm sitting there all tense and stressed but still my pain never goes down below a 7. Everytime my Costochondritis gets bad my blood pressure goes up and I have yet to have a dr. tell me I have that. One ER doc called it chest arthritis. Said that that was NOT trigger points there. Hmm, the rheumy touched those spots too. They just look at me as if I'm making it all up! I don't think anyone believes me just how much my elbow and forearm hurt yet no one does anything about it. Four advil doesn't even touch the pain. I'm sick of dr. hopping. I even had a dr. one time tell me he didn't think I had a blood clot (I'd had one previosuly so I knew how they felt) and I said "I bet you $500 I do." My dr. still owes me the money and he moved to Texas. If THEY don't believe you how are you going to believe yourself when you know something isn't quite right!! I'm ranting but I get frustrated over this.
    Did the docs even do an enzyme test on you? Did they give you nitroglycerine. Man, did that stuff give me a whopper headache. What we need is more drs. and others in the healthcare field to come down with this. Heck even some congressman would be nice, haha. I nominate mine! ^^
  11. 1faith

    1faith New Member

    He looks at me like I'm crazy-did it again today. Sometimes I look at me like I'm crazy!
  12. museinhighlands

    museinhighlands New Member

    Yes, that look, and ditto to all things said....

    I found a nice Rheumatologist - she said if a doctor isn't hearing you "MOVE ON." Of course we know that, but it is soooooo frustrating. Esp. when financial constraints, physical constraints... aaggghh!



  13. dononagin

    dononagin New Member

    Welcome to the board..

    We all go through it.. or have gone through it.

    One of the doctors I saw.... well, he took the normal slew of tests and said.. "Well, Ya look healthy too me!"
    I'm in tears as he is shaking his head and saying "There is nothing wrong with you!"

    I had a doctor at a walk in clinic a year before that ask me, "Are you on drugs?"

    Ouch!

    I had already been diagnosed with CFS before this but had symptoms that were not matching up.

    A week after the doc told me there was nothing wrong with me I wound up in the hospital with a colitis attack. Since then I was diagnosed with ulcerative colitis and diveriticulitis, fms by a rhumie, a dermie is treating me for unexplained lessions, I was diagnosed with severe Degenerative disc disease, raynaulds, the list goes on.

    We have all been there.

    If only they had to walk in our shoes awhile huh?

    Hugs to ya honey.. stick around we know how you feel. The doc's may sometimes treat us like nut-cases but we don't treat each other that way.

    Looking forward to getting to know you.

    hugs,
    Dona
  14. TerryS

    TerryS Member

    Sure does! I've been seeing my doc for a few years now...first started getting exhausted about 18 months ago. He's done nothing but run test after test (blood tests) only to have abnormals show up - antibodies and such - and then keep shrugging his shoulders.

    Plus, I got a definite diagnosis of FM from a rheumatologist which my PCP refuses to acknowledge. And I've had two other specialists diagnose me with CFS. Again, he refuses to acknowledge.

    Last week he suggested I see a psychiatrist to manage my depression (which is actually VERY mild).

    I changed PCP's as of today. I found a wonderful doc about a mile from my home who actually believes in FM and CFS. He has agreed to take over my short term disability claim (I got myself released to 25 hours per week work last week, but waiting on my employer to get my equipment...we'll see how it goes).

    Anyhow, he told me that FM/CFS is very frustrating for docs 'cause they don't know how to treat it. He told me that seems vitamins and supplements seem to do more good than any prescription...which is okay with me 'cause I'm tired of having prescription drugs shoved at me (and none of them seem to help anyhow, except my Zoloft).

    So, hang in there. There are sympathetic docs out there...just have to keep looking until you find one! Seems the specialists (neuro, rheumy, infectious disease) are more open to the diagnosis than the GPs.

    TerryS
  15. spacee

    spacee Member

    I have perfected a blank stare that I give back to them :)

    Spacee