I am so frustrated. I was on Valcyte and feeling pretty good after a month on it fatigue wise, but my back started hurting again, my ic which has always been under control since CFS flarred up with the valcyte. Tremendous pain. Last Sat I felt so good we went to the Wisconsin Dells for a couple of hours, well, haven't moved much since. Exausted! Gave up the Valcyte, but my IC is still screaming. I feel so lost and confused. Some drs say "you might have this virus", others say "you may have lyme", others have no idea. I wish there was a probe that could tell me what's wrong. After 4 years I've had it, I go to bed and think I can't do this another day. I've already missed out on 4 years and after being sick this long think it's hopeless. I just see myself continuing to get worse. Thanks for listening to my rant.