Down in the FMS Dumps

Discussion in 'Fibromyalgia Main Forum' started by ScooterD, Oct 26, 2005.

  1. ScooterD

    ScooterD New Member

    I have only been on the message board for a week or two but I'm grateful that today I can feel comfortable enough to come here to yell out an SOS!
    I was diagnosed with FMS 5 years ago and like all of you I've been through all the trials of trying to find the right mix of help. This morning, one of what seems to be the main help aids of fibro, exercise, has me in turmoil.
    Exercise, exercise, excerise - that's all I hear that's all I read. "You're not going to feel better unless you exercise!"
    Exercise isn't foreign to me. Heck, just 6-7 years ago I was visiting the gym 3-4 times a week along with morning workouts in my home. I loved physical labor - breaking out in a sweat made me feel great! Then the day came when I spent my normal 30 minutes on the tread, did some light weight training and BAM! I was so exhausted I fell right on the floor and slept for hours.
    I WANT to exercise, and I understand I have to start off slow. I surely can't expect to have the endurance I use to. But here's my problem....how do I exercise even a few minutes, if 1) I'm so dang fatigued/weak/in pain getting to the bathroom is a marathon in it's self or 2) if I do have the energy (I say that loosely :>) ) to walk or ride my bike a few minutes I get so exhausted I literally sleep for the next 12-24 hours - and then experience 3-5 days of fibrofog, malaise, pain, blah blah blah!
    I had a doc's appt a few days ago....he said I really need to find an AEROBIC exericse I "like to do" and "stick with it" at least 3 x's a week. I thought I was going to vomit right there on his shoes.
    This whole thing has just got me so depressed...thanks for being here and allowing me to vent my frustrations.
    Prayers & Gentle Hugs to you all!
  2. fivesue

    fivesue New Member

    vomited on his shoes! That's what his suggestion was worth. I don't understand why people don't get the fact that if it's hard to walk to the bathroom, you can't do aerobic exercise 3X a week. You'd think that would just be common sense.

    Don't beat yourself up. I think I'd look for a new doctor if this one keeps up this mantra. Does he help you with other aspects of FM?

    I do understand. I am now just starting to do a little exercise in my home to a set of walking tapes. They are great, and I can do as much or as little as I want. It really is good for me. I don't do them everyday as I would crash if I did. I'm going to the grocery store today and that will take all my enengy!

    Hang in there and don't be down on yourself. You can only do what you can do. You sound like a real trooper to me.

    Gentle hugs back,
    Sue
  3. dbhughes

    dbhughes New Member

    I have spent the last 3 days hardly able to move,
    Only you can know what you are capable of doing,
    Give your body to someone you can trust, or not at all,
    Take from doctors, health specialist, what feels right for you,there are no hard and fast rules with this illness,
    love delphine
  4. ScooterD

    ScooterD New Member

    Thanks to all of you for taking the time and energy to reply. It's such a comfort.

    Patti: nice to meet you too. My current daily treatment is: 60mg Celexa; 400-600mg of tramadol w/tylenol; 1200-2400 of neurontin. That's the "for sure daily stuff". I also have Provigil - sometimes it seems to help sometimes it doesn't help at all. And, I just started Trazadone five days ago. I've always been one to need more than the normal dosage so it really surprised me when I started with 50mg, I was terribly sedated the entire next day. I continued for 3 more days thinking maybe it was a coincidence, maybe having a fatigue bout, but every day I couldn't keep my eyes open and basically slept the whole time. On day 4, I cut back to 25mg. I've done that for 2 nights now. Not effected as bad from it the next day, but also haven't noticed a difference in any other symptoms either. I'm wondering if I should try 25mg a few more nights and then up to 50mg again. See if my body adjusts to it better. Hmmm....
    The only thing in five years that got me out of bed and able to enjoy most of my day was oxycontin. I thought it was a miracle drug. It's a whole 'nother story why I don't take it anymore - much to do with the current school of thought of "you'll become an addict!" and when I went to the ER for pneumonia, all the doc could drill me about was the where/how/when about my scrip for oxycontin - are only two reasons.

    Sue: thanks for making me laugh! Ya, I probably should have ruined his shoes...I'm interested in those walking tapes you use. Info? In defense of the doc, I just saw him for the first time last week and he is really there to help me with my other health issues. I'll be seeing a fms specialist my next appt so for now I'm giving him the benefit of the doubt. Foolish - not sure, but he did say that he is not the "expert" on fibro. This is at Sister Kinney Institute in Minneapolis. It's a 3 1/2 hour drive for me but from what I've heard it's going to be worth it. I'm keeping the faith. Although I had great faith in the Mayo clinic too but that quickly faded after "treatment."

    Nature: I'm impressed that you can work that tread 30 minutes! Wow! Good for you!

    Delphine: your words are truly wisdom. Thank you.

    KGAngel: I just appreciate your time to reply - that is precious right now















  5. fivesue

    fivesue New Member

    Scooter,

    The tapes are called Walk Away the Pounds by Leslie Sansone (sp?), I believe. I think you can find them on the new by typing in her name of the name of the tapes.

    This is the first batch...they have a 1 mile, 2 mile, and 3 mile walk. Of course, I'm only at about half a mile, but I used to be at the 2 miler before FM. Boy, that seems like a lifetime ago.

    Anyway, I like them. I can do it at home and don't have to do anything special to exercise. Sometimes I don't do all they do, and my intensity is less than theirs, but I am moving and I do do a half mile. So, it can't be all bad.

    Good luck...we're all in this together!

    Sue
  6. hartogold

    hartogold New Member

    Hi Scooter;

    I just posted a similar message right before I read yours. It's so hard to not feel guilty when exercise is constantly pushed on you by your docs and the world in general.

    I have been working out/walking for almost 2 months on a regular basis and was loving it. Being in the midst of a major flare up I still tried and have been suffering afterwards because of it. Now I'm dreading it and that really disappoints me. I WANT to exercise. I'm in Curves and I walk almost daily with a friend. Exercise is supposed to help with depression and menopause as well and I'm so afraid of what will happen to me if I DON'T exercise regularly and what will happen if I DO!

    You have my complete empathy. God bless us all and may we all be able to find the answers someday.
    Sandy
  7. Jen102

    Jen102 New Member

    you loved to exercise before, and when you are well enough, you will love to exercise again. you don't lack moral fiber, you lack physical health. and yes, i believe there may be value in exercising if you have fibro, but if you don't have the ENERGY to exercise in the first place, then i wonder if exercising won't bring you down further. for me, my adrenals were wrecked, my thyroid low, etc., etc. until these were treated (they aren't great yet--but better) it was harmful in my opinion to exercise. Who would tell someone with a spinal injury to "get up out of their wheelchair and walk, you loser," like they tell us to, despite our physical inability? grrrr. it drives me crazy. maybe you should say to your doc that you would love to exercise, now fix me so that i am able to! I'm feeling fiesty today--sorry. Jen102