Discussion in 'Fibromyalgia Main Forum' started by Cinlou, Jun 14, 2006.

  1. Cinlou

    Cinlou New Member

    I was wondering if anyone has ever taken doxycycline??
    I have been reading Project Day Lily, and the book has been hard to put down.
    I was wondering of the experience of anyone that has taken this antibiotic.

    How long did you take it for.......etc???
  2. lbconstable

    lbconstable New Member

    Hi Cindy,

    Several people here are on doxycycline. I've been taking a low dose for about a year and expect to continue for another year.

    I have definately improved over the last couple of years with the extensive regimen that I've been on.

    I'm not familiar with the book that you mentioned, but I'm interested in what it's all about.

    love & light
  3. Cinlou

    Cinlou New Member


    Thanks for the reply...If you don't mind saying, what doctor put you on this?
    I really would like to try this. I know when I have taken
    dicloxacillin for a bacteria infection on my hand I seemed to feel better all over.
    The book was written by Garth L. Nicolson and Nancy L. Nicolson. It is about the events surrounding the "Gulf War
    Syndrome." The origins of their families were getting sick when their loved ones came home.
    It really makes you think....this is fiction...the events described are true....but in a fictional format.
    Read it if you can...
    Thanks again,
  4. suzetal

    suzetal New Member

    They put me on it when the doctor thought I had Lyme.Found a great decease specialist.And he ordered more blood work.

    I did not have Lyme. He than took me off the antibiotic .He also while I was in his office called a rheumy who was a friend of his and got me in the next day.

    The rheumy diagnosed me with FM.

    I now have a GP neurologist and a shrink that all believe in FM and CFS .They all support me 100% .Take there time with me read the info I get from this board and we talk about it.They all work together to try and make me feel better.

    Sorry got off track a bit.Anyway the antibiotic did not do anything for me.

    Take care
  5. Cinlou

    Cinlou New Member

    Thanks for your the doxycycline used mainly for lyme?
    That is just great that you have such wonderful doc's that take care of you 100%! We all should be so lucky...
    Thanks again,
  6. suzetal

    suzetal New Member

    If the doxycycline is just used for lyme sorry.

    Take Care
  7. TXFMmom

    TXFMmom New Member

    It can be used for sinus infections and other things, and is used in areas where the antibiotic must be able to be absorbed well where some are not.
  8. Mikie

    Mikie Moderator

    On Doxy, Doxycycline, or Mycoplasmas and you will find our old discussions on this. I took Doxy for 2 1/2 years for a mycoplasma infection. I still keep it around all the time because, like with Lyme, cysts deep in the body's tissue can reactivate when we get run down.

    Love, Mikie
  9. Mikie

    Mikie Moderator

    If your doc did some research, he would find that a lot of patients have had good success with Doxy and other ABX. It has been used successfully in CFIDS, RA, and GWI.

    There are different types of ABX. Doxy is safer for long-term use and is unlikely to cause resistant strains of bacteria. If one is infected with Lyme Disease, mycoplasmas, or other bacteria, it is the lesser of two evils to take the ABX than to allow the infection to take over the body.

    If the diarrhea is from Herxing, it is evidence that the ABX is killing off massive numbers of bacteria. Some need to cut back in the beginning and build up, due to such a response. For others, a change in ABX helps. Most of us with chronic infections have been sick a long time and there are millions of bacteria to be killed off.

    Only you and your docs can decide what is best for you, but I wanted to post that the ABX have been a God send for me.

    Love, Mikie
  10. jbennett2

    jbennett2 New Member

    the only problem I have with it is the sun sensitivity thing. It has helped with my Lyme.
  11. meowchowchow

    meowchowchow New Member

    I've been taking Doxy for about 2 weeks now for Lyme and I swear I am starting to feel better. And I'm even on a low dose...

    For the people taking it, how much are you taking per day?
  12. Mikie

    Mikie Moderator

    People take 100 mgs. of Doxy either two or three times a day.

    Mycoplasmas like to get into the synovial fluid in joints. It makes sense that taking the Doxy would help with joint diseases like OA and RA.

    The Doxy cleared up my IBS which was a bonus that surprised me.

    Cell-wall-deficient bacteria, like Lyme and mycoplasmas, can infect the entire body, including organs and the brain. The Doxy is supposed to transcend the blood/brain barrier to kill the bacteria there.

    Love, Mikie
  13. ldbgcoleman

    ldbgcoleman New Member

    I took doxy for mycoplasma from july through january. It did not work on my mycoplasma so I am taking Zithromax now. I took famvir for EBV as well and my EBV was totally eradicated.

    I started the Doxy and Famvir at the same time and one or the other made me feel bad for about 5 days. Then i started getting better.

    The Doxy caused me to have a severe sun reaction so be careful. I could not go in the sun at all. I mean from the car to the store I had to cover up. This is a very common reaction so Be careful.

    I am not sorry I tried the Doxy even though it didn't clear up the mycoplasma. The whole solution is finding the right thing that works for you. Doxy is in expensive and worth a try. The Famvir totally worked on my EBV and thats why I feel so much better. I hope you find a solution to your illness Lynn
  14. livin4him

    livin4him New Member

    You may want to check this out. It is on - this person suffered from fms, cfs, and posted her results on antibiotics. One of which you are writing about. Her article is about the mycoplasma information package.

    I was looking this up due to the mycoplasma pneumonia I have right now.

  15. lbconstable

    lbconstable New Member

    Hi Cindy,

    I found my doctor when I was researching treatment for hypercoagulation. I called Hemex labs who tests for this condition inquiring as to doctors that might be able to diagnose and treat me. They referred me to my current rheumatologist.

    His name is Dr. A.R. Franco. He practices in Riverside, CA. The name of his practice is The Arthritis Center. He's been very involved with The Road Back Foundation which promotes the use of antibiotics for many rheumatic conditions including autoimmune disorders. He has a website with published info as well.

    He coinincidentally has collaborated with Dr. Nicolson and other CFS researchers on some of their published work.

    Love & Light
    [This Message was Edited on 06/15/2006]
  16. Dlebbole

    Dlebbole New Member

    Doxycycline has also been shown to reduce some inflammatory markers. So perhaps that is another reason it may help people with CFIDS/FIBRO. Diane
  17. Mikie

    Mikie Moderator

    I hope the Zithromax helps you. Just curious--how do you know the Doxy didn't work? The protocol is to take the Doxy for six months and then start pulsing it. It can take years for it to get the mycoplasma under control. I was on it for 2 1/2 years. What is different for you now on the Zithromax? Are you Herxing on it?

    Again, I hope the Zithro helps. Please keep us updated.

    Love, Mikie
  18. pez23

    pez23 New Member

    Has anyone felt worse on doxycycline for several months before they felt better. I've been feeling more pain and a lot more weakness on it and my doctor is saying that this reaction is not die-off. Could it be making things worse without any benefit? Thanks.
  19. Mikie

    Mikie Moderator

    It may be time to try another ABX.

    Love, Mikie
  20. Cinlou

    Cinlou New Member

    Hello everyone,
    Thanks for all the info you have given me.
    I am going to check to see who will Rx me the doxycycline, it is worth a try.

    ibconstable, I am going to call the office of Dr. Franco, I only live about 30 minutes away from Riverside. Right now I am seeing a rheumy at Loma Linda Medical Center. She is very nice. I am going to ask her about Dr. Franco's work. Maybe she can help with the doxy.
    Thank you all so much!
    Take care,